RE: Any suggestions on how to get family to understand adrenal problems...

[Guest guest]

,

You need to try and talk to him in a way he understands,

feelings will not do it. If he is into cars ask him about how

well an 8 cylinder car runs on only two cylinders. Have

him explain this to you in detail. Now when he is done then tell

him that is how your body runs without HC. Then drop the subject

let him think about it for a while. Later on you can ask for

his help and support in getting your body to run on all 8 cylinders.

Do the same thing with some other part to the car and then use your

Thyroid. Do this on different days do not over load him.

From: scubjay

I know this is a little off the subject from what you generally talk

about on here but I was wondering if anyone has any suggestions on

how to get family to understand your conditionThanks

thyroidsupport@...

[Guest guest]

Cheri=

No, ramble on...I love it.

Im going through such a dang time right now...and these little

emotional fights with him aren't helping...

That spoon theory is great!

Thanks

[Guest guest]

You could try having him read " The Spoon Theory " . Here is a link:

http://www.butyoudontlooksick.com/the_spoon_theory/

Of course, that won't necessarily work. My dh read it, but I don't think it

really clicked for him. I think a big part of the problem comes when you are

with someone who is generally healthy. It is just really hard for them to

comprehend feeling that bad all or most of the time. I've also tried using

percentages. Before, my latest emotional stress incidence I basically was

tired and didn't feel well at least 95% of the time. However, I was able to

push through that and do what I needed to do unless I felt REALLY bad. These

were the times when I would say I didn't feel good and needed help. Now I

basically feel like crap 120% of the time. I do the absolute minimum that I

can do. My dh has always tried to be very supportive, but sometimes I do

feel like he thinks I'm exaggerating or just lazy. He's never said it,

but.....Of course, I could just be projecting my fears, but I don't really

think so. It is human nature to not be able to understand what we haven't

experienced. If your bf has never been sick for an extended period, he

probably just can't grasp that anyone could possibly feel that bad that

much. I also think that many people think that if you feel that bad, there

is no way you could do anything like go to the store or clean the house and

so on. I also found this story that I liked called " The Wish " . It is about a

young man with Parkinson's Disease and how he trades places with a healthy

man for a day. I can't tell you how many times I've wished I could trade

places with someone for 5 minutes so they could feel how I feel. I honestly

think it would bring some people to their knees.

Sorry to ramble so much!

Cherie

> Generally he does a good job of taking care of me, but when I try and

> tell him how it makes me feel when he's ''mean'', he blows me off and

> says hes only being honest and blunt. I was taught to spare someone

> you loves feelings a little bit when you're mad, say things nicer.

> Im just wondering if anyone out there has struggled with a family

> member just not understanding and being down right mean at times, and

> how you handled it when you knew that you're doing the best you can

> and thats all you can do until certain tests are done and treatments

> are tried. What am I suppose to do to get him more involved in my AF,

> and to be a little nicer and more understanding about this syndrome.?

> I want to think that if he learns more, than he'll be nicer, but

> maybe I've just come across a dud. Its been 3 years now with this,

> and AGH, I can't do it on my own, so I'd like to try other options

> before leaving, ya know.

> Thanks

>

> thyroidsupport@...

>

>

>

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9:15 AM

[Guest guest]

For the last couple years my family did not get it and it causedme even more

stress and in turn I got worse. Now my parents see first hand what I go through

day to day as I had ot move in with them due ot the debillataing fatigue and

pain I get in my legs and arms.

My sister does not get how I have seen so many docs and I am just finally

starting to become more and more clear as to what is going on. She is sick at

the moment whiich is not like her and she thought it as the flu but is not

getting better. She is stubborn like my mom and I just pray she takes into

consideration some things I e-mailed her about the thyroid since she has

hypothyorid and has just went of two meds that can be throwing her all off.

I have low thryoid due to low adrenals prior I did not . She has had this

since she was in her teens and now is in her ealry 30's.

I get how she must feel and she is so impatient which is making her feel

worse. I can be like that too it is a bad family trait we have. My nephew just

turned four and she is a great parent and is very involved with him., and her DH

works and they used to live by us and moved to Miami a couple months ago so just

meeting new friends but when she felt sick which was harldy ever she could call

my mom and dad and they could help her and pick up my nephew from school and

things and now she is not coping to well. Maybe this is why she does not get why

I am not better because health issues sometimes are not so easily fixed as you

all know.

I emailed her some infor when the doc thought I had Fibro and it was info that

was great from a fibro support group and she just did not get it. Now as hard as

it is I just do not go into to it when the person asks why I am not getting well

because I do not need the stress of them being rude. When on is sick and trying

hard to get some answers compassion should be a given!

a

Cherie wrote:

You could try having him read " The Spoon Theory " . Here is a link:

http://www.butyoudontlooksick.com/the_spoon_theory/

Of course, that won't necessarily work. My dh read it, but I don't think it

really clicked for him. I think a big part of the problem comes when you are

with someone who is generally healthy. It is just really hard for them to

comprehend feeling that bad all or most of the time. I've also tried using

percentages. Before, my latest emotional stress incidence I basically was

tired and didn't feel well at least 95% of the time. However, I was able to

push through that and do what I needed to do unless I felt REALLY bad. These

were the times when I would say I didn't feel good and needed help. Now I

basically feel like crap 120% of the time. I do the absolute minimum that I

can do. My dh has always tried to be very supportive, but sometimes I do

feel like he thinks I'm exaggerating or just lazy. He's never said it,

but.....Of course, I could just be projecting my fears, but I don't really

think so. It is human nature to not be able to understand what we haven't

experienced. If your bf has never been sick for an extended period, he

probably just can't grasp that anyone could possibly feel that bad that

much. I also think that many people think that if you feel that bad, there

is no way you could do anything like go to the store or clean the house and

so on. I also found this story that I liked called " The Wish " . It is about a

young man with Parkinson's Disease and how he trades places with a healthy

man for a day. I can't tell you how many times I've wished I could trade

places with someone for 5 minutes so they could feel how I feel. I honestly

think it would bring some people to their knees.

Sorry to ramble so much!

Cherie

> Generally he does a good job of taking care of me, but when I try and

> tell him how it makes me feel when he's ''mean'', he blows me off and

> says hes only being honest and blunt. I was taught to spare someone

> you loves feelings a little bit when you're mad, say things nicer.

> Im just wondering if anyone out there has struggled with a family

> member just not understanding and being down right mean at times, and

> how you handled it when you knew that you're doing the best you can

> and thats all you can do until certain tests are done and treatments

> are tried. What am I suppose to do to get him more involved in my AF,

> and to be a little nicer and more understanding about this syndrome.?

> I want to think that if he learns more, than he'll be nicer, but

> maybe I've just come across a dud. Its been 3 years now with this,

> and AGH, I can't do it on my own, so I'd like to try other options

> before leaving, ya know.

> Thanks

>

> thyroidsupport@...

>

>

>

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Checked by AVG Free Edition.

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9:15 AM

[Guest guest]

THATS GREAT!!! I would laugh out loud but everyone in my home is

asleep..

Men are simple like that I guess...

I will try.

He'd probably catch on and think I was being a smart***, but you

never know.

THanks

KAtie

>

> ,

>

> You need to try and talk to him in a way he understands,

> feelings will not do it. If he is into cars ask him about how

> well an 8 cylinder car runs on only two cylinders. Have

> him explain this to you in detail. Now when he is done then tell

> him that is how your body runs without HC. Then drop the subject

> let him think about it for a while. Later on you can ask for

> his help and support in getting your body to run on all 8 cylinders.

>

> Do the same thing with some other part to the car and then use your

> Thyroid. Do this on different days do not over load him.

>

>

>

[Guest guest]

I just hate blowing things off. I dont want to hide my feelings ,I

want to tell and be supported.I hate not getting what I know is well

deserved, as you mentioned! Theres a time for compassion.

THis spoons thing is really cool though.

I love the website too.

There needs to be more knowledge thrown out there about thyroid and

adrenal problems, if people hear about them, they will understand

them...its simply ridiculous! I hope there are researchers out there

looking for more ways to help people with AF and thyroid problems,

and advertising it. I long to see a commercial that says " if you

experience this this and this it could be adrenal fatigue caused by

hypothyroidism, or vise versa, have your adrenal gland levels checked

now, please call... "

I think Diagnose Techs/ Canary Club should do a commercial

nationwide!!! Something!

>

>

> For the last couple years my family did not get it and it

causedme even more stress and in turn I got worse. Now my parents see

first hand what I go through day to day as I had ot move in with them

due ot the debillataing fatigue and pain I get in my legs and arms.

> My sister does not get how I have seen so many docs and I am just

finally starting to become more and more clear as to what is going

on. She is sick at the moment whiich is not like her and she thought

it as the flu but is not getting better. She is stubborn like my mom

and I just pray she takes into consideration some things I e-mailed

her about the thyroid since she has hypothyorid and has just went of

two meds that can be throwing her all off.

> I have low thryoid due to low adrenals prior I did not . She has

had this since she was in her teens and now is in her ealry 30's.

> I get how she must feel and she is so impatient which is making

her feel worse. I can be like that too it is a bad family trait we

have. My nephew just turned four and she is a great parent and is

very involved with him., and her DH works and they used to live by us

and moved to Miami a couple months ago so just meeting new friends

but when she felt sick which was harldy ever she could call my mom

and dad and they could help her and pick up my nephew from school and

things and now she is not coping to well. Maybe this is why she does

not get why I am not better because health issues sometimes are not

so easily fixed as you all know.

> I emailed her some infor when the doc thought I had Fibro and it

was info that was great from a fibro support group and she just did

not get it. Now as hard as it is I just do not go into to it when the

person asks why I am not getting well because I do not need the

stress of them being rude. When on is sick and trying hard to get

some answers compassion should be a given!

> a

>

>

>

[Guest guest]

,

People just need a way to understand what you are trying to tell them.

When used to teach photography would use needles for women and

rachets, fish hooks and or screws for men to help them understand

F stops.

F stops suddenly become easy when compared to something

they already know well.

It is the same with our illness he has no way to comprehend what

you are telling him, without something to compare it with.

Just tell him you wanted to us something he knows so much about

to help you to explain how your body is not working.

You can use timing, a lawnmower that is out of time will not stay

running. It starts and quits as soon as you put it into motion.

Does that sound like our bodies? The only problem is it takes

a lot more effort and work to get the timing correct in the human body.

From: scubjay

THATS GREAT!!! I would laugh out loud but everyone in my home is

asleep..

Men are simple like that I guess...

I will try.

He'd probably catch on and think I was being a smart***, but you

never know.

THanks

KAtie

[Guest guest]

Thoseis great suggestions. I have tried so many, but with my family they still

just want it ot be fixed. Not so much my parents anymore. The isolation is

getting ot me even though I have good friends on the net and my friends from

LAall call.

I Know it is a matter of time until I can get some more functionablity, but

for couple years now the fatigue is so much so I am not living life. I am geting

by each day.

I am looking forward to doing my salvia test in two more weeks and starting

HC.

Tommorow I see my doc and he will tell me if I need iron which can help the

fatigue, I took ferritin and iron test last monday.

a

Merry Christmas from wrote:

,

People just need a way to understand what you are trying to tell them.

When used to teach photography would use needles for women and

rachets, fish hooks and or screws for men to help them understand

F stops.

F stops suddenly become easy when compared to something

they already know well.

It is the same with our illness he has no way to comprehend what

you are telling him, without something to compare it with.

Just tell him you wanted to us something he knows so much about

to help you to explain how your body is not working.

You can use timing, a lawnmower that is out of time will not stay

running. It starts and quits as soon as you put it into motion.

Does that sound like our bodies? The only problem is it takes

a lot more effort and work to get the timing correct in the human body.

From: scubjay

THATS GREAT!!! I would laugh out loud but everyone in my home is

asleep..

Men are simple like that I guess...

I will try.

He'd probably catch on and think I was being a smart***, but you

never know.

THanks

KAtie

[Guest guest]

http://www.healingtides.net/a_letter_to_normals.htm

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

Unfortunately, it took me getting better for my family to realize the

extent to how ill I was. The hard truth is that unless it is

happening or has happened to them, most people just cant or dont want

to relate. And any sympathy is short lived because all they can see

is how it is affecting them, not so much how it is affecting you. I

think for me the most important thing was to not let them make me

doubt myself. We get so used to feeling bad that we start to wonder

if they are right, maybe we are just lazy. Don't let those kind of

thoughts in. You know you are sick and you know you are doing all

that you can to make yourself better. So focus on the fact that you

are doing the best you can even if others cant see it. And, don't

push yourself because they think you should be doing more. Doing that

will only prolong your road to recovery.

Next time your BF gets the flu or a fever, tell him now you know how

I feel every day. The only way they can get it is first hand

experience.

good luck,

English

>

> I know this is a little off the subject from what you generally

talk

> about on here but I was wondering if anyone has any suggestions on

> how to get family to understand your condition. I've been going

down

> hill lately with adrenal fatigue and have been struggling doing

> household things and errands that need to be ran. I suddenly HATE

> going into stores because walking around makes me feel horribal,

and

> a big fear is being in public alone and having a spell happen, and

> being surrounded by a bunch of strangers. Anyway, my bf knows whats

> wrong with me through me talking with him and such, but doesnt

really

> understand whats happening to my body. I try and tell him to read

> more on his own to help him understand and he says thats not

> necessary...when he hears it all from me. TO me, if there was

> something wrong with him, I would be reading constantly to learn

more

> and try to help. Anyway, I've become....well....lazy and he's got

the

> mindset to basically suck it up and deal with it. He gets mean at

> times by calling me pathetic and such. We all know that when y ou

> have AF, especially in the later stages, we are well....SLOW. Money

> is tight because of my lack of work, and I want to believe some of

it

> is because of stress, but dang! How the heck do you make someone

> understand how serious this adrenal fatigue stuff really is? Now,

if

> I had cancer, or a well known disease, I would get pity all the

> way...but it seems that something he's never heard of, is effecting

> the way he handles it.

> Generally he does a good job of taking care of me, but when I try

and

> tell him how it makes me feel when he's ''mean'', he blows me off

and

> says hes only being honest and blunt. I was taught to spare someone

> you loves feelings a little bit when you're mad, say things nicer.

> Im just wondering if anyone out there has struggled with a family

> member just not understanding and being down right mean at times,

and

> how you handled it when you knew that you're doing the best you can

> and thats all you can do until certain tests are done and

treatments

> are tried. What am I suppose to do to get him more involved in my

AF,

> and to be a little nicer and more understanding about this

syndrome.?

> I want to think that if he learns more, than he'll be nicer, but

> maybe I've just come across a dud. Its been 3 years now with this,

> and AGH, I can't do it on my own, so I'd like to try other options

> before leaving, ya know.

> Thanks

>

> thyroidsupport@...

>

[Guest guest]

Thanks , Im trying to remain positive here.

>

> Unfortunately, it took me getting better for my family to realize the

> extent to how ill I was. The hard truth is that unless it is

> happening or has happened to them, most people just cant or dont want

> to relate. And any sympathy is short lived because all they can see

> is how it is affecting them, not so much how it is affecting you. ...

>

>

[Guest guest]

Thanks Val.

Sincerely

>

> http://www.healingtides.net/a_letter_to_normals.htm

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

>

[Guest guest]

,

Mine finally understood when he went to the doctor with me and heard

the doctor talk about it.

Tina

>

> I know this is a little off the subject from what you generally

talk

> about on here but I was wondering if anyone has any suggestions on

> how to get family to understand your condition. I've been going

down

> hill lately with adrenal fatigue and have been struggling doing

> household things and errands that need to be ran. I suddenly HATE

> going into stores because walking around makes me feel horribal,

and

> a big fear is being in public alone and having a spell happen, and

> being surrounded by a bunch of strangers. Anyway, my bf knows whats

> wrong with me through me talking with him and such, but doesnt

really

> understand whats happening to my body. I try and tell him to read

> more on his own to help him understand and he says thats not

> necessary...when he hears it all from me. TO me, if there was

> something wrong with him, I would be reading constantly to learn

more

> and try to help. Anyway, I've become....well....lazy and he's got

the

> mindset to basically suck it up and deal with it. He gets mean at

> times by calling me pathetic and such. We all know that when y ou

> have AF, especially in the later stages, we are well....SLOW. Money

> is tight because of my lack of work, and I want to believe some of

it

> is because of stress, but dang! How the heck do you make someone

> understand how serious this adrenal fatigue stuff really is? Now,

if

> I had cancer, or a well known disease, I would get pity all the

> way...but it seems that something he's never heard of, is effecting

> the way he handles it.

> Generally he does a good job of taking care of me, but when I try

and

> tell him how it makes me feel when he's ''mean'', he blows me off

and

> says hes only being honest and blunt. I was taught to spare someone

> you loves feelings a little bit when you're mad, say things nicer.

> Im just wondering if anyone out there has struggled with a family

> member just not understanding and being down right mean at times,

and

> how you handled it when you knew that you're doing the best you can

> and thats all you can do until certain tests are done and

treatments

> are tried. What am I suppose to do to get him more involved in my

AF,

> and to be a little nicer and more understanding about this

syndrome.?

> I want to think that if he learns more, than he'll be nicer, but

> maybe I've just come across a dud. Its been 3 years now with this,

> and AGH, I can't do it on my own, so I'd like to try other options

> before leaving, ya know.

> Thanks

>

> thyroidsupport@...

>

[Guest guest]

Yessss, I've wanted to trade my hypoparathyroidism with some of my dumbo

doctors.

>>>I can't tell you how many times I've wished I could trade

places with someone for 5 minutes so they could feel how I feel

[Guest guest]

I like this one too!

Cherie

>

> http://www.healingtides.net/a_letter_to_normals.htm

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

>

>

>

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Checked by AVG Free Edition.

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11:36 AM

[Guest guest]

I don't have any family left but after 6 years of struggle(since being

bed-ridden) I could not educate my friends. I lately gave up and decided that I

must accept that I am totally alone.I am loosing my last friend lately.She keeps

telling me that my problems are psychological and kindly refuses to

help.(thinking I am trying to get attention,etc).Do not have the patience any

more and I will have to let her go.Loosing my last friend places a lot of stress

on me. I feel sad and I am getting worse healthwise.I could not manage this

stress.

thanks for sharing.

bw

Nil

RE: Any suggestions on how to get family to understand

adrenal problems...

For the last couple years my family did not get it and it causedme even

more stress and in turn I got worse. Now my parents see first hand what I go

through day to day as I had ot move in with them due ot the debillataing fatigue

and pain I get in my legs and arms. not getting better. She is stubborn like