FWD from Shellie (tech problem, Shellie couldn't send)

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Subj: [HSP] Chugga Chugga Choo Choo We are in high gear now!!! Date:

7/16/2004 12:49:13 PM Pacific Daylight Time From: _mudlupii@..._

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When I set out to do the very first walkathon in Virginia of 2001. A friend

of mine from the Cystic Fibrosis walkathon in our town gave some great

advice. She said the walk location itself is to get people to learn about

the disorder and to get the word out. It helps for media coverage and others

aspects of becoming more known to the general public. However to get funding

to research it is the patients and the letters that they write compelling

others to act on their behalf that makes all the difference in the world.

I took her advice and designed a two part walk/letter writting campaign we

now call Teamwalk/ by Proxy. For us it has meant a great deal and the

work was not in vain. Today this effort grows exponetially each year proving

that learning from the experience of others is vital and that we can

succeed.

This year we have added a few things to help individuals with their

campaign. Even so keep in mind the most important part of this event is to

write letters.Plus you can designate funds this year. I have enclosed some

letter and page examples plus fundraising ideas to help those with interest.

We also have Teamwalk Pages that use pay pal and you can create your own

similiar to these examples. It will give an internet access and the use of

paypal credit cards to help in other ways.

Here are the links to those examples.

Dear Family and Friends,

As you know we have an annual walkathon known as Teamwalk. Funding for

research is critical to finding a cure and much has already been

accomplished. As you know our gene was discovered in 2001. Since then the

have learned a great deal about the biochemistry. This particuliar gene is

part od the dynamin family and lends insights to other types of disorders

such as ALS. Today they are moving even further along to understand the

function of this gene and this answer will lead to possible treatments.

We have thirteen family members with Hereditary Spastic Paraplegia three of

which are my own Children. As you know my birthday is just around the corner

and I will be $35. So for this year would you please send $35 with a form

from this site: http://www.sp-foundation.org/donate-print.htm.

Credit card donations can be made at this site.

http://sp-foundation.org/Teamwalk04/shellie.htm

The only thing between a treatment/cure for Hereditary Spastic Paraplegia is

dollars. Please help get us there as fast as we can.

Respectfully

Shellie Fischer

Kathi: http://sp-foundation.org/Teamwalk04/kathi.htm

Shellie: http://sp-foundation.org/Teamwalk04/shellie.htm

Flora: http://sp-foundation.org/Teamwalk04/flora.htm

: http://sp-foundation.org/Teamwalk04/julie.htm

Fundraising Tips and Suggestions

Interested in helping to raise funds, but not sure what to do? Here are a

few tips and suggestions to help get you underway..

You can always combine a few ideas - For example, if you do a car wash or

walk-a-thon, consider combining it with a little " extra " - sell doughnuts,

lemonade, lollipops or other " goodies " for a little additional money.

If you're planning a fundraising event and would like help please contact

me.

Fundraising Activities

• Raffles - If you can get something of value donated to your cause,

sell

raffle tickets for it. Ask a local artist to donate a work of art, or find a

company that will donate a special service - a " day of beauty " at a beauty

spa, a housecleaning by a cleaning service, etc.

• Bake Sales - A great activity for an office or church group.

• Blue Jeans Day - Ask your office to sponsor a " blue jeans day " if they

don't normally permit employees to wear blue jeans. Charge a fee to people

who want to wear jeans, and provide a tag, sticker, or ribbon to identify

those who have paid the fee.

• Rummage Sales - Have a rummage sale at your office or church, or

sponsor a

yard sale. Ask people to donate items, with the proceeds going to your

designated organization.

• Gift Wrapping - Ask local shopping areas or stores if you can set up

a

gift wrapping table at Christmastime. Just like regular gift wrapping

stations, you can charge different amounts for different levels of wrapping.

• Other Special Services - An interesting idea I saw on a fundraising

site

was to set up a booth at a golf course that is holding a golf tournament

(with the golf course's permission, of course!). Set up a table where you

can offer to clean golf clubs and balls, and/or sell raffle tickets for a

prize to be drawn by the end of the tournament that day (a golf prize, or

perhaps a cash prize - a percentage of the amount raised?).

Events

• Walk-a-thons - A walkathon takes quite a bit of planning, and there

are

many legal issues involved. We hope to use the Virginia HSP Walkathon (n

September) to organize a " game plan " for walkathons. In the meantime, here

are a few Internet sites that offer some detailed information on organizing

a Walkathon, just to give you an idea:

o Kiwanis - http://www.kiwanis.org/organizing_a_walkathon.html

o Sample of organizing notes for a walkathon:

http://www.ln.edu.hk/ssc/info/hostel/shmc/document/shmc_doc_978p012.htm

o NFS Bike/Walkathon information: http://www.northsouth.org/walkathon.html

• Car Washes - Get step-by-step instructions from The CarWashGuys:

How to Run a Car Wash Fundraiser:

http://www.carwashguys.com/fundraisers/LAschools.html

• Barbecues, Picnics, Breakfasts, Dinners - sponsor a " meal " as a

fundraising event. You can either charge for the food, or charge an

admission fee. Add a raffle or auction to raise additional funds.

• Games - Hold fun or silly games that the community can participate

in. For

example, you might do a " Gimp-ics " with silly versions of those

International Games (that I can't mention by name due to trademark

infringement), or some unusual version of a popular sporting event in your

area.

When holding a community event, ask for publicity from local radio stations,

TV Stations, and/or newspapers. Invite the employees of the station or

newspaper to participate - perhaps this can become an annual event!

Product Drives

Product drive fundraisers are those where you sell products to individuals,

which you purchase at a reduced rate, or where a company donates a portion

of proceeds from a catalog sale to your organization. The best results are

when there is a large number of people who are participating in the drive.

The links at the bottom of this page can direct you to many available

products for fundraising.

Party Plan Sales

Some companies that normally sell their products through home sales or

parties may be willing to allow a percentage of the proceeds of a party to

go to your charitable organization. Check with organizers for companies like

Avon, Amway, Tupperware, Pampered Chef, etc.

National Companies Promoting Fundraising Efforts

Some national chains have special programs to promote fundraising efforts in

the community. They may offer a percentage of proceeds to your charitable

organization, match contributions you raise, or offer coupon books that you

can sell.

• Papa Gino's

Papa Gino's is a pizza chain located in the New England area. Their

Community Fundraiser Program offers groups the opportunity to solicit people

to visit Papa Gino's during a specific time period. During that

pre-determined period, guests are encouraged to purchase from a specific

Papa Gino's location. When they make their purchase, they present a Papa

Gino's Fundraiser flyer for their group. In turn, Papa Gino's will donate

20% of the guest's entire purchase to the benefiting group. The donation is

valid on dine-in and carry-out only, provided the person making the purchase

presents a fundraiser flyer. Any not-for-profit group can hold a fundraiser.

Specific details are available at their website:

http://www.dangelos.com/corporate/community.html

• Pizza Hut

Pizza Hut offers a program where 20% of the proceeds of certain meals will

be donated to your organization, similar to the program indicated above for

Papa Gino's. Check with the manager of your local restaurant for details.

• Domino's

Domino's Pizza offers fundraising coupon books.

• Grocery Chains - Many grocery stores offer coupon booklets that can

be

sold to raise funds.

Getting Over the Fear of Asking for Money

Afraid to ask for money? Check out this article at the Alliance for

Nonprofit Management: http://www.allianceonline.org/faqs/frfaq1.html

Additional Ideas and Resources

For additional ideas, there is lots of information available on the

Internet. Here are a few links to get you started:

• Fundraising Ideas from About.Com -

http://nonprofit.about.com/careers/nonprofit/cs/fundraisingideas/index.htm

• Fundraising