Re: Respiratory Question -- please read

[Guest guest]

I   have a problem that  I thinking can  be described as " snorting " .

Occasionally I just  have  this large  sudden intake  of breath without 

warning which tends  to  be quite noisy. I don't  have any other breathing

or sleep problems.

 

Regards

 

Kiwi

 

 

Respiratory Question -- please read

After attending the PLS Symposium this weekend, I was asked

(privately--not in the meeting) if any of our group complain of ---

" respiratory and sleep problems of people with neuromuscular disease,

particularly those with disease of the motor neuron. "

For example, has complained about " excessive " yawning and  air

hunger.  I personally don't have that complaint but I think I do  recall

others in the group saying similar things.  So, please let me  know

if you have problems of this nature and I can pass it on before the

meeting in Chicago. 

  Gentner

Alone we can do so little. Together we can do so  much.

Helen Keller (1880-1968)

[Guest guest]

Kiwi , you're not alone I do that snorting thing too. It usually

starts after I yawn and then try to refill my lungs which I have learned not to

panic. Like you said lean forward and just think about taking short small

breaths...................Flora

[Guest guest]

When I first had all the bular symptoms, I had involuntary rapid

intact of air - yet not a yawn - many times day and night. Since my

bular symptoms have greatly improved, I may do this once in two weeks.

So I must conclude it is tied to bulbar involvement.

Eva in WV

[Guest guest]

Hi :

Yes, I also have excessive yawning but it seems to run in bouts. I also

have respiratory problems depending whether I am tired or there is high

humidity. The inhale breath is okay it is the exhale that gives me a

problem and when it is really bad my chest even hurts. I have had only one

respiratory evaluation and that was about 9 months ago at which time they

said there was some spasticity in the lungs or diaphram.

Hope all this makes some sense to you.

Take care.

Jo.

Respiratory Question -- please read

> After attending the PLS Symposium this weekend, I was asked

> (privately--not in the meeting) if any of our group complain of ---

> " respiratory and sleep problems of people with neuromuscular disease,

> particularly those with disease of the motor neuron. "

>

> For example, has complained about " excessive " yawning and air

> hunger. I personally don't have that complaint but I think I do recall

> others in the group saying similar things. So, please let me know

> if you have problems of this nature and I can pass it on before the

> meeting in Chicago.

>

> Gentner

>

> Alone we can do so little. Together we can do so much.

> Helen Keller (1880-1968)

>

>

>

[Guest guest]

I do that sometimes. It's like a huge gasp. Comes unexpectedly, sort of

like a big yawn with the hiccups, like a shudder. Well, something funny but

not laughing funny more like funny strange. Bet that helps a whole big

bunch, huh?

Ronnie

Respiratory Question -- please read

After attending the PLS Symposium this weekend, I was asked

(privately--not in the meeting) if any of our group complain of ---

" respiratory and sleep problems of people with neuromuscular disease,

particularly those with disease of the motor neuron. "

For example, has complained about " excessive " yawning and air

hunger. I personally don't have that complaint but I think I do recall

others in the group saying similar things. So, please let me know

if you have problems of this nature and I can pass it on before the

meeting in Chicago.

Gentner

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)

[Guest guest]

,

As I mentioned several times before, I have respiratory problems. I, too,

have symptoms that many have mentioned in the last few days such frequent

yawning, shortness of breath after little exertion, and spontaneous gulping

of air. In addition, I have to be on oxygen at night to increase the oxygen

level in my blood. After complaining of the syptoms mentioned previously

and having trouble sleeping, I went to a pulmonologist. He had me take

lung function tests and two sleep studies. He diagnosed me with having

Hypopnea which is a reduction or breathing rate and/or depth due to weakened

chest muscles. He said that it is probably due to PLS. My neurologist said

it possibly due to PLS.

Respiratory Question -- please read

> After attending the PLS Symposium this weekend, I was asked

> (privately--not in the meeting) if any of our group complain of ---

> " respiratory and sleep problems of people with neuromuscular disease,

> particularly those with disease of the motor neuron. "

>

> For example, has complained about " excessive " yawning and air

> hunger. I personally don't have that complaint but I think I do recall

> others in the group saying similar things. So, please let me know

> if you have problems of this nature and I can pass it on before the

> meeting in Chicago.

>

> Gentner

>

> Alone we can do so little. Together we can do so much.

> Helen Keller (1880-1968)

>

>

>