Re: irritable on cortisol...stage 7

[Guest guest]

I think it depends on how long you have been at stage 7. I was at this stage

for a few years and could do a tremendous amount because I still had

adrenaline I was living off of it, but then I couldn't even seem to get

adrenaline and just completely crashed in all regards a few years ago. I

think she said she was at stage 7 for 2 years which may be why she still can

do stuff...adrenaline is helping. Though that means she will get worse if it

is not properly treated.

Cheri/7

Re: irritable on cortisol

Barb wrote:

> Multi-hour walks, running a business and raising two kids on your

> own? I would tend to question the Stage 7 diagnosis too. Here's a

>

I agree with Barb, I question that stage 7 too. I'm stage 7, and if I

get the animals fed, litterboxes changed, get to the grocery store, or

cook dinner, or do one load of laundry or a little vacuuming, that is my

day, and I certainly usually cannot do all of those in one day. I can't

walk 15 minutes, or I'd be back to using my canes for a few days (done

it, in fact).

sol

.

[Guest guest]

I wonder how long the adrenaline phase can last---certainly I lived on

adrenaline for years and years. But by the time I came here to this

list, I'd been ill for a decade, severely ill for 5 years or so. So my

adrenaline years are at least 10 years behind me.

sol

MsSquarepants wrote:

> I think it depends on how long you have been at stage 7. I was at this stage

> for a few years and could do a tremendous amount because I still had

> adrenaline I was living off of it, but then I couldn't even seem to get

> adrenaline and just completely crashed in all regards a few years ago.

[Guest guest]

I am this way and I am /was stage 3. Can't do much without being wiped out and

legs hurting BAD.

[Guest guest]

Well, I think I was at it for seven years at least with stage 7 but pumping

out adrenaline based on my symptoms and had adrenal fatigue at least 30

years if not my entire life. I know by puberty I had the symptoms that I

know understand to be adrenal fatigue. I knew I could not even get my

adrenaline up anymore when I actually had a life threatening crime committed

against me and didn't have the adrenaline to react appropriately and was

actually so calm I was almost sedate. Luckily, I got out of the situation

safely but it was the complete opposite of how I should have functioned and

normally the smallest noise or just about anything made me nervous, anxious,

jittery, etc. Then I went to almost comatose, lol.

Yeah, it would be interesting to know what other people's stories are in

this regard.

Cheri/7

Re: irritable on cortisol...stage 7

I wonder how long the adrenaline phase can last---certainly I lived on

adrenaline for years and years. But by the time I came here to this

list, I'd been ill for a decade, severely ill for 5 years or so. So my

adrenaline years are at least 10 years behind me.

sol

.

[Guest guest]

Yes, sleep is wonderful if you can get it. My body never lets me get more

than 4-6 hours though. Once I wake up, I can lie in bed but will not fall

asleep again.

Cheri

Re: irritable on cortisol...stage 7

I am thinking this is another way of saying HPA axis over stimulation.I

had lived with it since before my CFS was apparent. I am thinking CFs

starting point is taken as the point where immune system problems start. I

am thinking person must have lived with high cortisol(also high adrenaline )

for some time (for me at least 8 years) to reach to the point where immune

system is depressed and not functioning well. I am in stage 7. I lived with

this adrenaline rush for at least 25 years but I still have it from time to

time as soon as I am able to get some rest. That is why I am looking for an

adaptogenic herb to control this problem.I am thinking even though I take

hc,due to disrupted hpa axis functioning I am spending it all and still need

more.That is why I still could not decide if hpa axis dysfunction of adrenal

fatigue and CFS are same. I had a friend who had a very stressful life and

developed adrenal fatigue.After the stressful events ended she was bed

ridden like me. But she recovered without taking any support.You know why?

She slept.. She slept and rested most of the time and she recovered within

three years. I had another friend who had secondary adrenal insufficiency

due to extreme cortisol taken after a brain surgery. She also recovered by

resting. Problem with me is that I can not rest even if I am tired. My brain

keeps pushing me. I don't seem to feel my body's (adrenals) exhaustion. It

feels as if connection is broken.Does that sound similar to anyone?

best wishes.

Nil/7

.

[Guest guest]

I notice when I take afternoon naps, it makes me feel worse almost,

like really hard to get up and sluggish feelings for hours. I sleep

about 8 hours a night, and feel ok, until my afternoon low.

Other than that, sleep is good.

Thats amazing that someone with secondary adrenal insufficiency

recovered from only sleep and rest. I thought that with Secondary AF,

you had to take HC for life??? Im confused... WIth stage 7, are you

always completly bedridden?? Does that mean that you have addisons?

I've been spending all this time trying to findo ut if its my

pituitary because I had RAI, and maybe all I need is to hope and pray

and rest. My next saliva test will show if Im getting worse or

better.

> I am thinking this is another way of saying HPA axis over

stimulation.I

> had lived with it since before my CFS was apparent. I am thinking

CFs

> starting point is taken as the point where immune system problems

start. I

> am thinking person must have lived with high cortisol(also high

adrenaline )

> for some time (for me at least 8 years) to reach to the point where

immune

> system is depressed and not functioning well. I am in stage 7. I

lived with

> this adrenaline rush for at least 25 years but I still have it from

time to

> time as soon as I am able to get some rest. That is why I am

looking for an

> adaptogenic herb to control this problem.I am thinking even though

I take

> hc,due to disrupted hpa axis functioning I am spending it all and

still need

> more.That is why I still could not decide if hpa axis dysfunction

of adrenal

> fatigue and CFS are same. I had a friend who had a very stressful

life and

> developed adrenal fatigue.After the stressful events ended she was

bed

> ridden like me. But she recovered without taking any support.You

know why?

> She slept.. She slept and rested most of the time and she recovered

within

> three years. I had another friend who had secondary adrenal

insufficiency

> due to extreme cortisol taken after a brain surgery. She also

recovered by

> resting. Problem with me is that I can not rest even if I am tired.

My brain

> keeps pushing me. I don't seem to feel my body's (adrenals)

exhaustion. It

> feels as if connection is broken.Does that sound similar to anyone?

> best wishes.

>

> Nil/7

> .

>

>

>

>

[Guest guest]

The testings for all this the proper way is so dang expensive, its easy

to loose hope on things.

Thanks though...I've read so many things, its hard to keep certain info

straight.

[Guest guest]

I was slowly headed that way over the past few years - probably

because of increasingly being hypoT. Starting on the Isocort got me

all the way there in a hurry and it continues with HC. So want to

sleep for 8 or 9 hours tonight but I know that I won't be able to.

>

> Yes, sleep is wonderful if you can get it. My body never lets me get

more

> than 4-6 hours though. Once I wake up, I can lie in bed but will not

fall

> asleep again.

> Cheri

[Guest guest]

yes, it sounds like me. I haave not taken a nap for about l0 years. I have no

trouble getting up - can't really stay in bed once I'm awake, have plenty of

energy to do whatever, and sometimes have to doomething to keep moving. The

Isocort has helped the hyperactivity a lot. In spite of all the energy, I fall

asleep in my chair while reading. aggravating., but I am improving week by week

on the Isocort.

Pat

Re: irritable on cortisol...stage 7

I notice when I take afternoon naps, it makes me feel worse almost,

like really hard to get up and sluggish feelings for hours. I sleep

about 8 hours a night, and feel ok, until my afternoon low.

Other than that, sleep is good.

Thats amazing that someone with secondary adrenal insufficiency

recovered from only sleep and rest. I thought that with Secondary AF,

you had to take HC for life??? Im confused... WIth stage 7, are you

always completly bedridden?? Does that mean that you have addisons?

I've been spending all this time trying to findo ut if its my

pituitary because I had RAI, and maybe all I need is to hope and pray

and rest. My next saliva test will show if Im getting worse or

better.

> I am thinking this is another way of saying HPA axis over

stimulation.I

> had lived with it since before my CFS was apparent. I am thinking

CFs

> starting point is taken as the point where immune system problems

start. I

> am thinking person must have lived with high cortisol(also high

adrenaline )

> for some time (for me at least 8 years) to reach to the point where

immune

> system is depressed and not functioning well. I am in stage 7. I

lived with

> this adrenaline rush for at least 25 years but I still have it from

time to

> time as soon as I am able to get some rest. That is why I am

looking for an

> adaptogenic herb to control this problem.I am thinking even though

I take

> hc,due to disrupted hpa axis functioning I am spending it all and

still need

> more.That is why I still could not decide if hpa axis dysfunction

of adrenal

> fatigue and CFS are same. I had a friend who had a very stressful

life and

> developed adrenal fatigue.After the stressful events ended she was

bed

> ridden like me. But she recovered without taking any support.You

know why?

> She slept.. She slept and rested most of the time and she recovered

within

> three years. I had another friend who had secondary adrenal

insufficiency

> due to extreme cortisol taken after a brain surgery. She also

recovered by

> resting. Problem with me is that I can not rest even if I am tired.

My brain

> keeps pushing me. I don't seem to feel my body's (adrenals)

exhaustion. It

> feels as if connection is broken.Does that sound similar to anyone?

> best wishes.

>

> Nil/7

> .

>

>

>

>

[Guest guest]

I am thinking this is another way of saying HPA axis over stimulation.I had

lived with it since before my CFS was apparent. I am thinking CFs starting point

is taken as the point where immune system problems start. I am thinking person

must have lived with high cortisol(also high adrenaline ) for some time (for me

at least 8 years) to reach to the point where immune system is depressed and not

functioning well. I am in stage 7. I lived with this adrenaline rush for at

least 25 years but I still have it from time to time as soon as I am able to get

some rest. That is why I am looking for an adaptogenic herb to control this

problem.I am thinking even though I take hc,due to disrupted hpa axis

functioning I am spending it all and still need more.That is why I still could

not decide if hpa axis dysfunction of adrenal fatigue and CFS are same. I had a

friend who had a very stressful life and developed adrenal fatigue.After the

stressful events ended she was bed ridden like me. But she recovered without

taking any support.You know why? She slept.. She slept and rested most of the

time and she recovered within three years. I had another friend who had

secondary adrenal insufficiency due to extreme cortisol taken after a brain

surgery. She also recovered by resting. Problem with me is that I can not rest

even if I am tired. My brain keeps pushing me. I don't seem to feel my body's

(adrenals) exhaustion. It feels as if connection is broken.Does that sound

similar to anyone?

best wishes.

Nil/7

Re: irritable on cortisol...stage 7

I wonder how long the adrenaline phase can last---certainly I lived on

adrenaline for years and years. But by the time I came here to this

list, I'd been ill for a decade, severely ill for 5 years or so. So my

adrenaline years are at least 10 years behind me.

sol

MsSquarepants wrote:

> I think it depends on how long you have been at stage 7. I was at this stage

> for a few years and could do a tremendous amount because I still had

> adrenaline I was living off of it, but then I couldn't even seem to get

> adrenaline and just completely crashed in all regards a few years ago.

[Guest guest]

I notice when I take afternoon naps,

I wished I could have afternoon naps.

it makes me feel worse almost,

like really hard to get up and sluggish feelings for hours.

it could be that your body is relaxing and starting to feel how much rest it

needs. I think that is good.

I sleep

about 8 hours a night, and feel ok, until my afternoon low.

Other than that, sleep is good.

Thats amazing that someone with secondary adrenal insufficiency

recovered from only sleep and rest. I thought that with Secondary AF,

you had to take HC for life??? Im confused...

all I know is that she developed adrenal insufficiency due to excessive

cortisone usage. I think this is one type of secondary insuff.

WIth stage 7, are you

always completely bedridden??

yes. I am bedridden without cortisone support. with 20 mg hc eq. of isocort I

was about 20-30 percent functional. I am now increasing the dosage.

oes that mean that you have addisons?

oh.. yes... that is what I am wondering lately.it could be that I am at

addisonian level. but can not check it at this point.

I've been spending all this time trying to findo ut if its my

pituitary because I had RAI, and maybe all I need is to hope and pray

and rest. My next saliva test will show if Im getting worse or

better.

hope you will son get better.

bw

nil/7