Re: off and good luck and updates

[Guest guest]

Kathy:

You have a great weekend and thanks for the updates.

Jo.

off and good luck and updates

> Hello all,

>

> I'm away for a long weekend to NY and probably won't have email access

unless

> there's a Kinko's nearby or the hotel has a business center. Better be

a DD!

>

> Bob - I got the photos from the NY Connection Conference and will work

on

> putting them up next week.

>

> Laurel - Have a fabulous time at the Iowa Connections tomorrow!!

>

> - I'm psyched to be at the Austin Connections in 2 weeks!

>

> - We got our tickets to come to the California TeamWalk (October

2)!

>

> Everyone - We finalized the agenda for the 2004 National Research and

> Beyond Conference in Massachusetts on August 29 (part of the TeamWalk

Weekend

> here). It's fabulous:

>

> We have four outstanding neurologists presenting information on cutting

edge

> research on our diseases. Two are the researchers who got the first SPF

> Research Awards: Dr. Fink and Dr. Marchuk. They'll talk about updates

on HSP and

> PLS research. Dr. Fink will share highlights from the upcoming PLS

Conference

> to establish clearer diagnostic criterion to differentiate PLS from HSP

and

> ALS (lots of cross-over diagnosis)

>

> We also have two experts from the MA General Hospital and Harvard

Medical

> School Center for Nervous System Repair to present " Stem Cell Research

and

> Regenerative Medicine " as potential avenues to cure degenerative

diseases.

>

> We have a motivational speaker and book author, Terry Wise, on

> " Waking Up: Climbing Through the Darkness " .

>

> And at the Friday Arrival Reception, we have Special Guest Elmer C.

Bartels,

> Commissioner of the MA Rehabilitation Commission. Mr. Bartels, a

quadriplegic,

> has had a distinguished career in rehabilitation, public service, and

> disability advocacy. He'll share his personal story as well as a program

on " Living

> Independently and Housing and Home Modifications " .

>

> The hotel for the Conference and Arrival Dinner is the Four Points

Sheraton

> Burlington.

>

http://www.starwood.com/fourpoints/search/hotel_detail.html?propertyID=1264 &

> EM=aa_Overture_four_point_burlington

> Rooms are set aside at $89 per night. Phone

>

> And the TeamWalk For Our Cures is Sunday, August 29! At 9:30 a.m.

>

> We'll have registration stuff available for the MA TeamWalk Weekend and

> Satellite TeamWalks and Connections Conference up in a few weeks.

California is

> October 2. Toldeo Ohio is September 18. Sue is still looking into the

Arkansas

> TeamWalk.

>

> best,

> Kathi

>

>

>