Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Hi Edith, Hopefully you'll have a full evaluation to share with us at the Chicago meeting. Some neurologists just lump us into the ALS category even though we're not " classic " ALS. Craig's aunt was given an ALS dx by two neurologists at least 15 years ago and I'm affected much more than she is. She has no speech involvement, doesn't walk " funny " but her hands are quite arthritic looking. So, you just never know.... I'm hopeful that all the researchers who are going to meet in California on June 4-6 will be able to make great strides in evaluating PLS and the relationship to HSP and ALS. Dr. Siddique said they will have their noses to the grindstone all weekend and not leave the grounds...no vacation for them! .. Dr. Siddique will explain to us in lay terms at the Chicago meeting on June 26th...I'm really looking forward to it and have high expectations! IF I didn't have high expectations, I wouldn't be as dedicated in trying to work for our cure or at least a treatment plan. Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 I want to thank everyone who sent such encouraging responses to my post about being confirmed with ALS. I appreciate your concern. My Florida neuro referred me to the Carolinas ALS for a complete evaluation. I have a 2-day appointment to be seen by the director and 12 different specialists. I guess that will tell me how far I've progressed, and give me recommendations for treatment, exercise, etc. I feel very good about having access to such a great resource. Best wishes to everyone, Edith Quote Link to comment Share on other sites More sharing options...
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