Re: PLSers needed for study in England

[Guest guest]

Dr. Talbot was awarded the last NORD PLS research grant. He will be one of

the researchers at the PLS Symposium in Santa Cruz, California on June 4-6.

It's going to be amazing all those (40+) researchers all together the whole

weekend working for us and will be so exciting to hear what they decide.

Also, Dr. Rowland has arranged for a reporter from Neurology Today to come

to the PLS meeting and publish an account of the Symposium. This goes out

( " free " or in the dues) to the membership of the ANA...and that's a LOT of

neurologists!

Gentner

***************************************************

An update on this research. May 17 I was in the UK and managed to make

it to see Dr Talbot. This was really amazing as to for me to

participate the scan had to be booked for a Sunday - the day he

returned from a conference in France. I had to travel for 5 hours by

car to get to Oxford but for me this was worth while. I hope by

participating I helped with this research. Dr Talbot seemed confident that

he might be able to provide a means of giving a more definite diagnosis

of PLS from the special scan he is using and also to provide more

information on the sites and nature of deterioration of the neurons.

I was really encouraged to learn of the research being done.

It was really worth it to make the effort to get there. I hope to

get more information about the results and I'll be able to keep

the group informed if anything more comes from this.

Kiwi

[Guest guest]

An   update on this research.  May 17 I  was in the UK and managed to make 

it to see Dr Talbot. This was really amazing  as to for  me  to

participate the  scan  had  to  be booked for a Sunday  - the  day he

returned  from a conference  in France. I    had  to travel for 5 hours  by 

car  to  get to Oxford but  for me this  was worth while.  I   hope by

participating  I helped with this research. Dr Talbot seemed confident that

he might be able to provide  a means  of  giving a more definite diagnosis

of PLS from the special scan  he is  using and also to provide more

information  on the sites and  nature of  deterioration of  the neurons. 

I  was  really encouraged  to learn  of the  research being done.

It was really worth  it  to make  the  effort  to get  there. I   hope  to

get  more  information about   the  results and I'll  be  able  to   keep

the group  informed  if  anything more  comes  from this.

 

Kiwi

 

PLSers needed for study in England

Anyone with PLS living in England, or planning to

travel there, is strongly urged to participate in a

study being conducted by Dr. Talbot of Oxford

University in London.  Participants will undergo an

MRI exam. 

The MRI equipment being used has special software not

found on any other MRI unit.  This allows Dr. Talbot

to develop images never seen before of the

corticospinal tract.  It is this area that is affected

in PLS. 

Dr. Talbot is using a diffusion imaging (MRI)

technique called Probalistic Diffusion Tractography to

measure the integrity of the

corticospinal tract. He is aiming to develop this tool

as a biomarker of PLS and ALS (which would create a

measure that would allow clinical trials of PLS

patients). It may also help to define the

relationship between PLS and ALS.

To participate in Dr. Talbot's study, you'll need to

go to England. If you're interested, please contact

Dr. Talbot at kevin.talbot@... .

This study is funded by the PLS Research Fund at NORD

and comes from monies exclusively raised almost a year

before the creation of the SPF.

Mark Weber

_____

[Guest guest]

, I am going to be in England this summer so I emailed Dr.

Talbot using the cite in Mark's post and it came back undeliverable.

Is there a newer email address?

Sue in Calif

> An   update on this research.  May 17 I  was in the UK and managed

to make 

> it to see Dr Talbot. This was really amazing  as to for  me  to

> participate the  scan  had  to  be booked for a Sunday  - the  day

he

> returned  from a conference  in France. I    had  to travel for

5 hours  by 

> car  to  get to Oxford but  for me this  was worth while.  I   hope

by

> participating  I helped with this research. Dr Talbot seemed

confident that

> he might be able to provide  a means  of  giving a more definite

diagnosis

> of PLS from the special scan  he is  using and also to provide more

> information  on the sites and  nature of  deterioration of  the

neurons. 

> I  was  really encouraged  to learn  of the  research being done.

> It was really worth  it  to make  the  effort  to get  there. I  

hope  to

> get  more  information about   the  results and I'll  be  able 

to   keep

> the group  informed  if  anything more  comes  from this.

>  

> Kiwi

>  

>

> PLSers needed for study in England

>

>

> Anyone with PLS living in England, or planning to

> travel there, is strongly urged to participate in a

> study being conducted by Dr. Talbot of Oxford

> University in London.  Participants will undergo an

> MRI exam. 

>

> The MRI equipment being used has special software not

> found on any other MRI unit.  This allows Dr. Talbot

> to develop images never seen before of the

> corticospinal tract.  It is this area that is affected

> in PLS. 

>

> Dr. Talbot is using a diffusion imaging (MRI)

> technique called Probalistic Diffusion Tractography to

> measure the integrity of the

> corticospinal tract. He is aiming to develop this tool

> as a biomarker of PLS and ALS (which would create a

> measure that would allow clinical trials of PLS

> patients). It may also help to define the

> relationship between PLS and ALS.

>

> To participate in Dr. Talbot's study, you'll need to

> go to England. If you're interested, please contact

> Dr. Talbot at kevin.talbot@c... .

>

> This study is funded by the PLS Research Fund at NORD

> and comes from monies exclusively raised almost a year

> before the creation of the SPF.

>

> Mark Weber

>

>

>

> _____

>

>

[Guest guest]

The following email should reach Dr Talbot

Talbot [kevin.talbot@...]

 

Regards

PLSers needed for study in England

>

>

> Anyone with PLS living in England, or planning to

> travel there, is strongly urged to participate in a

> study being conducted by Dr. Talbot of Oxford

> University in London.  Participants will undergo an

> MRI exam. 

>

> The MRI equipment being used has special software not

> found on any other MRI unit.  This allows Dr. Talbot

> to develop images never seen before of the

> corticospinal tract.  It is this area that is affected

> in PLS. 

>

> Dr. Talbot is using a diffusion imaging (MRI)

> technique called Probalistic Diffusion Tractography to

> measure the integrity of the

> corticospinal tract. He is aiming to develop this tool

> as a biomarker of PLS and ALS (which would create a

> measure that would allow clinical trials of PLS

> patients). It may also help to define the

> relationship between PLS and ALS.

>

> To participate in Dr. Talbot's study, you'll need to

> go to England. If you're interested, please contact

> Dr. Talbot at kevin.talbot@c... .

>

> This study is funded by the PLS Research Fund at NORD

> and comes from monies exclusively raised almost a year

> before the creation of the SPF.

>

> Mark Weber

>

>

>

>    _____

>

>

[Guest guest]

I search Talbot on internet and found his email. It is

kevin.talbot@.... I emailed that address and it went thru.

Thanks, Sue

-FRIENDS , " & Dennis " <dana1@x> wrote:

> The following email should reach Dr Talbot

> Talbot [kevin.talbot@c...]

>  

> Regards

>

>

> PLSers needed for study in England

> >

> >

> > Anyone with PLS living in England, or planning to

> > travel there, is strongly urged to participate in a

> > study being conducted by Dr. Talbot of Oxford

> > University in London.  Participants will undergo an

> > MRI exam. 

> >

> > The MRI equipment being used has special software not

> > found on any other MRI unit.  This allows Dr. Talbot

> > to develop images never seen before of the

> > corticospinal tract.  It is this area that is affected

> > in PLS. 

> >

> > Dr. Talbot is using a diffusion imaging (MRI)

> > technique called Probalistic Diffusion Tractography to

> > measure the integrity of the

> > corticospinal tract. He is aiming to develop this tool

> > as a biomarker of PLS and ALS (which would create a

> > measure that would allow clinical trials of PLS

> > patients). It may also help to define the

> > relationship between PLS and ALS.

> >

> > To participate in Dr. Talbot's study, you'll need to

> > go to England. If you're interested, please contact

> > Dr. Talbot at kevin.talbot@c... .

> >

> > This study is funded by the PLS Research Fund at NORD

> > and comes from monies exclusively raised almost a year

> > before the creation of the SPF.

> >

> > Mark Weber

> >

> >

> >

> >    _____

> >

> >