Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I am 28 yrs old,and at 24 started having parox afib. I am new to this site,and hope to meet fllow afibbers. I have been in and out of hospital and have had 2 ablations,but my afib came back. Its a juggling game betwwen the effects of afib and the medication. I have suffered terrible side afffects from meds. Atenalol gave me real breathing problems. Flecainide was awful-i felt numb to life,i didnt have emotions(sounds weird but is best that i can describe it) Warfarin-migraines-never had migraines till warfarin I just wanted to say dont let it beat you,your not alone.I feel your pain also. I am now waiting to see my cardio after afib returned after 2nd ablation,like you,its hard to accept a lifetime of afib and meds,but we keep going. Feel free to contact me,its nice to know there are other afibbers, Mimixx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hi Mimi - I'm sorry your ablations didn't work so far.. where did you have them done, and by whom? And how long ago was the last one? stef Hi all,my story of being a young afibber I am 28 yrs old,and at 24 started having parox afib. I am new to this site,and hope to meet fllow afibbers. I have been in and out of hospital and have had 2 ablations,but my afib came back. Its a juggling game betwwen the effects of afib and the medication. I have suffered terrible side afffects from meds. Atenalol gave me real breathing problems. Flecainide was awful-i felt numb to life,i didnt have emotions(sounds weird but is best that i can describe it) Warfarin-migraines-never had migraines till warfarin I just wanted to say dont let it beat you,your not alone.I feel your pain also. I am now waiting to see my cardio after afib returned after 2nd ablation,like you,its hard to accept a lifetime of afib and meds,but we keep going. Feel free to contact me,its nice to know there are other afibbers, Mimixx Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hi,thanks for your message. My first ablation i was sedated and in theatre for 7 1/2 hours,but i kept moving around a lot(i have no memory of it)so it was deemed failture.My second one i was under GA and it lasted 6 hours,and worked, I was afib free for about 6 months and then gradually the attacks came back and have now returned back to being daily events. I was in Oxford JR hospital under Dr Bashirs fantastic care. I am seeing cardio the 15th of feb and i hope to be tested for sleep apnea as well as my afib and forgetting to breath at night come hand in hand,so for me i hope there is a link. As for the afib i dont know what the next plan of action will be,if they will try ablation again or not-all will be revealed soon,lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 --- i hope to be tested for sleep > apnea as well as my afib and forgetting to breath at night come hand in > hand,so for me i hope there is a link. > I think there is a definite link between my a fib (which always started when I was asleep) and sleep apnea. Since starting on the bipap machine Sept 1 I have not had a fib except when prescribed cough syrup with hydrocodone, a big mistake that put me into long sessions of a fib the two times I took it. I hope you find relief using the cpap machine if you indeed have sleep apnea. My apnea (at the severe level)is not completely controlled right yet, but is reduced in frequency. I am hoping that has helped control fib at least for the time being. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 > > I am 28 yrs old,and at 24 started having parox afib. > I am new to this site,and hope to meet fllow afibbers. > I have been in and out of hospital and have had 2 ablations,but my afib > came back. > Sorry about your AF return. I do believe I would investigate the maze procedure after 2 failed ablations. I had the maze in 1998 and have been af and medication free ever since. You are much to young to put up with AF for years. I take it you are in GB, and you are on their medical system, so I don't know much about it or what kind of options you have. They do a lot oa maze procedures there, so it could be possible. I wish you the best. Jack Quote Link to comment Share on other sites More sharing options...
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