caitlyn out of surgery

December 21, 2006

hi every one finally caitlyn is out of surgery after 8 long hours

things have seemed to go well but she is in intensive care for the

night cos of her chest she is on oxygen .not happy with with the new g

tube though big and bulcky kellie is seeing the surgeon again tom .

when the time comes to change the g tube seemingly in a few month time

caitln will not need a opp aparently you can change this without the

opp. dont quite understand it at the moment,we did not see the new g

tube till after talking to the surgeon so we did not know what it

looked like but we were not happy when we finally saw it. they had to

take the old g tube out to do the opp but the tube was stuck so they

had to make the hole bigger to get the g tube out so they could not put

it back in the same place, so a totally difrent g tube was put in but

were not told or asked about seemingly it can easly be changed to a

button but before the opp kellie spoke to the surgeon and told her she

did not want a button cos weve heard a few bad things about them any

views on this please seemingly the opp was very fiddly to do we did not

expect the opp to last as long we did get told 4 to 7 hours but we did

expect 4 how wrong we were well thanks for all your kind thoughts its

late were all very tierd so were off to bed i will post you all tom

rita kellie and caitlyn xxxxxx

December 22, 2006

Rita,

Pleased to hear the news. Don't know a great deal about tubes but glad to

hear she is out of surgery and hope she gets out of ITU soon. Keeping

fingers crossed for fast recovery for Caitlin. You all deserve the rest

now.

Flo (UK)

Mum to - CHARGE - (6) and Elly (4)

December 22, 2006

Rita,

Glad to hear from you - give Caitlin a kiss. Don't worry about the tube; in

a few months she'll probably get a little button, which is much nicer than

those old long tubes.

Hugs,

www.chargesyndrome.info

>

> hi every one finally caitlyn is out of surgery after 8 long hours

> things have seemed to go well but she is in intensive care for the

> night cos of her chest she is on oxygen .not happy with with the new g

> tube though big and bulcky kellie is seeing the surgeon again tom .

> when the time comes to change the g tube seemingly in a few month time

> caitln will not need a opp aparently you can change this without the

> opp. dont quite understand it at the moment,we did not see the new g

> tube till after talking to the surgeon so we did not know what it

> looked like but we were not happy when we finally saw it. they had to

> take the old g tube out to do the opp but the tube was stuck so they

> had to make the hole bigger to get the g tube out so they could not put

> it back in the same place, so a totally difrent g tube was put in but

> were not told or asked about seemingly it can easly be changed to a

> button but before the opp kellie spoke to the surgeon and told her she

> did not want a button cos weve heard a few bad things about them any

> views on this please seemingly the opp was very fiddly to do we did not

> expect the opp to last as long we did get told 4 to 7 hours but we did

> expect 4 how wrong we were well thanks for all your kind thoughts its

> late were all very tierd so were off to bed i will post you all tom

> rita kellie and caitlyn xxxxxx

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

December 22, 2006

Hi Rita, Kellie and Caitlin!

Glad to hear the good news after such a long day!

Rasha had a long tube for 6 months after they placed it before we

got the button. To be honest, it was less work than the button. I

just tucked it down the leg of her pants and flushed it when we were

done to keep it clean. Now with the button I have to put the tube

attachment on and off... In the end, I am glad we waited because it

allowed the site to heal completely and her site (stoma?) looks

great!!

Janay

Rasha's mom

>

> hi every one finally caitlyn is out of surgery after 8 long hours

> things have seemed to go well but she is in intensive care for the

> night cos of her chest she is on oxygen .not happy with with the

new g

> tube though big and bulcky kellie is seeing the surgeon again

tom .

> when the time comes to change the g tube seemingly in a few month

time

> caitln will not need a opp aparently you can change this without

the

> opp. dont quite understand it at the moment,we did not see the new

g

> tube till after talking to the surgeon so we did not know what it

> looked like but we were not happy when we finally saw it. they had

to

> take the old g tube out to do the opp but the tube was stuck so

they

> had to make the hole bigger to get the g tube out so they could

not put

> it back in the same place, so a totally difrent g tube was put in

but

> were not told or asked about seemingly it can easly be changed to

a

> button but before the opp kellie spoke to the surgeon and told her

she

> did not want a button cos weve heard a few bad things about them

any

> views on this please seemingly the opp was very fiddly to do we

did not

> expect the opp to last as long we did get told 4 to 7 hours but we

did

> expect 4 how wrong we were well thanks for all your kind thoughts

its

> late were all very tierd so were off to bed i will post you all

tom

> rita kellie and caitlyn xxxxxx

>

December 22, 2006

Rita,

so glad this is over with for now!!! Get some sleep and little Caitlin is being

thought of by many people!!

pam

Re: caitlyn out of surgery