Re: Stress and fatigue

[Guest guest]

Good morning Rita,

Being stressed and fatigued are soooo hard to control in our daily lives. We

really need to listen to our bodies when they say enough is enough. Yesterday I

was extremely tired after helping my dog Missy deliver 7 puppies. I double dosed

on my provigil to help me threw the day. Well I got the energy I needed to get

things done and really over did it.

I should have just gone back to bed like my body was telling me too. I'm not one

to let things go. All my docs tell me I really need to pace myself ( I hate that

word).

When I over do myself I get really light headed too, even to the point of almost

passing out, which I did once and hit my head on the bricks of my fire place.

When I get that bad I really do listen to my body, because it scares the heck

out of my hubby and kids.

I hope you have a better day today, and please try the R & R approach.

I am very happy your friend is doing better, I am sorry I didnt send him a card,

I deleted the message accidently before I wrote the address. You are all in my

thoughts and prayers.

Sandy

Stress and fatigue

Hi All:

I usually don't have to much to offer regarding PLS, but I do want to

share the following with all of you.

As most of you know I have had PLS for probably 35 years, only diagnosed

in 1986. I have learned how to control it, by not over doing and trying

to omit stress. Well this week has been really bad for me. I have been

extremely busy and I should listen to the old body to slow down, but

there are times when we don't. I had the stress of one of my best

friends, having a heart attack (and thanks all of you who sent him

cards, made him really perk up). Well yesterday (Friday) I didn't feel

all that great, but kept on plugging along, and last night after supper

I started to feel light headed, super tired, just plain out of it. I

laid down at 6:00 PM, woke up at 9 with a severe headache. During the

night my legs started to cramp up, had severe spasticity in both legs

and arms, could imagine what was going on. Then I realize I had missed

two of my Baclofan doses. I take it 3 times a day. I had slept right

thru till 9:00am. Poor , he was so worried. I am feeling a little

better this morning, but have a long way to go, so it's all R & R today.

So I just wanted to share this all with you. The funny part of the

whole thing, is Thursday I went to the doctor's (my family doctor) to

get the results of an army of tests I had, and he said I was really

doing well, and he was very pleased!!!!

My fried Jimmy is doing better, but he has a long road ahead of him, but

thanks again for the cards. God Bless!

Rita

Love & Hugs

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Hi my name is June and my husband Charlie Gray has a prescription of

Baclofen, but doesn't take it regularly and his legs are always in spasms or

jumping

certain times so should he stay on Baclofen 3 x a day????? He takes Mirapex,

vicodan, valium as needed. Thanks, June

[Guest guest]

Hi Rita:

Sorry to hear you weren't well but it sounds like it might have been

compounded by your missing your Baclofen.

Glad to hear you are feeling some better and also glad to hear Jimmy is

making some progress. Take care my friend and take it easy for a few days.

Jo.

Stress and fatigue

> Hi All:

>

> I usually don't have to much to offer regarding PLS, but I do want to

> share the following with all of you.

>

> As most of you know I have had PLS for probably 35 years, only diagnosed

> in 1986. I have learned how to control it, by not over doing and trying

> to omit stress. Well this week has been really bad for me. I have been

> extremely busy and I should listen to the old body to slow down, but

> there are times when we don't. I had the stress of one of my best

> friends, having a heart attack (and thanks all of you who sent him

> cards, made him really perk up). Well yesterday (Friday) I didn't feel

> all that great, but kept on plugging along, and last night after supper

> I started to feel light headed, super tired, just plain out of it. I

> laid down at 6:00 PM, woke up at 9 with a severe headache. During the

> night my legs started to cramp up, had severe spasticity in both legs

> and arms, could imagine what was going on. Then I realize I had missed

> two of my Baclofan doses. I take it 3 times a day. I had slept right

> thru till 9:00am. Poor , he was so worried. I am feeling a little

> better this morning, but have a long way to go, so it's all R & R today.

> So I just wanted to share this all with you. The funny part of the

> whole thing, is Thursday I went to the doctor's (my family doctor) to

> get the results of an army of tests I had, and he said I was really

> doing well, and he was very pleased!!!!

>

> My fried Jimmy is doing better, but he has a long road ahead of him, but

> thanks again for the cards. God Bless!

>

> Rita

>

> Love & Hugs

>

>

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed because

> of them.

>

>

>

>

>

>

[Guest guest]

Thanks Jo for your kind words.

Rita

Love & Hugs

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

---Rita, I am so glad you are feeling better. I too have been busy

and started feeling bad legs hurting just like you, then I discover

that I haden't taken a baclofen. I don't think I ever forgot two.

That would have been the pits, like you described. Carolyn In PLS-

FRIENDS , mamadee1@w... wrote:

> Hi All:

>

> I usually don't have to much to offer regarding PLS, but I do want

to

> share the following with all of you.

>

> As most of you know I have had PLS for probably 35 years, only

diagnosed

> in 1986. I have learned how to control it, by not over doing and

trying

> to omit stress. Well this week has been really bad for me. I have

been

> extremely busy and I should listen to the old body to slow down,

but

> there are times when we don't. I had the stress of one of my best

> friends, having a heart attack (and thanks all of you who sent him

> cards, made him really perk up). Well yesterday (Friday) I didn't

feel

> all that great, but kept on plugging along, and last night after

supper

> I started to feel light headed, super tired, just plain out of

it. I

> laid down at 6:00 PM, woke up at 9 with a severe headache. During

the

> night my legs started to cramp up, had severe spasticity in both

legs

> and arms, could imagine what was going on. Then I realize I had

missed

> two of my Baclofan doses. I take it 3 times a day. I had slept

right

> thru till 9:00am. Poor , he was so worried. I am feeling a

little

> better this morning, but have a long way to go, so it's all R & R

today.

> So I just wanted to share this all with you. The funny part of the

> whole thing, is Thursday I went to the doctor's (my family

doctor) to

> get the results of an army of tests I had, and he said I was really

> doing well, and he was very pleased!!!!

>

> My fried Jimmy is doing better, but he has a long road ahead of

him, but

> thanks again for the cards. God Bless!

>

> Rita

>

> Love & Hugs

>

>

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed

because

> of them.

[Guest guest]

How true this is. As most of you know I went to court Tues. I was

intending to separate from my husband of 32 years. I chickened out

because I have progressed so fast lately.

I settled for a will leaving my half of everything to my children.

Lee can live in the house until he dies or buys out our childrens

half. I am, at least, half-way at peace now.

Anyway, the next day I fell flat on my face. I almost knocked out my

front tooth but the dentist twisted it back into place. We will wait

and see if I need a root canal later. The tooth beside of it will

need to be rebuilt (if I can keep it).

I blacked out several times as I craweled to the phone. Lee was home

in no time and was visibly very upset.

The dentist will work on my tooth Wed. in the meantime he put me on

dexamethasone (anti-inflammatory drug) and clindamycine (used for

serious infections). Please pray for me that I might keep my teeth

and my will will work out like I want it to.

I have a black chin that looks like a beard and a big lip but other

than that I'm fine.

Be careful and don't get stressed. It's not worth it and besides I

want us to all be able to have one last get together. I want it to

be a dance that we can all participate in. Just keep Ronnie away

from me.

and Mike ... you can keep the first place spot, I don't want to

participate in any more falls.

Donna

> Hi All:

>

> I usually don't have to much to offer regarding PLS, but I do want

to

> share the following with all of you.

>

> As most of you know I have had PLS for probably 35 years, only

diagnosed

> in 1986. I have learned how to control it, by not over doing and

trying

> to omit stress. Well this week has been really bad for me. I have

been

> extremely busy and I should listen to the old body to slow down, but

> there are times when we don't. I had the stress of one of my best

> friends, having a heart attack (and thanks all of you who sent him

> cards, made him really perk up). Well yesterday (Friday) I didn't

feel

> all that great, but kept on plugging along, and last night after

supper

> I started to feel light headed, super tired, just plain out of it.

I

> laid down at 6:00 PM, woke up at 9 with a severe headache. During

the

> night my legs started to cramp up, had severe spasticity in both

legs

> and arms, could imagine what was going on. Then I realize I had

missed

> two of my Baclofan doses. I take it 3 times a day. I had slept

right

> thru till 9:00am. Poor , he was so worried. I am feeling a

little

> better this morning, but have a long way to go, so it's all R & R

today.

> So I just wanted to share this all with you. The funny part of the

> whole thing, is Thursday I went to the doctor's (my family doctor)

to

> get the results of an army of tests I had, and he said I was really

> doing well, and he was very pleased!!!!

>

> My fried Jimmy is doing better, but he has a long road ahead of

him, but

> thanks again for the cards. God Bless!

>

> Rita

>

> Love & Hugs

>

>

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed

because

> of them.

[Guest guest]

June:

I am no doctor, but I can tell you that I have been on Baclofan since

1986, and have forgot to take (1) on occasion, but never (2). I will

never ever do that again. I always listen to my doctor, and that's how I

make my decision.

Rita

Love & Hugs

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Rita, thanks for the e-mail - I will have my husband take his Baclofen and I

will get in touch with Dr. Greer at Shands and see how often for him to take

it. He takes so much at night to help him sleep that I worry about him

falling when he has to get up - get in wheelchair and walk the rails in our

hallway

to get his legs to stop jumping so we will try the Baclofen. God Bless

June bug

[Guest guest]

Thanks, and I am always checking to see what all ya'll are doing so I can

relay it to my husband. Love to all of you June bug

[Guest guest]

Thanks for e-mailing me back and yes I will check with his family physician

and also Dr. Greer at Shands Hospital when we go June 3rd about the baclofen.

Love june

[Guest guest]

Thanks, I did and I am hoping that with him taking his baclofen he will do

better with the legs jumping. Thanks, June

[Guest guest]

Donna,

You poor thing, you sure had a horrible day.

I hope and pray that you can get your teeth fixed, you have to thank your lucky

stars that you didnt seriously hurt yourself, not that it wasnt bad enough.

I am glad that he will still be living with you, atleast you will have the

comfort of knowing someone is there for you.

I hope tomarrow brings you a better day. Your buddy, Sandy

Re: Stress and fatigue

How true this is. As most of you know I went to court Tues. I was

intending to separate from my husband of 32 years. I chickened out

because I have progressed so fast lately.

I settled for a will leaving my half of everything to my children.

Lee can live in the house until he dies or buys out our childrens

half. I am, at least, half-way at peace now.

Anyway, the next day I fell flat on my face. I almost knocked out my

front tooth but the dentist twisted it back into place. We will wait

and see if I need a root canal later. The tooth beside of it will

need to be rebuilt (if I can keep it).

I blacked out several times as I craweled to the phone. Lee was home

in no time and was visibly very upset.

The dentist will work on my tooth Wed. in the meantime he put me on

dexamethasone (anti-inflammatory drug) and clindamycine (used for

serious infections). Please pray for me that I might keep my teeth

and my will will work out like I want it to.

I have a black chin that looks like a beard and a big lip but other

than that I'm fine.

Be careful and don't get stressed. It's not worth it and besides I

want us to all be able to have one last get together. I want it to

be a dance that we can all participate in. Just keep Ronnie away

from me.

and Mike ... you can keep the first place spot, I don't want to

participate in any more falls.

Donna

> Hi All:

>

> I usually don't have to much to offer regarding PLS, but I do want

to

> share the following with all of you.

>

> As most of you know I have had PLS for probably 35 years, only

diagnosed

> in 1986. I have learned how to control it, by not over doing and

trying

> to omit stress. Well this week has been really bad for me. I have

been

> extremely busy and I should listen to the old body to slow down, but

> there are times when we don't. I had the stress of one of my best

> friends, having a heart attack (and thanks all of you who sent him

> cards, made him really perk up). Well yesterday (Friday) I didn't

feel

> all that great, but kept on plugging along, and last night after

supper

> I started to feel light headed, super tired, just plain out of it.

I

> laid down at 6:00 PM, woke up at 9 with a severe headache. During

the

> night my legs started to cramp up, had severe spasticity in both

legs

> and arms, could imagine what was going on. Then I realize I had

missed

> two of my Baclofan doses. I take it 3 times a day. I had slept

right

> thru till 9:00am. Poor , he was so worried. I am feeling a

little

> better this morning, but have a long way to go, so it's all R & R

today.

> So I just wanted to share this all with you. The funny part of the

> whole thing, is Thursday I went to the doctor's (my family doctor)

to

> get the results of an army of tests I had, and he said I was really

> doing well, and he was very pleased!!!!

>

> My fried Jimmy is doing better, but he has a long road ahead of

him, but

> thanks again for the cards. God Bless!

>

> Rita

>

> Love & Hugs

>

>

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed

because

> of them.

[Guest guest]

Hi June,

I myself find that if I miss a dose of my Baclofen I have real good spasms. I am

on 10mg in a.m 1 at noon 1 dinner time and 40mg at bed time. I dont take any of

the other meds that you mentioned so I cant help you there. If your hubby

Charlie is just forgetting to take his meds, they do make timers to remind

people to take them, I beleive I saw it at our Walmart pharmacy.

What does his doctor say?

June I would like to welcome you to this wonderful group of friends, please feel

free to ask any questions and we will try to help as much as we possibly can.

Take care, Sandy

Re: Stress and fatigue

Hi my name is June and my husband Charlie Gray has a prescription of

Baclofen, but doesn't take it regularly and his legs are always in spasms or

jumping

certain times so should he stay on Baclofen 3 x a day????? He takes Mirapex,

vicodan, valium as needed. Thanks, June

[Guest guest]

Hi Donna:

Am so sorry to hear about your falling and loosening your tooth.

Hopefully it can be fixed.

Am also sorry to hear of the stressful situation you are in as I for one

am aware of what stress can do to one's health. All we can do is try not to

let the stress get to us but that isn't always possible.

My thoughts are with you and MAY WE ALL DANCE SOON. My goal is to one of

these days attend a Conference or Connection. The stress of this disease

would be much harder to deal with if it wasn't for this wonderful group and

it would be great to meet some of you in person. Of course that will have

to wait until DALE IS BACK ON HIS FEET!

Take care Donna.

Jo.

Re: Stress and fatigue

> How true this is. As most of you know I went to court Tues. I was

> intending to separate from my husband of 32 years. I chickened out

> because I have progressed so fast lately.

> I settled for a will leaving my half of everything to my children.

> Lee can live in the house until he dies or buys out our childrens

> half. I am, at least, half-way at peace now.

> Anyway, the next day I fell flat on my face. I almost knocked out my

> front tooth but the dentist twisted it back into place. We will wait

> and see if I need a root canal later. The tooth beside of it will

> need to be rebuilt (if I can keep it).

> I blacked out several times as I craweled to the phone. Lee was home

> in no time and was visibly very upset.

> The dentist will work on my tooth Wed. in the meantime he put me on

> dexamethasone (anti-inflammatory drug) and clindamycine (used for

> serious infections). Please pray for me that I might keep my teeth

> and my will will work out like I want it to.

> I have a black chin that looks like a beard and a big lip but other

> than that I'm fine.

> Be careful and don't get stressed. It's not worth it and besides I

> want us to all be able to have one last get together. I want it to

> be a dance that we can all participate in. Just keep Ronnie away

> from me.

> and Mike ... you can keep the first place spot, I don't want to

> participate in any more falls.

> Donna

>

>

> > Hi All:

> >

> > I usually don't have to much to offer regarding PLS, but I do want

> to

> > share the following with all of you.

> >

> > As most of you know I have had PLS for probably 35 years, only

> diagnosed

> > in 1986. I have learned how to control it, by not over doing and

> trying

> > to omit stress. Well this week has been really bad for me. I have

> been

> > extremely busy and I should listen to the old body to slow down, but

> > there are times when we don't. I had the stress of one of my best

> > friends, having a heart attack (and thanks all of you who sent him

> > cards, made him really perk up). Well yesterday (Friday) I didn't

> feel

> > all that great, but kept on plugging along, and last night after

> supper

> > I started to feel light headed, super tired, just plain out of it.

> I

> > laid down at 6:00 PM, woke up at 9 with a severe headache. During

> the

> > night my legs started to cramp up, had severe spasticity in both

> legs

> > and arms, could imagine what was going on. Then I realize I had

> missed

> > two of my Baclofan doses. I take it 3 times a day. I had slept

> right

> > thru till 9:00am. Poor , he was so worried. I am feeling a

> little

> > better this morning, but have a long way to go, so it's all R & R

> today.

> > So I just wanted to share this all with you. The funny part of the

> > whole thing, is Thursday I went to the doctor's (my family doctor)

> to

> > get the results of an army of tests I had, and he said I was really

> > doing well, and he was very pleased!!!!

> >

> > My fried Jimmy is doing better, but he has a long road ahead of

> him, but

> > thanks again for the cards. God Bless!

> >

> > Rita

> >

> > Love & Hugs

> >

> >

> >

> > *************************************

> > Some people succeed in spite of their handicap. Others succeed

> because

> > of them.

>

>

>

>

>

>

[Guest guest]

Hi June,

Welcome to the PLS group. I have found some of the most wonderful

people I have ever known here. I know you will soon learn them all

because they will jump in there to extend a hand to you.

You said Charlie didn't take his baclofen like he should. The

medicine is to help with the spasms. You need to read Rita's post (a

page back) on what happened to her when she missed taking her

baclofen.

Take care and welcome again,

Donna

> Hi my name is June and my husband Charlie Gray has a prescription

of

> Baclofen, but doesn't take it regularly and his legs are always in

spasms or jumping

> certain times so should he stay on Baclofen 3 x a day????? He

takes Mirapex,

> vicodan, valium as needed. Thanks, June

>

>

>

[Guest guest]

Welcome June, you are in the right place to find answers. Love the June

Bug....Jeannie/N.J.

Re: Stress and fatigue

Rita, thanks for the e-mail - I will have my husband take his Baclofen and I

will get in touch with Dr. Greer at Shands and see how often for him to take

it. He takes so much at night to help him sleep that I worry about him

falling when he has to get up - get in wheelchair and walk the rails in our

hallway

to get his legs to stop jumping so we will try the Baclofen. God Bless

June bug

[Guest guest]

Hi June

Being a 'retired' pharmaceutical rep I can field that question.

Whether we take baclofen or Zanaflex we must take it continuously.

The actual desired effect doesn't start until the body is used to a

given amount in the blood stream. That is also when you start

tolerating the sleepiness better. If I am even 1 hour off 'pill

time' my speech gets slurry and restricted and my left leg stiffens.

If I forget the nighttime dose my legs are kicking all over the bed

with automatic reflex activation and spasms as well.

Hope that helps

Eva in WV

> Hi my name is June and my husband Charlie Gray has a prescription

of

> Baclofen, but doesn't take it regularly and his legs are always in

spasms or jumping

> certain times so should he stay on Baclofen 3 x a day????? He

takes Mirapex,

> vicodan, valium as needed. Thanks, June

>

>

>

[Guest guest]

June:

Your husbands name sounds so familiar, was he an ambassador for the

United States at one time?

Rita

Love & Hugs

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Rita, no but thank you, he is a retired Bureau Chief for the State of Florida

and is one of the most knowledgeable " person " I have ever known that knows so

much about the laws of insurance and all about insurance. He still is able

to be a consultant for a client in New York at this time which I am glad he is

involved or occupied with. He served the State of Florida Insurance Dept. for

35 years and served under 8 Insurance Commissioners but anyway we are just

taking each day as it comes. He played Football and Baseball with some of the

great pro's such as Yale Lary, Haywood Sullivan, Bubba McGowan and others so he

has had some fun, so let us all just keep on keeping on and Rita and others I

hope that a miracle will happen for all of ya'll. God Bless. June bug

[Guest guest]

Thanks so much Eva, I will keep Charlie right on time and see what develops.

Thanks soooooo much. Love June bug

[Guest guest]

Ms. Rita, no I don't know where that is, I am so dumb when it comes to

Islands and cities, but we do not travel much anymore since he is retired, but

its

not him. thanks dear. June

[Guest guest]

June:

Why I asked, years ago I received a PLS Pen Pal, who last e was Gray,

and was an ambassaodor to the ambassador Island. Now that I think of

it, his name was Bruce Gray. R., can you help jog my memory?

Rita

Love & Hugs

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

June, it's late and I am tired,I meant to say Figi Island.

Rita

Love & Hugs

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Hi Donna,

Very sorry to hear how your marriage ended up. Don't know how much was

due to the PLS but that certainly puts a big strain on most marriages.

Falls can be a real pain (literally and figuratively). I certainly hope

that your teeth can be saved without a lot of drama and wish you all the

best.

rosestone3 wrote:

> How true this is. As most of you know I went to court Tues. I was

> intending to separate from my husband of 32 years. I chickened out

> because I have progressed so fast lately.

> I settled for a will leaving my half of everything to my children.

> Lee can live in the house until he dies or buys out our childrens

> half. I am, at least, half-way at peace now.

> Anyway, the next day I fell flat on my face. I almost knocked out my

> front tooth but the dentist twisted it back into place. We will wait

> and see if I need a root canal later. The tooth beside of it will

> need to be rebuilt (if I can keep it).

> I blacked out several times as I craweled to the phone. Lee was home

> in no time and was visibly very upset.

> The dentist will work on my tooth Wed. in the meantime he put me on

> dexamethasone (anti-inflammatory drug) and clindamycine (used for

> serious infections). Please pray for me that I might keep my teeth

> and my will will work out like I want it to.

> I have a black chin that looks like a beard and a big lip but other

> than that I'm fine.

> Be careful and don't get stressed. It's not worth it and besides I

> want us to all be able to have one last get together. I want it to

> be a dance that we can all participate in. Just keep Ronnie away

> from me.

> and Mike ... you can keep the first place spot, I don't want to

> participate in any more falls.

> Donna

[Guest guest]

Mrs. Gray,

I too have PLS and have tried baclofen but zNflex seemed to work better for me.

However, I also taks klonipin, prozac and a few others for allergy, etc.

I responded to this directly to you, but maybe it didn't make it.

In reading your other postings, sounds like Mr Gray goes through the same

challenges as I do. My poor ole wife, Shirlon, probably wants to give up on me

sometimes, but she's a trooper and hangs in there.

We too retired from the State, I, from the Game and Fish and her, Dept. of

Highway Safety. I worked with, and knew, many of your co-workers, Ed ,

Vic Cullars, Bill Barker and others. I almost came over to FDLE in about 1995

or 1996 or so, but backed out. I was gonna take a job in communications when

Jimmie retired.

We would love to meet up with you folks someday, maybe in Tally. We still go to

our Doctor's there, even though we live in Chipley now. We moved here because

my Daughter lives here and her Son (my main man) has Muscular Dystrophy. She

had two but we lost the oldest two years ago this month. He too had MD.

Anyway, hope none of my responses are offensive. I really am clutching to hope

as many of us are.

I read most all posts, but respond little. I need to get more active I suppose.

I'll stop for now. Please say hello to Mr. Charlie for me and perhaps we can

email also.

Thanks

Meacham-Chipley, Fl

Oh yes, I'm 61 and Shirlon is 63

Re: Stress and fatigue

Hi my name is June and my husband Charlie Gray has a prescription of

Baclofen, but doesn't take it regularly and his legs are always in spasms or

jumping

certain times so should he stay on Baclofen 3 x a day????? He takes Mirapex,

vicodan, valium as needed. Thanks, June