Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Just wanted to let you know that JD was released from Childrens Medical Center Dallas yesterday to the care of his mother and I and to his home nurses. JD is doing somewhat better but is still having symptoms related to his RSV illness. These symptoms can persist for some time. JD is doing better though and breathing under his own power and he seems happier now that he is at home. One thing that I am struggling with is that JD has had to be placed back on the ventilator. It is not giving him any breaths just support. He has tracheal malaysia and his airway is collapsing some and Dr. Gelfand is not comfortable with him being completely off the vent yet especially since he has been sick twice now with hospital visits in less than a months time. We have not yet discovered why the tracheal malaysia is showing up now but Dr. Gelfand will be doing some tests in the future to determine exactly what is going on. JD may need more time to grow for his airway to firm up or JD may have to face another major surgery to make his airway better besides the one already scheduled this spring for his nose. I can say is at peace with him being back on the vent but I am really struggling with this. I know that there is nothing in my power that I can do but place this in the hands of God. I just so hope and pray that JD doesnt have to spend his entire life on the vent or trached. We were so happy months ago when he successfully came off the vent and was doing so well. We just dont want any bumps in the road but there really is nothing that we can do to control it since we are not in control of this situation but we do know God is. At this time and possibly for quite a while, Dr. Gelfand is not comfortable with JD having visitors. It is a situation of germs being brought in from the outside and we dont want JD developing RSV again. It is such a nasty and possible deadly viral infection. Olivia too is still battling RSV as she has had to be put on nebulized breathing treatments similar to JD. It is suspected that both of our children have asthma and will battle this and be faced with these types of breathing treatments for most of their childhood and teenage years. Because of their prematurity, they cannot be exposed to noxious aerosols or noxious substances. There premature lungs just cant handle it. We ask for your continued thoughts and prayers for JD. We are hoping that we do not experience him getting sick again this winter and the helicopter ambulance rides that he has been taking cease for awhile. May the grace, peace, glory, and mercy of our Lord Jesus Christ be with each of you. In His Hands and still holding onto that rope, , , Olivia (15 months) and JD (cHArgEd 15 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 and , thanks for the update. All the best to you in regard to the health in your house!! It is a hard thing keeping " bugs " out when you have such vulnerable little ones. Hopefully, they can be protected enough to get you all through this. pam JD UPdate Just wanted to let you know that JD was released from Childrens Medical Center Dallas yesterday to the care of his mother and I and to his home nurses. JD is doing somewhat better but is still having symptoms related to his RSV illness. These symptoms can persist for some time. JD is doing better though and breathing under his own power and he seems happier now that he is at home. One thing that I am struggling with is that JD has had to be placed back on the ventilator. It is not giving him any breaths just support. He has tracheal malaysia and his airway is collapsing some and Dr. Gelfand is not comfortable with him being completely off the vent yet especially since he has been sick twice now with hospital visits in less than a months time. We have not yet discovered why the tracheal malaysia is showing up now but Dr. Gelfand will be doing some tests in the future to determine exactly what is going on. JD may need more time to grow for his airway to firm up or JD may have to face another major surgery to make his airway better besides the one already scheduled this spring for his nose. I can say is at peace with him being back on the vent but I am really struggling with this. I know that there is nothing in my power that I can do but place this in the hands of God. I just so hope and pray that JD doesnt have to spend his entire life on the vent or trached. We were so happy months ago when he successfully came off the vent and was doing so well. We just dont want any bumps in the road but there really is nothing that we can do to control it since we are not in control of this situation but we do know God is. At this time and possibly for quite a while, Dr. Gelfand is not comfortable with JD having visitors. It is a situation of germs being brought in from the outside and we dont want JD developing RSV again. It is such a nasty and possible deadly viral infection. Olivia too is still battling RSV as she has had to be put on nebulized breathing treatments similar to JD. It is suspected that both of our children have asthma and will battle this and be faced with these types of breathing treatments for most of their childhood and teenage years. Because of their prematurity, they cannot be exposed to noxious aerosols or noxious substances. There premature lungs just cant handle it. We ask for your continued thoughts and prayers for JD. We are hoping that we do not experience him getting sick again this winter and the helicopter ambulance rides that he has been taking cease for awhile. May the grace, peace, glory, and mercy of our Lord Jesus Christ be with each of you. In His Hands and still holding onto that rope, , , Olivia (15 months) and JD (cHArgEd 15 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 all the chargers go through this not just u hugs > > and , > thanks for the update. All the best to you in regard to the health in your > house!! It is a hard thing keeping " bugs " out when you have such vulnerable > little ones. Hopefully, they can be protected enough to get you all through > this. > > pam > > JD UPdate > > Just wanted to let you know that JD was released from Childrens Medical > Center Dallas yesterday to the care of his mother and I and to his home > nurses. JD > is doing somewhat better but is still having symptoms related to his RSV > illness. These symptoms can persist for some time. JD is doing better > though and > breathing under his own power and he seems happier now that he is at home. > > One thing that I am struggling with is that JD has had to be placed back > on the > ventilator. It is not giving him any breaths just support. He has tracheal > > malaysia and his airway is collapsing some and Dr. Gelfand is not > comfortable > with him being completely off the vent yet especially since he has been > sick > twice now with hospital visits in less than a months time. We have not yet > > discovered why the tracheal malaysia is showing up now but Dr. Gelfand > will be > doing some tests in the future to determine exactly what is going on. JD > may > need more time to grow for his airway to firm up or JD may have to face > another > major surgery to make his airway better besides the one already scheduled > this > spring for his nose. I can say is at peace with him being back on > the > vent but I am really struggling with this. I know that there is nothing in > > my power that I can do but place this in the hands of God. I just so hope > and > pray that JD doesnt have to spend his entire life on the vent or trached. > We > were so happy months ago when he successfully came off the vent and was > doing > so well. We just dont want any bumps in the road but there really is > nothing > that we can do to control it since we are not in control of this situation > but > we do know God is. > > At this time and possibly for quite a while, Dr. Gelfand is not > comfortable > with JD having visitors. It is a situation of germs being brought in from > the > outside and we dont want JD developing RSV again. It is such a nasty and > possible deadly viral infection. Olivia too is still battling RSV as she > has had > to be put on nebulized breathing treatments similar to JD. It is suspected > > that both of our children have asthma and will battle this and be faced > with > these types of breathing treatments for most of their childhood and > teenage > years. Because of their prematurity, they cannot be exposed to noxious > aerosols or > noxious substances. There premature lungs just cant handle it. > > We ask for your continued thoughts and prayers for JD. We are hoping that > we > do not experience him getting sick again this winter and the helicopter > ambulance rides that he has been taking cease for awhile. > > May the grace, peace, glory, and mercy of our Lord Jesus Christ be with > each > of you. > > In His Hands and still holding onto that rope, > > , , Olivia (15 months) and JD (cHArgEd 15 months) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 My daughter (12 months) also was on and off the vent so many, many times. She is breathing on her own now and did not have to have a trach, but we don't know what tomorrow holds. You are right it all is in God's hands. Celebrate the good times and hold onto hope. Congrats on JD coming home. Don't worry about keeping visitors away. Until these little ones can handle it, it is best to keep them protected from all these germs (my daughter is a 26 week preemie and seems to catch every ugly bug that comes near her). God Bless. You are in our prayers. - M. mother of Anabelle (12 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Glad to hear that JD is home. I hope he and Olivia remain healthy the rest of the winter and that spring arrives for you soon! , mom to (4) http://kauffmanlak.blogspot.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Great news for JD, and all of you, heres to the New Year and roll on the summer months Les x > > Glad to hear that JD is home. I hope he and Olivia remain healthy the > rest of the winter and that spring arrives for you soon! > > , mom to (4) > http://kauffmanlak.blogspot.com/ > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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