Myopathy with Tubular Agregates?

[Guest guest]

I finally got the results of my muscle biopsy done 2 mos ago. Dr

Zachary is my Dr. at Hershey Medical Center.

The report diagnossi is " Myopathy with tubular aggregates " the

comment section says " The muscle biopsy shows features consistent with

myopathy with tubular aggregates. This pathology change is

non-specific and can be seen in familiar tubular aggregates myopathies

(rare) and periodic paralysis, and other muscle disease. Clinical

correlation is indicated "

My understanding of the sitation is that I don't have indications

of having the known diseases which are associated with the tubular

aggregates. So, we can't say any thing other than there is evidence

of a disease process. The good news is that it is not progressive.

My search of this discussion group of " tubular " found nothing. A

search on Google for " Tubular Aggregates " didn't turn up much either.

So, I don't know where to look to educate myself more.

I came to this group when " Mitochondrial disease " was mentioned,

but now I am not sure that my diagnosis is under that heading anymore.

Any other ideas where to look?

Joe Dunfee