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PLSers in AUSTRALIA

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Hi Gang,

How are you all? I don't post much due to fatigue, but I am well, just

lurking. Welcome to all the newbies.

ADRIANNA AND MAUREEN I read your recent posts. It would be nice if we could

meet up - I live in North Western Sydney, in Gladesville. I am in a power

wheelchair and use a communication device as I have no speech, but I am well

and happy, just can't travel in public transport alone. I can go to the

local shopping centre alone though in my wheelchair, to meet friends for

coffee, or a pub lunch, all of which is easily accessible.

ADRIANNA say hello to my neurologist from me, the lovely Dr Dominic Rowe at

RNSH. MAUREEN have you been to the MND Clinic at the Royal North Shore

Hospital run by Dr. Rowe? He diagnosed me with PLS on my first visit, after

seeing many other neuro's for nearly 3 years (including a panel of 9 neuro's

with Dr. at Westmead). You can tell I am a great fan of Dr Rowe - he

put me on Neurontin which gave me back quality of life.

Janet Monaghan in Australia.

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