eventful and stressful week

[Guest guest]

Hi guys,

Just thought I would ask a few questions and say how crazy of a week it has been

for me. It started Tuesday- ended up in the ER not for myself but first for my

mom, then my brother all in the same night. My mom had been out of town the

weekend before at her mothers and was lifting stuff at my grandma's house. She

began to feel back pain the morning after and then it slowly radiated into her

right hip and lower right abdomen. She came back tuesday and the pain just got

so severe she said it was like labor pain. We went to the ER and the dang ER

people werent thorough enough I dont think, they looked into kidney issues and

once they saw none the said it was a pinched nerve and pulled muscle. I still

feel this hard to believe as I've had both and what she describes the burning

deep pain just doesnt sound like it. But anyways, she saw her regular dr friday

and they think its that too- so, we'll see. Its worse when she stands up or lays

down but sitting up she does pretty well. They also thought singles but no rash.

On to my brother- he gets the cysts- ack, they start with an L but my word

recall is getting worse. But he's prone to them and somehow one got infected and

absessed and began to spread deep into his muscle and lymph nodes (hes now on

heavy duty antibiotics)- he let it go too long also. But when his leg started

going numb tues night he decided time to go to the ER, so off I go again after

getting home from my mom's ER trip. They do surgery right away to drain it and

so far other than having severe pain in the leg, it seems to be doing fine. He's

having alot of probs sleeping also, I really feel bad for him cuz he really

hasnt had to deal with health probs other than his GI probs and cluster like

headaches. Anyways, also on tues I saw an Social security psychologist for

tests- he did something like neuropsych tests and I failed quite a few of them

especially on word recall and memory. It was just kinda depressing cuz I know

I'm fairly intellegent and it just showed how much my cognetive probs are

getting slowly worse. But hey, guess it will help with disability at least. Also

my brother stole some of my pain meds so I'm w/o any for a week- only way I can

get some sooner is if I charge him w/stealing them and I just dont wanna do that

(I couldnt prove it and well, its a long story). So, ive been in severe pain

these past few days and going through some withdrawal symptoms. Then new years

eve and last night were really chaotic- personal stuff that happened with my

best friend and stuff- shes really having mental health issues and doing alot of

things that worry me and I just hope she doesnt have a mental breakdown or

something soon. I just feel like I've been the caregiver this past week for

several people, specially my family- fetching them stuff and whatnot. Anyways- I

have started on part of the mito cocktail my dr told me I should so I'm taking

coQ10, l-carnitine and riboflavin along with my meds. I have also started to use

an eye patch when my eyes get very tired cuz my double vision has gotten severe

at times, whats weird is that I get double vision in my right eye whether or not

I cover my left but covering my right works- so is the double vision just from

my right eye? I could understand that I guess since my hearing loss is mainly in

my right ear and my right side is where I get most my complex partial seizures

and SLEs. Anyways, just wondering about that and also just questioning if anyone

would know what could be causing my mom's pain. She has alot of mito symptoms,

especially dysautonomia symptoms and GI issues. Then my brother, I guess now he

should do something about those cysts before they get that bad- I'm wondering if

thats mito related too. Also my aunt has dysautonomia symptoms- she sweats alot,

gets dizzy alot on standing, her temp and heart rate fluctuate alot and recently

she fainting when she was sick and getting out of a warm tub- she wants info on

dysautonomia especially on the temp control probs and sweating, anyone know of

any good sites, i used to but cant find them. Well, this is getting longI just

was hoping to get some suggestions on some of this stuff. thanks for any help. I

told myself I would start to answer 1-2 posts a day not to outdo myself but this

alone has taken all my strength, maybe later cuz I do have some stuff I wanna

share and whatnot. till then, thanks.

take care,

Adrienne