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IF YOU ARE STILL ON PLS FRIENDS PLEASE RESPOND

I HAVE ALL OF YOUR MOMS

SYMPTOMS AND I HAVE DECIDED THAT I MUST NOW HAVE ALS WHEN DID YOUR MOM HAVE

AN EMG

THANKS, ANNIE

Hello everyone...

> Hello,

>

> My name is . My mom has PLS. She started having symptoms in

> late 2000 and has progressed to where she cant walk, talk, or use

> either of her legs and her right arm. Her left arm she can barely

> raise to give us acknowledgement, on a good day.

>

> I just joined and wanted to introduce myself. My mom is currently in

> the hospital because of a bed sore that got so bad she has to have

> surgery on it.

>

> Her pain specialist says she is a good candidate for the baclofen

> pump but her insurance wont cover it. They covered the test but they

> wont cover the perm one for some reason. I'm still working on finding

> out why. A lawyer suggested that maybe it was rejected strictly on

> price ($15k+) and didnt reasearch weather or not they should cover

> it.

>

> She doesnt qualify for medical/medicare because my dad makes $60k+ a

> year because he works 7 days a week and we live in souther california

> where it is really expensive and if he didnt work the overtime we

> wouldnt be able to afford to live out here. He has a really good job

> at Solar Turbines.

>

> Does anyone know if there is a way around the fact that he makes so

> much money but she has the need for medical and possibly to get a

> monthly disability check would help out tremdeously.

>

> Has anyone heard of the Neuromove ( www . neuromove . com )? If so,

> does it help at all?

>

> Thank you,

>

>

>

>

>

>

>

>

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