Re: Cherie..stage 7

December 20, 2007

If it is showing up on the border, then I think based on the actual numbers

you are closer to stage 7 based on low cortisol and low DHEA. If your

numbers were just slightly lower, you would be a solid 7. You are definitely

past stage 4. Sorry to break the bad news but a lot of here are stage 7 so

at least you have company.

Yeah, I get it with the brain. In 1999 is when it started to get bad for me.

I got dyslexic not only in my reading and writing but in my speech. For

example, I would say " To go with me store would you like? " instead of " Would

you like to go to the store with me? " At first people thought I was kidding

and I didn't even realize I was doing it. Then I started to get slurred

speech, could not remember anythign short term and eventually long term

(could not remember anything of a 5-year career I had) and would drive and

then end up in a part of town and had no idea how I got there or why. I was

also working a very stressful job for some real jerks which the stress did

not help matters. Cops were stopping me for reckless driving all the time so

my pristine driving record suddenly was filled with tickets. One cop let me

off with a warning when I ran a red light and was totally honest that I was

stressed from work, my brain wasn't working right, and when I saw the red

light it registered green in my mind and I stepped on the gas. He looked at

me stunned, trying to assess if I was nuts, but I was on the verge of tears.

He then asked where I worked and I showed him my work badge and told him and

then I just was mumbling to myself that I cannot believe that I saw green

when it was red. Well, he let me off with a warning and followed me home the

rest of the way to make sure I could register the lights properly, lol. You

would think those things that happened daily would have given my docs a

CLUE! But no....

A lot of it has gotten better and I have learned coping mechanisms but I am

still only around 20% of my capacity on a good day. Yesterday was a

particularly bad day (and a very low body temp). Today I woke up with a

higher body temp and feeling better but still can't get beyond 5 hours of

sleep.

Cheri

RE: Cherie..gluten and stages

Thanks Cheri! I had my dh look at it with me and as near as we can figure my

levels fall on the stupid lines where 4, 7, and reference meet. Stupid

lines.

You have certainly been through alot. I'm grateful to you and Val and the

others on this list who are sharing your hard earned knowledge with the rest

of us! I can certainly understand the whole brain not working thing. My

seems to get worse every day. I'll be talking and my brain seems to shut off

in mid-sentence. When I was at my doctor's yesterday, he said he would give

me a B-12 shot so I followed him out of the exam room. He asked me if I

still wanted the shot and I said yes and then started to leave again. He had

to tell me 3 times to go back into the exam room and sit down before it

clicked. I joke with friends when it happens that I saw something shiny, but

this bothers me more than the fatigue. I miss my brain. Maybe I should put

up lost and found posters and offer a reward if someone finds it and returns

it....

Cherie

BTW my dd loves you screenname.

December 20, 2007

That is kind of what I figured. I was probably in stage 4 or there abouts

when all this with my mom kicked it over the edge. It is possible that the

levels were slightly elevated becasue I had a slight cold the weekend before

I did the saliva test. I started feeling stuffed up on Saturday and stayed

that way through Monday. I felt better on Tuesday, but not completely well.

I know I probably should have waited until the cold was completely gone, but

I just couldn't stand to wait any longer. My theory was that if my adrenals

were trying to up the cortisol levels for the cold after a few days they

wouldn't be able to keep it up anyway. At any rate, just looking at the

symptoms and stuff I figured I was at least stage 5 or 6 even before the

test. A small twisted part of me is taking pleasure in the really low

readings because now I can say " SEE I TOLD YOU I WAS SICK!!! You missed it

you egocentric ()*%^%$ & $%! " I'd still rather feel well though. I do think I

will make a phone call to some of the doctors who didn't test my adrenals

and tell them what my results were. Maybe, maybe they will think of it when

the next person comes through the door and test them or at least consider

the possibility of looking outside of their box.

Cherie

> If it is showing up on the border, then I think based on the

> actual numbers

> you are closer to stage 7 based on low cortisol and low DHEA. If your

> numbers were just slightly lower, you would be a solid 7. You are

> definitely

> past stage 4. Sorry to break the bad news but a lot of here are stage 7 so

> at least you have company.

>

> Yeah, I get it with the brain. In 1999 is when it started to get

> bad for me.

> I got dyslexic not only in my reading and writing but in my speech. For

> example, I would say " To go with me store would you like? "

> instead of " Would

> you like to go to the store with me? " At first people thought I

> was kidding

> and I didn't even realize I was doing it. Then I started to get slurred

> speech, could not remember anythign short term and eventually long term

> (could not remember anything of a 5-year career I had) and would drive and

> then end up in a part of town and had no idea how I got there or

> why. I was

> also working a very stressful job for some real jerks which the stress did

> not help matters. Cops were stopping me for reckless driving all

> the time so

> my pristine driving record suddenly was filled with tickets. One

> cop let me

> off with a warning when I ran a red light and was totally honest

> that I was

> stressed from work, my brain wasn't working right, and when I saw the red

> light it registered green in my mind and I stepped on the gas. He

> looked at

> me stunned, trying to assess if I was nuts, but I was on the

> verge of tears.

> He then asked where I worked and I showed him my work badge and

> told him and

> then I just was mumbling to myself that I cannot believe that I saw green

> when it was red. Well, he let me off with a warning and followed

> me home the

> rest of the way to make sure I could register the lights

> properly, lol. You

> would think those things that happened daily would have given my docs a

> CLUE! But no....

>

> A lot of it has gotten better and I have learned coping

> mechanisms but I am

> still only around 20% of my capacity on a good day. Yesterday was a

> particularly bad day (and a very low body temp). Today I woke up with a

> higher body temp and feeling better but still can't get beyond 5 hours of

> sleep.

>

> Cheri

>

> RE: Cherie..gluten and stages

>

> Thanks Cheri! I had my dh look at it with me and as near as we

> can figure my

> levels fall on the stupid lines where 4, 7, and reference meet. Stupid

> lines.

>

> You have certainly been through alot. I'm grateful to you and Val and the

> others on this list who are sharing your hard earned knowledge

> with the rest

> of us! I can certainly understand the whole brain not working thing. My

> seems to get worse every day. I'll be talking and my brain seems

> to shut off

> in mid-sentence. When I was at my doctor's yesterday, he said he

> would give

> me a B-12 shot so I followed him out of the exam room. He asked me if I

> still wanted the shot and I said yes and then started to leave

> again. He had

> to tell me 3 times to go back into the exam room and sit down before it

> clicked. I joke with friends when it happens that I saw something

> shiny, but

> this bothers me more than the fatigue. I miss my brain. Maybe I should put

> up lost and found posters and offer a reward if someone finds it

> and returns

> it....

>

> Cherie

>

> BTW my dd loves you screenname.

>

December 20, 2007

>

>> I got dyslexic not only in my reading and writing but in my speech. For

> example, I would say " To go with me store would you like? " instead

of " Would

> you like to go to the store with me? " At first people thought I was

kidding

> and I didn't even realize I was doing it. Then I started to get slurred

> speech, could not remember anything short term and eventually long term<

Cheri,

I just went in for learning disability testing this week. I'm

still kinda in school and I figured I would get a " label " while my

hormones are in the gutter so that I could have some helpful

accommodations for school. I could not find any articles that

directly linked cortisol to dyslexia...rather cortisol to cognition

and consentration. Its and area that is understudied.

But god, I do the word order thing--or I replace words in a funny way.

The way you describe cordinating the gas petal with the traffic

light-I have weird reactions like that. Its like my body isn't

stoping to process the situation and then react. It just reacts

without the proper assessment.

As for memory, I figured that mine is thyroid related...but I have a

hard time remembering events in my life until others re-tell the

story/situation. Its very errie for me. Sometimes its humorous ( " I

said that?? " or " that really happened? " ).

I was not going to disclose any health info. to the psychologist doing

the testing--but I let it out that I was on thyroid meds. Later I

researched her name, it turns out she has done over 5 studies on HypoT

and memory issues. I cursed myself for disclosing! But then I

realized that her studies used TSH ranges that I don't meet--so

technically, I'm not hypoT according to the studies (and the endos

involved in the studies). I hope she doesn't discuss this in the

evaluation.

Tasia

December 20, 2007

You could always re-test if you think illness impacted the results. People

can also go up and down in the stages until you totally crash like I did. I

just sent off my second one and am waiting for the results. I know I won't

be able to rely on my cortisol readings since I was on Isocort during it but

I am curious to see what the thyroid says since my thyroid has gotten worse

since on cortisol (probably uncovering the true thyroid function masked

before).

Cheri

RE: Cherie..stage 7