Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 I have a question about Pro-EFA. My son is taking two capsules a day. One in the morning and one in afternoon. I have noticed that when he takes this he: grinds teeth a LOT, has to " press " his face on my arm A lot more than usual, rubs his ears A LOT more than usual too. Does anyone have suggestions on how some of these behaviors can be eliminated while still continuing taking ProEFA? Thanks in advance! Kristie mommy to Aidan 2.4 Aidan loves to play! http://testoffaith.blogspot.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Kristie, I just read your original note regarding teeth grinding and pressure needs. You may want to take him off the Pro=EFA and see if the behaviors are eliminated. Start back with one ProEFA in the mid-morning and see if the behaviors come back. Two may be too much for his age/weight. My son had too much GLA in his system so Coromega was our EFA of choice. Every one has their own chemical makeup and reactions are so individual, but I did find hyperactivity suppressed after two-three weeks. Good luck! Joanne ---------------------------------------------------- This mailbox protected from junk email by MailFrontier Desktop from MailFrontier, Inc. http://info.mailfrontier.com Re: [ ] Re: Pro-EFA >I have a question about Pro-EFA. My son is taking two capsules a day. One >in the morning and one in afternoon. I have noticed that when he takes this >he: grinds teeth a LOT, has to " press " his face on my arm A lot more than >usual, rubs his ears A LOT more than usual too. Does anyone have >suggestions on how some of these behaviors can be eliminated while still >continuing taking ProEFA? Thanks in advance! > Kristie > mommy to Aidan 2.4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 You could have been using the wrong formula of omega 3 and/or omega 6, but more likely the " problem " if it even was a problem -was too high a dosage of whatever you were using. Why stop? Why not just reduce the oils and give them a chance to work? Why not try a differnt formula? (rent Lorenzo's Oil) In the archives you wrote Dr. Agin told you reduce the dosage. Did you try that? Can you provide more details? Any like: Age of the child. What diagnosis How long on the oils. What formula and dosage (how many capsules a day) If you, or in that case anyone, just checks the archives or belongs to an apraxia support group you would kick yourself to find out that once the " bad " signs of " hyperactivity " go away in a day to three weeks -the speech surge comes in. Or did the hyperactivity last longer? As always in cases like this the advice is: Run by your child's MD (Dr. Agin?) Stop the oils (as you did) observe. Wait a few weeks to a month or two Start the oils again -perhaps in half dosage from before (try for example ProEFA Jr. which is half dosage of ProEFA/ half the amount of EFA approved by the FDA for use in a bottle of infant formula) Again observe....and please if you do -let us know what the first surges are! (yes I'm that confident if you saw that much " negative " you will or would have seen the positive) When the oils don't work -the worst sign is none at all. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Whoops meant to add this in too! There is much more in the archives both here -as well as more information at http://www.cherab.org/information/indexinformation.html#diet The Late Talker. Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think " Well -I don't want to get my hopes up we were working on that for awhile now - maybe it's just a coincidence " However after the second or third surge in a short period of time -and then another - you are pretty sure things are different and it's at this point the professionals and the rest of the family and your friends are noticing it too - maybe about two to three weeks now. OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. Up to this point is understandable to me -it's the point after this that is confusing to me, and perhaps not the best stage for our children and for raising awareness or having research done to find out what is happening to our children and why. Perhaps because we have truly hit a paradigm shift... As Dr. Agin states the EFAs actually appear to be in some ways " curing " the apraxic child -even those diagnosed with severe oral and verbal apraxia, hypotonia, sensory and behavioral issues. Especially those started at younger ages. The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Know there is lots of information here -but if you have to learn just one thing from all of this it's right up on top -there is always hope! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 We switched to omega-brite, and that works much better for my daughter. It has helped her a lot. > > I sopped using the pro-efa with my 4 year old son because I definetely > noticed an increase in hyperactivity and sensory integration problems. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 I noticed my son was hyperactive as well on days I would give him Cod liver oil. I use to give him 1 tsp a day, and I have switched it to 1/2 tsp every other day and it has helped him a lot. We don't notice anymore hyperactivity. I may try later 1/2 tsp a day but for now I'll stick with what's working. > > I sopped using the pro-efa with my 4 year old son because I definetely > noticed an increase in hyperactivity and sensory integration problems. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 There is no Omega 6 in Omega Brite and it has a 7:1 ration of EPA:DHA which I belive is higher than Pro-efa. Interestingly my son does well with 2 Pro-efas but cannot handle even 1 Pro-epa without becoming more agitated moody, etc... It also brought on some OCD tendencies which he never had which scared me. My friend saw the same with her son. > > > > I sopped using the pro-efa with my 4 year old son because I definetely > > noticed an increase in hyperactivity and sensory integration problems. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 My daughter is 3 and a half and she weighs about 32 pounds; I have been giving her 1 capusule of pro-efa a day and I wanted to know if that is enoughh? She has begun to say words in the last three months for I increased her therapy to 3xs a week; enrolled her in a small preschool which a lot of attention is given to her-17 children and usually four adults are at hand....but I cna't help feel despair when she approaches other children in the street and they don't understand her---it breaks my heart-I just want to cry! jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 All I can say is that I feel your pain; in fact, we all understand how you feel. The only thing I will say is that you'll get used to it. I usually will answer for him and sometimes tell people he doesn't speak that well yet. " jacquelinevfernandez " <jacquelinevfernandez@ya hoo.com> cc: Sent by: Subject: [ ] pro-efa @yaho ogroups.com 01/06/2006 10:11 PM Please respond to My daughter is 3 and a half and she weighs about 32 pounds; I have been giving her 1 capusule of pro-efa a day and I wanted to know if that is enoughh? She has begun to say words in the last three months for I increased her therapy to 3xs a week; enrolled her in a small preschool which a lot of attention is given to her-17 children and usually four adults are at hand....but I cna't help feel despair when she approaches other children in the street and they don't understand her---it breaks my heart-I just want to cry! jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 We saw results within 3 days - but figured it was coincidence. Significant improvements were obvious to everyone by 2 weeks. Improved coordination (global dyspraxia) was the most remarkable, with improved " normal " sounding babbling and attempts at imitating sounds that turned into new words by the end of the 2nd week. 4 months later we have 4 and 5 word sentences (though difficult to understand), and over 100 words. We had 3 words at 23 month - dada, mama and balla -but mostly grunting or silence. We've come a long way. Good luck. - [ ] Pro-EFA I am a lurker for about 3 months and started my daughter on Pro-EFA a week ago. I was curious about those of you who DID see results from them, how long did it take? Any input whould be appreciated! Thanks, Sara in GA --------------------------------- Brings words and photos together (easily) with PhotoMail - it's free and works with . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 We noticed a difference after 1 week. We told the speech therapist and the developmental pediatrician. We were told no we didn't..lol It's been about 3 weeks now. Phoebe went from having a hand full of words we could pretty much make out. She was saying one word at a time. Now she is saying 3 word sentences. However we really were expecting her to take and if it worked for her to just start talking and it to be clear. With Phoebe she instead is talking more but the words are not real clear. However she went from being able to sign water, milk and soda pop and eat to being able now to say " I ull " (I'm full), " me no " (I don't want that or I don't like that), " aw ight mom " (alright mom). My husband before could not understand anything she said. She would not go to him for anything. I could make out what she wanted by her ton, facial expression etc. Now he after a couple attempts can make out what she is saying. Our speech therapist after Phoebe went in one day and asked the therapist her first question, a couple times told her she had something at home, used some three word sentences, she finally admitted " OMG there is a HUGE leap in her speech! " Still doesn't want to admit it's the ProEFA though. The pediatrician said her study only showed that the fish oil would help with attention. She now however is going to recommend it to some of her patients after seeing Phoebe. Phoebe does get speech therapy once a week with a private therapist. We have been denied two days by our insurance (TriCare). She also has SID and they are refusing any sort of treatment for that. She gets 30 minutes a week at a special ed preschool that she attends for 3 hours a day. She went one year in therapy with basically no advancement until she started the PROEFA. Hope this helps. Kathy 38 DH Rob 35 DS 17 DS Zackary 11 DD Abigail 5 DD Phoebe 3 DD 2 Starting paperchase for Saoirse! > > I am a lurker for about 3 months and started my daughter on Pro-EFA a week ago. I was curious about those of you who DID see results from them, how long did it take? > > Any input whould be appreciated! > > Thanks, Sara in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Kathy, I noticed you mentioned Tricare. We are moving to Pensacola this summer from London (my husband is in the Navy) and I would love to get the scoop on what Tricare does in the states. Here we are covered for everything until my son is 3 (which is in a month). I am about to start the fight for therapy privately because he has not been in therapy consistently enough to argue the extended school year. I understand at 3 the school system will take him, do you get private therapy as well? is 99% unitelligible with a 5 word vocab but a great signer, so I know he needs consistentcy and intensity. Thank you, Karin this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 About 3 days. It was clear by 1 week. For us it leveled off unfortunately. Miche At 08:01 PM 2/22/2006, you wrote: >I am a lurker for about 3 months and started my daughter on Pro-EFA a week >ago. I was curious about those of you who DID see results from them, how >long did it take? > > Any input whould be appreciated! > > Thanks, Sara in GA Quote Link to comment Share on other sites More sharing options...
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