Re: New to group with advice?

[Guest guest]

thanks for the advice about the university...I will look into Speech

Therapy at Rutgers University in NJ to see if they have a similar program.

>

> I am an SLP who happens to have a son with Apraxia who is 6 years

> old. We have been through it all: Neurologists, genetisist,

> hyperbaric chambers, and various therapies. Because I was familiar

> with the disorder, I had a feeling he had this since he was about

> 2. He was in all therapies since he was a baby but never given a

> diagnosis other than hypotonia and developmentaly delayed. What was

> frustrating to me was that I had him in speech therapy et.al. and I

> had to diagnose my own child. Finally when he was 4 with maybe 5

> words, I brought him to a SLP professor at our state university whom

> I knew was knowledgeble in the area of Apraxia. She said he was

> classic apraxic and she couldn't believe that now one else had

> picked up on it. With the evaluation from LSU in hand I an finally

> getting the right type of therapy at his public school. He is in

> private therapy at the university and has been taking the

> supplements (2 EFA and 1 EPA once a day). He has come a long way

> sometimes I have to tell him to be quiet which I never dreamed of

> saying in the past.

>

> The reason I am writing is that I hope I can help by sharing my own

> experiences. Some of you seem to have a problem with getting the

> right resources or diagnosis. A state university with an accredited

> SLP program is a great resource. They are up on the latest

> diagnosis and therapies. We get SLP three times individual therapy

> at school (I think they give me what I want at those meetings

> because I know how it all works) and get private therapy twice a

> week for an 1.5 session. During the summer, at the university, he

> gets therapy four times a week. We only pay $150 per semester.

> Since Apraxia is rare, they have a tendancy to put these kids ahead

> of the artic kids with an /r/ or /s/ problem. They want their

> graduate clinicians to get the experience. Eventhough you have a

> graduate clinician working with your child, the professor over sees

> everything and goes in to work with your child too. I have been

> pleased with his progress at LSU.

>

> I don't know if anyone is going to read this, I am kind of rambling

> but does anyone know of any support groups in Louisiana in the Baton

> ROuge area? I feel I am alone here and am about to take the next

> step; trying to find the right school for Connor to go to for the

> 1st grade. He is in an excellent inclusion program for K but they

> don't have one for first grade????? He does fine in the regular

> class but needs some one on one. Getting sight words but having

> trouble with phonics, of course.

> Thanks for letting me in on the discussions,

> Mia

>

[Guest guest]

I also experienced very poor therapy at our local university. I

actually brought there so he could teach the students about

apraxia, but I truly do not think he 'learned' anything from them.

Also, I have heard that there are still some university programs

(undergrad for sure)that teach their students that apraxia doesn't

even exist, and is some sort of fad diagnosis. Can you believe that?

Just like we have to research our private therapists, we need to do

the same with the universities.

> >

> > Finally when he was 4 with maybe 5

> > words, I brought him to a SLP professor at our state university

whom

> > I knew was knowledgeble in the area of Apraxia.

>

[Guest guest]

I am so sorry that this avenue did not work for you. We were lucky

we had a professor who had written journal articles regarding

Apraxia and was very familiar with it. Since I did my undergraduate

studies there, I was familiar with the quality of the program and

their awareness that it is truely a disorder. One of our first

therapist in a private setting tried to tell me that maybe Apraxia

wasn't a real disorder, at that point I new it was time to go

elsewhere.

MIa

> > >

> > > Finally when he was 4 with maybe 5

> > > words, I brought him to a SLP professor at our state

university

> whom

> > > I knew was knowledgeble in the area of Apraxia.

> >

>