Re: Medical... caregiver...

[Guest guest]

DEAR THOMAS,

I AM SORRY YOU ARE ALL GOING THROUGH THIS DIFFICULT TIME. I AM NOT SURE WHAT

YOUR DOCTOR MEANS ABOUT MEDICARE. BUT HERE IS THE ADDRESS FOR SOCIAL

SECURITY AND MEDICARE: www.ssa.gov .THIS MAY ANSWER SOME QUESTIONS.

GOOD LUCK TO YOU AND YOU ARE IN MY PRAYERS. LISA N.

Medical... caregiver...

> I believe I already said my mom is in the hospital because of a pretty bad

> bed sore. She has been in there for over a month now. Well, now a

> rehabilitation hospital. Me and my sister go there every day to feed her.

> She wont eat for anyone else =).

>

> The doctor and case manager had a meeting with my family the other day. I

> told them that my mom was denied medicare and medical and the doctor said

> that they deny EVERYONE the first time around and you have to reapply.

That

> doesnt sound right on the gov't part but now I am going to reapply. They

> said she WOULD be approved.

>

> My question specifically is about caregivers. Is anyone a caregiver or

know

> of a caregiver? I think that the gov't pays the caregiver of a perm

disabled

> person? Can anyone point me to information about this or tell me if this

is

> true or not?

>

> Thank you,

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

You mentioned your Mom got denied Medicare, my suggestion is to get a lawyer to

represent you, it seems the word lawyer gets thing moving in the right

direction.Is she on Social security? They might be able to point you in the

right direction about the care giver question. I hope she continues to progress

daily. God bless Sandy

Medical... caregiver...

I believe I already said my mom is in the hospital because of a pretty bad

bed sore. She has been in there for over a month now. Well, now a

rehabilitation hospital. Me and my sister go there every day to feed her.

She wont eat for anyone else =).

The doctor and case manager had a meeting with my family the other day. I

told them that my mom was denied medicare and medical and the doctor said

that they deny EVERYONE the first time around and you have to reapply. That

doesnt sound right on the gov't part but now I am going to reapply. They

said she WOULD be approved.

My question specifically is about caregivers. Is anyone a caregiver or know

of a caregiver? I think that the gov't pays the caregiver of a perm disabled

person? Can anyone point me to information about this or tell me if this is

true or not?

Thank you,

[Guest guest]

My sister and family have been my primary caregivers. Now I need

help when they are gone during the day. I need help getting into the

shower/tub, bathing, washing my hair, dressing, with light

housekeeping, passive stretching exercises, stacked breath exercises,

and the stuff I just plain don't want to do around the house. Just 3

hours a day 3 times a week. I hope this frees up my family so that

the time we do spend together is on fun rather than chores.

The cost is a burden and could have been a show stopper. My only

insurance is Medicare and they may only provide assistance if your in

the late stages of ALS / PLS.

(http://www.hhs.gov/news/press/2002pres/20020726d.html) I've found

resources that will help with the cost.

The federal government funds state Caregiver Support Programs, which

help to offset some of the cost.

(http://www.aoa.gov/prof/aoaprog/caregiver/careprof/state_by_state/sta

te_contact.asp)

Support for Family Caregivers. Launched in 2001, the National Family

Caregiver Support Program provides respite care and other supportive

services to help hundreds of thousands of family members who are

caring for their older loved ones who are ill or who have

disabilities. In February 2002, HHS Secretary Tommy G.

announced the release of $128 million in grants to states. See

www.aoa.gov/carenetwork/.

The ALS Association also has a program for Respite Care Grants.

The Family Caregivers Alliance, National Center on Caregiving, can

help find local resources. Email: info@c.... Family

Caregiver Alliance . 690 Market St, Ste 600, San Francisco, CA 94104

phone: (415) 434.3388 . (800) 445.8106 . fax: (415) 434.3508

In California Respite Care Grants are available through the

California Cargivers Resource Centers.

(http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=485)

Lynn Holmes

> I believe I already said my mom is in the hospital because of a

pretty bad

> bed sore. She has been in there for over a month now. Well, now a

> rehabilitation hospital. Me and my sister go there every day to

feed her.

> She wont eat for anyone else =).

>

> The doctor and case manager had a meeting with my family the other

day. I

> told them that my mom was denied medicare and medical and the

doctor said

> that they deny EVERYONE the first time around and you have to

reapply. That

> doesnt sound right on the gov't part but now I am going to reapply.

They

> said she WOULD be approved.

>

> My question specifically is about caregivers. Is anyone a caregiver

or know

> of a caregiver? I think that the gov't pays the caregiver of a perm

disabled

> person? Can anyone point me to information about this or tell me if

this is

> true or not?

>

> Thank you,

>

>

[Guest guest]

, I think a vast majority of us PLS'er were denied SSDI the first time

around. I was denied the first time to but that was almost 10 years ago. I

had a patient advocate go with me the second time along with a more detailed

medical reports from my doctors. Second time around I did finally receive it.

Don't know about caregivers receiving anything but if you can reach out to MDA

clinic's they have many helpful contacts..............Hope your Mom continues

to improve.........Flora

[Guest guest]

,

Did you find any thing on caregiver getting government assistance.

Jane Anne

Medical... caregiver...

> I believe I already said my mom is in the hospital because of a pretty bad

> bed sore. She has been in there for over a month now. Well, now a

> rehabilitation hospital. Me and my sister go there every day to feed her.

> She wont eat for anyone else =).

>

> The doctor and case manager had a meeting with my family the other day. I

> told them that my mom was denied medicare and medical and the doctor said

> that they deny EVERYONE the first time around and you have to reapply.

That

> doesnt sound right on the gov't part but now I am going to reapply. They

> said she WOULD be approved.

>

> My question specifically is about caregivers. Is anyone a caregiver or

know

> of a caregiver? I think that the gov't pays the caregiver of a perm

disabled

> person? Can anyone point me to information about this or tell me if this

is

> true or not?

>

> Thank you,

>

>

>

>

>

>

>

>