Re: ideopathic vs congental/genetic

[Guest guest]

> Welcome Ed. It is my understanding that if you child has no other

> disabilities or syndromes that can be connected to CF than it is

> idiopathic. It doesn't

A side note to this though. When was born, they labeled her severe

club feet as ideopathic. Nobody thought to link the clubfeet to her dad's

hands, which were contracted at birth and are still stiff. 's hands

also looked " normal " except that she has her fathers wide nuckles and

crooked thumbs. Now, we have Leah, who was also born with severe clubfeet

and her hands have some ulnar deviation and the same wide knuckle to palm

width as her mother and grandfather. The ortho diagnosed her with

arthrogryposis, and agreed that has it too. The point I'm making

is to check out all the extremities carefully, and look for signs of

arthrogryposis. We've gone from believing there was little/no chance of

passing on the clubfeet to our children, to a 50/50 chance.

have a good week,

Rob, and Leah (3.5 wks old) Graham

Heartland Images

Great Bend, KS

http://www.heartland-images.com