Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 In a message dated 7/2/2004 1:03:52 PM Eastern Daylight Time, PLS-FRIENDS writes: > I have PLS and I'm not in the registry. How do I get on?? Hello Roy, Send your contact information (name, address, phone, email) and diagnosis (PLS or HSP) and how long you've had the diagnosis to: community@... . The Patient Registry is maintained by the Spastic Paraplegia Foundation and is not sold or released to any outside parties. It is used in ways that will benefit the mission of finding the cures and providing information and support programs to patients, family members and the medical community. best, Kathi Geisler Quote Link to comment Share on other sites More sharing options...
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