Re: How long did it take for you to be diagnosed - for sandy grooms

[Guest guest]

Hi Sandy

I think thats terrible that you were put thru chemotherapy

unecessarily!! I dont know what M.S. is. can you let me know,

thanks

maureen

> Hi Maureen,

> Around 8 years ago I was first diagnosed with M.S.I went through the

shots and even chemotherapy for M.S. I just contiually got worse, so

my Neuro sent me to a specialist, that put me through all those tests

again, she stated that I dont have M.S I indeed have PLS. So after

getting used to the fact that I had M.S for 7 years, now I have to

deal with another diagnosis. Hey at least I am still being able to

walk and talk. Original Message -----

> From: Maureen

> To: PLS-FRIENDS

> Sent: Saturday, July 10, 2004 5:34 AM

> Subject: How long did it take for you to be diagnosed

>

>

> Hi all

>

> I have stated that i have either HSP or PLS but i have been incorrect

> in saying that. 3 neurologists have only given me a diagnosis of

> Spastic Paraplegia with Startle Myoclonus which as i understand it, is

> not a diagnosis but symptoms of a disorder. The 4th neuro came up

> with HSP or PLS but he is stumped with me as i dont clearly fit in

> with either one. but he has said that it is more likely HSP as there

> are 23 different varieties. My symptoms began 9 years ago and saw my

> first neuro 7 years ago (who like Lana here, told me to see a

> physchiatrist). You would think that i would have a diagnosis by now.

> I am using a walker now outside the home and speech problems began

> 1.5 years ago but have been corrected by taking baclofen. So my

> question to the people here is, how long after symptoms began did you

> receive a firm diagnosis? and are there any people here, like me, who

> are still waiting to be diagnosed?

>

> thanks

>

> maureen

>

>

>

[Guest guest]

Hi Maureen,

M.S is Multiple Sclerosis. Its kind of weard with the chemo I did it seemed to

stabalize me while on it. I hope and pray I dont ever have to go through it

again, it made me real sick for about a week afterwards. I really feel for the

people who have to go through it more frequantly than I did at every 6 months.

Take care, Sandy

How long did it take for you to be diagnosed

>

>

> Hi all

>

> I have stated that i have either HSP or PLS but i have been incorrect

> in saying that. 3 neurologists have only given me a diagnosis of

> Spastic Paraplegia with Startle Myoclonus which as i understand it, is

> not a diagnosis but symptoms of a disorder. The 4th neuro came up

> with HSP or PLS but he is stumped with me as i dont clearly fit in

> with either one. but he has said that it is more likely HSP as there

> are 23 different varieties. My symptoms began 9 years ago and saw my

> first neuro 7 years ago (who like Lana here, told me to see a

> physchiatrist). You would think that i would have a diagnosis by now.

> I am using a walker now outside the home and speech problems began

> 1.5 years ago but have been corrected by taking baclofen. So my

> question to the people here is, how long after symptoms began did you

> receive a firm diagnosis? and are there any people here, like me, who

> are still waiting to be diagnosed?

>

> thanks

>

> maureen

>

>

>

[Guest guest]

Hi Sandy

I thought it was Multiple Sclerosis but I have never heard of chemo

treatment being used for it. Thats interesting. Thanks for letting

me know,

Maureen

> > Hi Maureen,

> > Around 8 years ago I was first diagnosed with M.S.I went through the

> shots and even chemotherapy for M.S. I just contiually got worse, so

> my Neuro sent me to a specialist, that put me through all those tests

> again, she stated that I dont have M.S I indeed have PLS. So after

> getting used to the fact that I had M.S for 7 years, now I have to

> deal with another diagnosis. Hey at least I am still being able to

> walk and talk. Original Message -----

> > From: Maureen

> > To: PLS-FRIENDS

> > Sent: Saturday, July 10, 2004 5:34 AM

> > Subject: How long did it take for you to be

diagnosed

> >

> >

> > Hi all

> >

> > I have stated that i have either HSP or PLS but i have been

incorrect

> > in saying that. 3 neurologists have only given me a diagnosis of

> > Spastic Paraplegia with Startle Myoclonus which as i

understand it, is

> > not a diagnosis but symptoms of a disorder. The 4th neuro came up

> > with HSP or PLS but he is stumped with me as i dont clearly fit in

> > with either one. but he has said that it is more likely HSP as

there

> > are 23 different varieties. My symptoms began 9 years ago and

saw my

> > first neuro 7 years ago (who like Lana here, told me to see a

> > physchiatrist). You would think that i would have a diagnosis

by now.

> > I am using a walker now outside the home and speech problems began

> > 1.5 years ago but have been corrected by taking baclofen. So my

> > question to the people here is, how long after symptoms began

did you

> > receive a firm diagnosis? and are there any people here, like

me, who

> > are still waiting to be diagnosed?

> >

> > thanks

> >

> > maureen

> >

> >

> >