Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Hello everyone!! My name is Maureen. I live in Sydney Australia. I am about to turn 47. I dont know yet whether I have Hereditary Spastic Paralegia (HSP) or PLS. Both disorders are very similiar. My symptoms began 9 years ago very very slowly. I now use a cane and a walker when i go outside the home. Just last month, my 4th neurologist narrowed my problem down to either HSP or PLS. I am so happy to have finally found a very active forum and I have many many questions for you. Talk to you again soon Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Maureen Welcome I've been on this group for a while but don't post as often as most. This is a great group of supportive people with a lot of knowledge, I'm sure they will be able to answer many of your questions. I have also been in the position of the neuros not being sure if I have PLS or HSP or even ALS. In my case it seems to be coming down to PLS as I have slow progression but do have speech involvement - which is rare with HSP. At least that's what I understand. I look forward to hearing more about yourself. I don't think there are many of us down under with PLS. Best wishes from Kiwiland. I am a newbie from Australia Hello everyone!! My name is Maureen. I live in Sydney Australia. I am about to turn 47. I dont know yet whether I have Hereditary Spastic Paralegia (HSP) or PLS. Both disorders are very similiar. My symptoms began 9 years ago very very slowly. I now use a cane and a walker when i go outside the home. Just last month, my 4th neurologist narrowed my problem down to either HSP or PLS. I am so happy to have finally found a very active forum and I have many many questions for you. Talk to you again soon Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hi Maureen, Welcome to our great group of friends. You will find many ansewers to questions, and great support. I was just diagnosed with PLS last year after first being diagnosed with M.S for around 7 years. They found that all my test results were unconclusive of M.S. So here I am. I too was very happy to find this group. Ask away at your questions and we will try to ansewer them for you. Have a great day, Sandy in Oregon I am a newbie from Australia Hello everyone!! My name is Maureen. I live in Sydney Australia. I am about to turn 47. I dont know yet whether I have Hereditary Spastic Paralegia (HSP) or PLS. Both disorders are very similiar. My symptoms began 9 years ago very very slowly. I now use a cane and a walker when i go outside the home. Just last month, my 4th neurologist narrowed my problem down to either HSP or PLS. I am so happy to have finally found a very active forum and I have many many questions for you. Talk to you again soon Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Welcome to a great group. Glad to hear that it's been " slow " for you. Your home here! dale I am a newbie from Australia > Hello everyone!! My name is Maureen. I live in Sydney Australia. I > am about to turn 47. I dont know yet whether I have Hereditary > Spastic Paralegia (HSP) or PLS. Both disorders are very similiar. My > symptoms began 9 years ago very very slowly. I now use a cane and a > walker when i go outside the home. Just last month, my 4th > neurologist narrowed my problem down to either HSP or PLS. > > I am so happy to have finally found a very active forum and I have > many many questions for you. > > Talk to you again soon > > Maureen > > > > > > Quote Link to comment Share on other sites More sharing options...
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