Stem cells...

[Guest guest]

Anyone have any information on whether stems cells might be the key

to curing/treating/partially reversing some of the symtoms associated

with PLS or even ALS? I haven't kept up with reasearch lately but I

know that they had a paralyzed rat and did stem cell therapy and it

was able to walk again. I told this to my moms neurologist and he

said " well thats a rat, people are different " (something along those

lines). He's a good doctor, but he doesnt have a good outlook i dont

think. He isnt willing to try something new.

Also, I asked in my other message but it didnt get addressed, anyone

heard of neuromove? It is specifically made to help stroke patients.

It works by 're-training' the brain to use a different part of itself

to control a limb perhaps that is under treatment at the type by

stimulating it with electric pulses. www . neuromove . com (delete

the spaces) will have more information. Again, my moms neurologist

didnt think it would do any good, he wouldnt even read the packet of

information they send for free. We are seeing him this Wednesday so

I'm going to see if he read it by then. (we gave it to him 3 months

ago)

Thanks,

[Guest guest]

I'm in the process of checking out BioMark. They offer cord stem

cell therapy which they claim has been very successful. They've used

it on 30 ALS patients with great success. Go to their web site,

www.biomark.com. You can also email them at info@... and ask

for their packet of information.

Send me your email address and I'll forward whatever I have. My

email is edith@.... I've just sent a fax to my neuro asking

about BioMark. He's very open to trying new things, so I trust what

he says. By the way, the cost for BioMark's therapy is $21,000.

Good luck

> Anyone have any information on whether stems cells might be the

key

> to curing/treating/partially reversing some of the symtoms

associated

> with PLS or even ALS? I haven't kept up with reasearch lately but

I

> know that they had a paralyzed rat and did stem cell therapy and

it

> was able to walk again. I told this to my moms neurologist and he

> said " well thats a rat, people are different " (something along

those

> lines). He's a good doctor, but he doesnt have a good outlook i

dont

> think. He isnt willing to try something new.

>

> Also, I asked in my other message but it didnt get addressed,

anyone

> heard of neuromove? It is specifically made to help stroke

patients.

> It works by 're-training' the brain to use a different part of

itself

> to control a limb perhaps that is under treatment at the type by

> stimulating it with electric pulses. www . neuromove . com (delete

> the spaces) will have more information. Again, my moms neurologist

> didnt think it would do any good, he wouldnt even read the packet

of

> information they send for free. We are seeing him this Wednesday

so

> I'm going to see if he read it by then. (we gave it to him 3

months

> ago)

>

> Thanks,

>

>

[Guest guest]

Forget the stem cells for now. It is proven that the stem cells

work for a very short period of time and then they stop. They have

to inject a huge amount of stem cells into the system hoping that

some will get through to the areas needed. I attended a lecture by

a scientist that is well versed on this method. He explained the

procedure and that no matter how hard they tried, they couldn't get

the cells to stay alive for any length of time. Trust me, if they

could, people would be beating down the doors to get this done.

Myself included.

If you want to learn more about the procedure, in a format you can

understand, I recommend you read the book " His Brother's Keeper "

about the Heywood brothers. Heywood has had the stem cell

injections, directly into his spinal area, hoping that would give

them a better chance to work. No such luck. Save your money for

when they perfect the delivery system. Otherwise, you'd need to

have the stem cells injected over and over again.

Dr. Kiminobu Sugaya of the University of Illinois at Chicago who has

developed a proprietary stem cell line and who has also developed a

technique for ventricular injection,directly into fourth ventricle

of the brain. He is collaborating with the ALS-TDF group and they

will develop a trial of this delivery method.

You can contact me directly if you wish.

Thomson

[Guest guest]

We once had a lady on PLS-Friends who had this done. She got

somewhat better. She said the cost was out of the pocket. At the

time it was $25,000 and insurance didn't pay. I think she was trying

to get a group of people together to have this done in Canada - the

price would have been slightly cheeper.

That's all I know - except it was done through bone marrow and it was

not injected into the spinal cord.

Donna - NC

> > Anyone have any information on whether stems cells might be the

> key

> > to curing/treating/partially reversing some of the symtoms

> associated

> > with PLS or even ALS? I haven't kept up with reasearch lately but

> I

> > know that they had a paralyzed rat and did stem cell therapy and

> it

> > was able to walk again. I told this to my moms neurologist and he

> > said " well thats a rat, people are different " (something along

> those

> > lines). He's a good doctor, but he doesnt have a good outlook i

> dont

> > think. He isnt willing to try something new.

> >

> > Also, I asked in my other message but it didnt get addressed,

> anyone

> > heard of neuromove? It is specifically made to help stroke

> patients.

> > It works by 're-training' the brain to use a different part of

> itself

> > to control a limb perhaps that is under treatment at the type by

> > stimulating it with electric pulses. www . neuromove . com

(delete

> > the spaces) will have more information. Again, my moms

neurologist

> > didnt think it would do any good, he wouldnt even read the packet

> of

> > information they send for free. We are seeing him this Wednesday

> so

> > I'm going to see if he read it by then. (we gave it to him 3

> months

> > ago)

> >

> > Thanks,

> >

> >