clarity

[Guest guest]

Let's really practice some tolerance here.

We don't really have the right to expect anyone to do what we want, just

because we want it - even if we suffer and suffer again from thyroid cancer

- or even if we offer them $20 or more.

>>>>>>>>>>>>I don't think expecting an ounce of basic human sympathy for my

battle with cancer is too much to ask, especially from a cancer advocacy group.

And if this organization is based on donations, why would they turn down 20

bucks for 10?

Yes, it would have made you feel good if the guy had given you a pink

t-shirt, and even if the first one had just given you a t-shirt for the $20.

>>>>>>>>>Its not even about the material. Its about the fact that not one person

expressed any sympathy, kindness, or understanding. They only made everything

more difficult, and then insulted me.

Sure it would, but that didn't happen and does it really help anyone feel

good to blast *them* for not doing what you wanted?

>>>>>>>>>>I didnt blast them. I called them on what I and several others feel is

inappropriate and insulting behaviour. I did not write a letter, my boyfriend

did. He was angry and hurt on my behalf. We didnt curse anyone out. There was no

namecalling.

Some thycans write in to tell us how it felt when some doc or sidekick or

other type of cancer survivor wrote her off as *not really having cancer*.

I'm sorry you didn't get the pink t-shirt. I'm sorry people don't *get it*

that this is not the *good cancer*, but did anyone in these incidents tell

you that you have the good cancer?

>>>>>>>>>>>>Their reactions spoke very strongly of disregard. It was as bad as

saying I had to good cancer.

Please remember that we all know that you do not have any good cancer and

that it is a tough time. We also wish that the rest of the cancer survivors

would embrace us with open arms, and through gradual introduction to our

experiences maybe they will.

Until then - we love you - and here...................here; I'll let you try

on my pink t-shirt.

On the other hand - isn't it nice when you know you can write to this group

of people and know that we will care and understand you because we've been

there!

So - shouldn't it be the same for the breast cancer *survivors*!

>>>>>>>>>>>When did I say the breast cancer survivors didnt deserve what they

have? I wish other cancers got as much attention and funding.

We like to

know that the woman in the pink t-shirt has every reason to know what we

have been through. We have our own special bond.

Let's count our thyca blessings,

Munira

>>>>>>>>>>>>>>>>>>>>>>>I find your language and tone offensive.

I dont appreciate how my words are twisted and how meanings are added on.

I am not unintelligent. Just because I am only 21 does not make me or my views

less valid.

I learned long ago not to expect anything from anyone. Generally I dont. But a

cancer advocacy or cancer support group are places you expect to find support

without limits.

I wrote to the group about this to get other opinions.

I wanted to be sure I wasnt over reacting.

and I were shocked, but its easy to lose sight of reality and reason.

Everyone else seems to understand how hurtful the whole experience was.

I was not angry that I didnt get what I want.

I was upset and hurt that the experience was unpleasant and devoid of human

warmth.

I rejoined the group today. However I dont have the patience to clarify points

and argue with people. Not to mention the lack of energy, depression, and stress

of returning to work and school.

I wish everyone the best.

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