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stiffman syndrome

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Hi Maureen,

This is from Arlene in Texas.

Welcome to the best group of people on earth.

I was first diagnosed with Stiffman by one of the best neuros in Houston

for nearly 2 yrs. I tested negative on the Gad test but a large percent

do. The EMG is the most important test and you shouldn't be on

clonozapan when taking test. Clonozapan is the same as klonopin. After

trying meds and no improvement they decided not Stiffman. I also tested

normal on EMG. They ususally try diazapam first as this is sorta the

wonder drug for stiffman. Wasn't a wonder for me in fact I wondered why

I was on it! Got best results from atavin and then they added baclofen

20 mgs 3 times a day and I went downhill. Still take .25 klonopin and

small amt of baclofen a day for PLS. Jankovic in Houston diagnosed

Stiffman from lordosis and the startle affect.

Good luck and keep us posted.

Arlene

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