Amioderone - can i get off it

[Guest guest]

I am fortunate that i only suffered Afib 3 to 4 times a year but was

put on this drug to control ectopic beats (PVC's I think) which ran

into the hundreds and thousands on a bad day and was extremely

debilitating. The choice of Amioderone was due to the fact i had

dilated cardiomyopathy several years before and this was deemed the

most suitable medication. Sotalol was ineffective. I know about the

ablation technique which i would term a last resort but has anyone

had any success in trying to wean themselves off this drug. I am

nervous as to what may happen. Also i am from the UK, i know

ablations are far more common in the US and expertese is probably

greater just in case someone suggests the Cleveland clinic (no

offense intended)

[Guest guest]

hi, there are quite a lot of us in the Uk, me included on this board, the

gold standard in the Uk still seems amiodarone.

The freeman hospital in Newcastle is having quite a good success and there

are other hospitals in London the same.

Good luck and welcome john

Amioderone - can i get off it

>

>

> I am fortunate that i only suffered Afib 3 to 4 times a year but was

> put on this drug to control ectopic beats (PVC's I think) which ran

> into the hundreds and thousands on a bad day and was extremely

> debilitating. The choice of Amioderone was due to the fact i had

> dilated cardiomyopathy several years before and this was deemed the

> most suitable medication. Sotalol was ineffective. I know about the

> ablation technique which i would term a last resort but has anyone

> had any success in trying to wean themselves off this drug. I am

> nervous as to what may happen. Also i am from the UK, i know

> ablations are far more common in the US and expertese is probably

> greater just in case someone suggests the Cleveland clinic (no

> offense intended)

>

>

>

>

>

>

> Web Page - http://www.afibsupport.com

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

> be acted upon without consultation with one's physician.

>

[Guest guest]

Hello

I'm in UK, in permanent AF and have been on amiodarone for 15 years.

I am perhaps lucky, but really I have no serious problems. I have

proper eye tests more than once a year and the surgery checks

thyroid every six months.

My latest visit to (yet another!) specialist (I go about every 18

months) resulted in him recommending I change from Amiodarone to

beta blocker.

What do you think? I am inclined to politely refuse.

[Guest guest]

Hi,

In am also in permanent AF. My cardio took me off amiodarone after six

months as it was not doing anything to keep me in NSR.

If you are taking amiodarone and it is not keep you in NSR maybe it is

time for a change in medication.

Australia

rmunns3384 wrote:

>Hello

>

>I'm in UK, in permanent AF and have been on amiodarone for 15 years.

>I am perhaps lucky, but really I have no serious problems. I have

>proper eye tests more than once a year and the surgery checks

>thyroid every six months.

>

>My latest visit to (yet another!) specialist (I go about every 18

>months) resulted in him recommending I change from Amiodarone to

>beta blocker.

>

>What do you think? I am inclined to politely refuse.

>

>

>

>

>

>

>Web Page - http://www.afibsupport.com

>List owner: AFIBsupport-owner

>For help on how to use the group, including how to drive it via email,

>send a blank email to AFIBsupport-help

>

>Nothing in this message should be considered as medical advice, or should be

acted upon without consultation with one's physician.

>

[Guest guest]

In a message dated 2/25/2005 3:14:24 P.M. Central Standard Time,

quarryeff@... writes:

My latest visit to (yet another!) specialist (I go about every 18

months) resulted in him recommending I change from Amiodarone to

beta blocker.

What do you think? I am inclined to politely refuse.

Are your tests starting to show deteriorization of the thyroid, liver or

lung and whatever else they check for? My understanding is that the deposits in

the eyes are not threatening but don't understand why. As you have done for

15 years you have to trade off the amiodarone benefits with the side effect

results.

Guy

[Guest guest]

In a message dated 2/25/2005 3:14:24 P.M. Central Standard Time,

quarryeff@... writes:

Hello

I'm in UK, in permanent AF and have been on amiodarone for 15 years.

I am perhaps lucky, but really I have no serious problems. I have

proper eye tests more than once a year and the surgery checks

thyroid every six months.

My latest visit to (yet another!) specialist (I go about every 18

months) resulted in him recommending I change from Amiodarone to

beta blocker.

What do you think? I am inclined to politely refuse.

My apologies, I skipped over the part that said you were in permanent afib.

Amiodarone does mask the presence of afib. Some times, with me, it is so

subtle that I can only tell that I am in afib by checking my pulse as I feel no

other symptoms. But, if you are in permanent afib you might feel just as well

with a beta blocker. Beta Blockers don't have near the side effects as

amiodarone.

Guy

[Guest guest]

Please remember two thing re this drug.

It can take up to six months to get out of your system.

It will affect your wafarin levels.

Of course the serious side effects of this medication.

C UK

>

> Hi,

>

> >>My latest visit to (yet another!) specialist (I go about every 18

>>months) resulted in him recommending I change from Amiodarone to

>>beta blocker.

>>

>>What do you think? I am inclined to politely refuse.

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

You should have been off of amiodarone years ago if your in permanent af.

I would asked for Doefetilide or go for the beta blocker.

C uk

Re: Re: Amioderone - can i get off it

>

>

> In a message dated 2/25/2005 3:14:24 P.M. Central Standard Time,

> quarryeff@... writes:

>

> Hello

>

> I'm in UK, in permanent AF and have been on amiodarone for 15 years.

> I am perhaps lucky, but really I have no serious problems. I have

> proper eye tests more than once a year and the surgery checks

> thyroid every six months.

>

> My latest visit to (yet another!) specialist (I go about every 18

> months) resulted in him recommending I change from Amiodarone to

> beta blocker.

>

> What do you think? I am inclined to politely refuse.

>

>

>

>

> My apologies, I skipped over the part that said you were in permanent

> afib.

> Amiodarone does mask the presence of afib. Some times, with me, it is so

> subtle that I can only tell that I am in afib by checking my pulse as I

> feel no

> other symptoms. But, if you are in permanent afib you might feel just as

> well

> with a beta blocker. Beta Blockers don't have near the side effects as

> amiodarone.

> Guy

>

>

>

[Guest guest]

> My latest visit to (yet another!) specialist (I go about every 18

> months) resulted in him recommending I change from Amiodarone to

> beta blocker.

>

> What do you think?

Here

I do not know if your doctor ever thought there was a reason to be on

Amiodarone while being permanent AF.

Amio's claim to fame is its ability to control AF to stay in NSR . If

one has passed into permanent , then just about everyone ,who is not

at risk of Ventricular Fib can come off it . Your Doc seems to be

willing to (late ) to take you to rate control . I would go with it .

Do you believe Amio is doing something for you?