Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 My mom's name is Annie too =). Not sure when she last had an EMG. Hello everyone... > Hello, > > My name is . My mom has PLS. She started having symptoms in > late 2000 and has progressed to where she cant walk, talk, or use > either of her legs and her right arm. Her left arm she can barely > raise to give us acknowledgement, on a good day. > > I just joined and wanted to introduce myself. My mom is currently in > the hospital because of a bed sore that got so bad she has to have > surgery on it. > > Her pain specialist says she is a good candidate for the baclofen > pump but her insurance wont cover it. They covered the test but they > wont cover the perm one for some reason. I'm still working on finding > out why. A lawyer suggested that maybe it was rejected strictly on > price ($15k+) and didnt reasearch weather or not they should cover > it. > > She doesnt qualify for medical/medicare because my dad makes $60k+ a > year because he works 7 days a week and we live in souther california > where it is really expensive and if he didnt work the overtime we > wouldnt be able to afford to live out here. He has a really good job > at Solar Turbines. > > Does anyone know if there is a way around the fact that he makes so > much money but she has the need for medical and possibly to get a > monthly disability check would help out tremdeously. > > Has anyone heard of the Neuromove ( www . neuromove . com )? If so, > does it help at all? > > Thank you, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 THANK YOU FOR SPEEDY REPLY THE DRS SAY YOUR ANNIE HAS PLS Hello everyone... > > > > Hello, > > > > My name is . My mom has PLS. She started having symptoms in > > late 2000 and has progressed to where she cant walk, talk, or use > > either of her legs and her right arm. Her left arm she can barely > > raise to give us acknowledgement, on a good day. > > > > I just joined and wanted to introduce myself. My mom is currently in > > the hospital because of a bed sore that got so bad she has to have > > surgery on it. > > > > Her pain specialist says she is a good candidate for the baclofen > > pump but her insurance wont cover it. They covered the test but they > > wont cover the perm one for some reason. I'm still working on finding > > out why. A lawyer suggested that maybe it was rejected strictly on > > price ($15k+) and didnt reasearch weather or not they should cover > > it. > > > > She doesnt qualify for medical/medicare because my dad makes $60k+ a > > year because he works 7 days a week and we live in souther california > > where it is really expensive and if he didnt work the overtime we > > wouldnt be able to afford to live out here. He has a really good job > > at Solar Turbines. > > > > Does anyone know if there is a way around the fact that he makes so > > much money but she has the need for medical and possibly to get a > > monthly disability check would help out tremdeously. > > > > Has anyone heard of the Neuromove ( www . neuromove . com )? If so, > > does it help at all? > > > > Thank you, > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Yes they diagnosed her with PLS rather than ALS. From what I understand though, it can turn into ALS because its a fine line between them. Hello everyone... > > > > Hello, > > > > My name is . My mom has PLS. She started having symptoms in > > late 2000 and has progressed to where she cant walk, talk, or use > > either of her legs and her right arm. Her left arm she can barely > > raise to give us acknowledgement, on a good day. > > > > I just joined and wanted to introduce myself. My mom is currently in > > the hospital because of a bed sore that got so bad she has to have > > surgery on it. > > > > Her pain specialist says she is a good candidate for the baclofen > > pump but her insurance wont cover it. They covered the test but they > > wont cover the perm one for some reason. I'm still working on finding > > out why. A lawyer suggested that maybe it was rejected strictly on > > price ($15k+) and didnt reasearch weather or not they should cover > > it. > > > > She doesnt qualify for medical/medicare because my dad makes $60k+ a > > year because he works 7 days a week and we live in souther california > > where it is really expensive and if he didnt work the overtime we > > wouldnt be able to afford to live out here. He has a really good job > > at Solar Turbines. > > > > Does anyone know if there is a way around the fact that he makes so > > much money but she has the need for medical and possibly to get a > > monthly disability check would help out tremdeously. > > > > Has anyone heard of the Neuromove ( www . neuromove . com )? If so, > > does it help at all? > > > > Thank you, > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 About 10-15% of PLSers will fully morph into ALS or it was a slow form of ALS (slow in the destruction of the lower motor neurons). dale Hello everyone... > > > > > > > Hello, > > > > > > My name is . My mom has PLS. She started having symptoms in > > > late 2000 and has progressed to where she cant walk, talk, or use > > > either of her legs and her right arm. Her left arm she can barely > > > raise to give us acknowledgement, on a good day. > > > > > > I just joined and wanted to introduce myself. My mom is currently in > > > the hospital because of a bed sore that got so bad she has to have > > > surgery on it. > > > > > > Her pain specialist says she is a good candidate for the baclofen > > > pump but her insurance wont cover it. They covered the test but they > > > wont cover the perm one for some reason. I'm still working on finding > > > out why. A lawyer suggested that maybe it was rejected strictly on > > > price ($15k+) and didnt reasearch weather or not they should cover > > > it. > > > > > > She doesnt qualify for medical/medicare because my dad makes $60k+ a > > > year because he works 7 days a week and we live in souther california > > > where it is really expensive and if he didnt work the overtime we > > > wouldnt be able to afford to live out here. He has a really good job > > > at Solar Turbines. > > > > > > Does anyone know if there is a way around the fact that he makes so > > > much money but she has the need for medical and possibly to get a > > > monthly disability check would help out tremdeously. > > > > > > Has anyone heard of the Neuromove ( www . neuromove . com )? If so, > > > does it help at all? > > > > > > Thank you, > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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