Re: ta - da! We did it!-Kathi-videos

[Guest guest]

I sure would like one on stretching

M. PLS-FL

Re: ta - da! We did it!

Thanks to all of you for the nice comments about the tv interview show! I

slept well last night.

I'll know in a couple of days what a copy of the interview on videotape will

cost to reproduce and send out.

The interview does not provide detailed information about our diseases. The

time went fast, and of the 30 minutes, the host probably took 10 of it with

the opening and closing of the show and her questions.

So our answering her questions is probably about 20 minutes. It's mostly me

and giving a basic overview of what the diseases are, our own experiences

and how we formed a foundation out of the growth of our online communities

that were started by our email groups (that Cheryl and Mark started). So

there

wasn't a lot of time for a lot of detail.

I'm motivated to think about producing a video for us later. The Station

Director suggested an informational one about wheelchairs - all the different

types, buying guide, finances, etc.

But perhaps one about our diseases and general treatment? Or, maybe one with

lots of personal interviews with people from our community. Maybe one on

stretching routines, since stretching is so important for us. I'm cautious

to

do one on research, since it's moving so fast for us and would get outdated in

a year.

What type of video do you guys think would be good?

best,

Kathi

[Guest guest]

Kathi: Producing a video is a great idea.. However, the type of

video you produce should be determined by the audience you want to

reach and the message you want to transmit. I work with a video

distributor and I develop lesson plans to complement the videos for

use in classrooms.

So, if you want to provide information on wheelchairs, or stretching

exercises, you are looking at an audience of handicapped people or

their caregivers/families. If you want to educate people to motor

neuron diseases, you are looking at medical personnel, students at

high school and college level, and others who would be interested.

Then there's the question of duplication and distribution and cost.

I'd be happy to talk with you in more detail if you want. Just

contact me at edith@....

Edith

> I sure would like one on stretching

> M. PLS-FL

> Re: ta - da! We did it!

>

>

> Thanks to all of you for the nice comments about the tv

interview show! I

> slept well last night.

>

> I'll know in a couple of days what a copy of the interview on

videotape will

> cost to reproduce and send out.

>

> The interview does not provide detailed information about our

diseases. The

> time went fast, and of the 30 minutes, the host probably took 10

of it with

> the opening and closing of the show and her questions.

>

> So our answering her questions is probably about 20 minutes.

It's mostly me

> and giving a basic overview of what the diseases are, our

own experiences

> and how we formed a foundation out of the growth of our online

communities

> that were started by our email groups (that Cheryl and Mark

started). So there

> wasn't a lot of time for a lot of detail.

>

> I'm motivated to think about producing a video for us later.

The Station

> Director suggested an informational one about wheelchairs - all

the different

> types, buying guide, finances, etc.

>

> But perhaps one about our diseases and general treatment? Or,

maybe one with

> lots of personal interviews with people from our community.

Maybe one on

> stretching routines, since stretching is so important for us.

I'm cautious to

> do one on research, since it's moving so fast for us and would

get outdated in

> a year.

>

> What type of video do you guys think would be good?

>

> best,

> Kathi

>

>

>