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Thanks Alice for the help with my biopsy results. I was able to get

some information from the links you sent. I am still unclear about

some of it. It looks like subsarcolemmal mitochonrial aggregates

are associate with or are sometimes what ragged red fibers are

called. My biopsy says I do not have rrf but have an increase in

the 1st. I called to stanford and hopefully they will tell me

something. I am tired of looking like so many others and am

wrapping up my tests to get on with treatment and a little normalcy

I hope.

I always learn so much from you, thanks again

Oh, by the way I posted to this before but was bounced. I was

previously diagnosed with Arthritis, Stress, autoimmune disease,

Charcot-marie-tooth, was told by one neuro I " just use my body wrong "

It wasn't until I started seeing my daughters neuro that we got on

the right track.

Anne

Anne

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