Re: wired but tired - ? for

[Guest guest]

As far as the possibility of being hypo (I wish I could know for

sure) I can't tolerate thyroid hormone.

Hello

Have you ever been tested for hypoT? If so what were the results?

If you've time could you please elaborate on why you think you can't

tolerate thyroid. I seem to be having a similar problem.

BTW I've gained a lot from all your posts lately. Thanks ever so much.

[Guest guest]

I have had extensive thyroid testing done at many different times. I have

antibodies showing hashi's but they are very low. My TSH is never over .45. My

gyno tells me I am closer to hyper than hypo, but of course, on this list, TSH

means nothing. My Free T3 and Free T4 are always within range, but of course

that means nothing too. My Free T3 were on the low end of the reference range a

couple of months ago, but I realized that test was done while I was doing a

prednisolone taper and I know that large doses of pred will affect t4 conversion

to t3. Before that, my frees were within range so I don't know what the heck to

think.

Re: wired but tired - ? for

As far as the possibility of being hypo (I wish I could know for

sure) I can't tolerate thyroid hormone.

Hello

Have you ever been tested for hypoT? If so what were the results?

If you've time could you please elaborate on why you think you can't

tolerate thyroid. I seem to be having a similar problem.

BTW I've gained a lot from all your posts lately. Thanks ever so much.

[Guest guest]

Oh and you wanted me to elaborate on why I get all revved up when I try to take

thyroid hormone. Well, since only 1/8 of a grain still does this to me, and

since I am on what I consider to be enough cortisol now, and since I understand

that even a person with normal thyroid function should be able to tolerate up to

a certain amount of thyroid hormone without side effects, then I can only

summize that maybe my gyno is right and I'm closer to hyper than hypo so this is

why this happens. I don't know what else to think. I tried taking 1/8 of a

grain a few days ago and felt wired all day and I kept checking my pulse which

is normally between 70-80 or so and it went up to 90, granted, I realize that's

not dangerous but it was just much too uncomfortable. I just can't function

like that.

Re: wired but tired - ? for

As far as the possibility of being hypo (I wish I could know for

sure) I can't tolerate thyroid hormone.

Hello

Have you ever been tested for hypoT? If so what were the results?

If you've time could you please elaborate on why you think you can't

tolerate thyroid. I seem to be having a similar problem.

BTW I've gained a lot from all your posts lately. Thanks ever so much.

[Guest guest]

I will tell you my experience, if I may. I have the same reaction as

when I take any kind of thyroid hormone, even the thyrotrophin by Standard

Process Labs. Val has helped me to realize that I need to get temps stabilized

first and test for low ferritin before trying to take thyroid. It is very

difficult, as I am extremely hypothyroid, as I showed my labs to Val and she

confirmed it as well I'm praying temps stabilize soon, as it's not safe to stay

hypo. I am much improved,mentally, though on the Isocort to build adrenals, but

that all goes out the window when I try to take thyroid.

Best Wishes,

Pat

Re: wired but tired - ? for

As far as the possibility of being hypo (I wish I could know for

sure) I can't tolerate thyroid hormone.

Hello

Have you ever been tested for hypoT? If so what were the results?

If you've time could you please elaborate on why you think you can't

tolerate thyroid. I seem to be having a similar problem.

BTW I've gained a lot from all your posts lately. Thanks ever so much.

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11:59 AM

[Guest guest]

I have sen people thta had to eb on HIGH (30-50MG) doses of HC for a

coupe MONTHS steadily before they had enough cortiosl reserves to be

able to use thyroid and then they had to start VERY slowly. But when the

reserves start to build (cortisol reserves are cortisol that is boiund

in the blood and what is totally gone with AF past stage 4-5) I have not

seen ANYONE that could bnot tolerate slow raises of thyroid. With

's being that sensitized ot Armour, she should also have RT3

tested, just to rule out toxicity as well.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

,

First, I am not sure you are on enough cortisol but lets say you are.

Depending on how long you have suffered, it can take MONTHS or longer for

your adrenals to be strong enough to tolerate thyroid meds. Not tolerating

thyroid meds when being hypothyroid is actually fairly common. Seriously, I

am dealing with similar issues and will see if I can introduce thyroid meds

yet as I have not been able to in the past. However, in reading your posts

you are not hyper, you have adrenal symptoms. It is very common for the two

to be confused. I know I confused them for years and could not figure out

why I was both hypo and hyper, even though I knew I had adrenal issues I

didn't get the whole connection until Val explained.

Hang in there. It will get better. Are you taking other things to support

your thyroid like Tyrosine since you cannot tolerate thyroid meds?

Cheri

Re: Re: wired but tired - ? for

Oh and you wanted me to elaborate on why I get all revved up when I try to

take thyroid hormone. Well, since only 1/8 of a grain still does this to me,

and since I am on what I consider to be enough cortisol now, and since I

understand that even a person with normal thyroid function should be able to

tolerate up to a certain amount of thyroid hormone without side effects,

then I can only summize that maybe my gyno is right and I'm closer to hyper

than hypo so this is why this happens. I don't know what else to think. I

tried taking 1/8 of a grain a few days ago and felt wired all day and I kept

checking my pulse which is normally between 70-80 or so and it went up to

90, granted, I realize that's not dangerous but it was just much too

uncomfortable. I just can't function like that.

.

[Guest guest]

I've been on steroids for two years. My beau took me over the weekend to the

Vitamin Shoppe and I picked up Dr. Teitelbaum's " Energy Revitalization Formula "

which he has formulated specifically to help the thyroid work better. It does

contain the Tyrosine. I'll see how this stuff works. You are supposed to feel

better in a couple of weeks, but it's expensive. $45 for one month supply. It

comes in a powder you mix with water, berry flavored and you take a capsule of B

vitamins with it.

Re: Re: wired but tired - ? for

Oh and you wanted me to elaborate on why I get all revved up when I try to

take thyroid hormone. Well, since only 1/8 of a grain still does this to me,

and since I am on what I consider to be enough cortisol now, and since I

understand that even a person with normal thyroid function should be able to

tolerate up to a certain amount of thyroid hormone without side effects,

then I can only summize that maybe my gyno is right and I'm closer to hyper

than hypo so this is why this happens. I don't know what else to think. I

tried taking 1/8 of a grain a few days ago and felt wired all day and I kept

checking my pulse which is normally between 70-80 or so and it went up to

90, granted, I realize that's not dangerous but it was just much too

uncomfortable. I just can't function like that.

.

[Guest guest]

,

I've been following your posts with interest.

I also could not tolerate even small doses of Armour, had the same

reaction as you. I only used it 4 days and quit. I'm not currently

taking anything.

Have you been tested for TSI (thyroid stimulating immunoglobulins)?

If these are over 2%, you are considered positive for Grave's.

I had mine tested and I was 102%, so this could be one of the reasons

I cannot tolerate it.

I agree that low ferritin is a contributing factor (mine was 23) as

low iron increases the adrenergic response resulting in an increase in

catecholamines.

But I have to say the thing that has made the biggest difference is

using Estradiol. It has calmed me down, helped me to sleep. I found

progesterone cream was contributing to the hyperness, anxiety, and

increased bp.

I do hope you are able to find the answer for this. You must be very

frustrated

>

> Oh and you wanted me to elaborate on why I get all revved up when I

try to take thyroid hormone. Well, since only 1/8 of a grain still

does this to me, and since I am on what I consider to be enough

cortisol now, and since I understand that even a person with normal

thyroid function should be able to tolerate up to a certain amount of

thyroid hormone without side effects, then I can only summize that

maybe my gyno is right and I'm closer to hyper than hypo so this is

why this happens. I don't know what else to think. I tried taking

1/8 of a grain a few days ago and felt wired all day and I kept

checking my pulse which is normally between 70-80 or so and it went up

to 90, granted, I realize that's not dangerous but it was just much

too uncomfortable. I just can't function like that.

>

>

>

[Guest guest]

what is the lowest acceptable level of ferritin?

bw

Nil

----- Original Message -----

From: T

To:

[Guest guest]

Ferritin for women should be between 70-90 and for men higher but I am

not certain the range for men.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

>

> I have had extensive thyroid testing done at many different times.

Have you ever had a test to show what is going on in the tissues like

the 24 hour urine test?

[Guest guest]

>

> Oh and you wanted me to elaborate ...

, I really do appreciate your very full answers to my original

question about not tolerating thyroid. Thanks so much. I'll be reading

all your future posts, along with everyone elses, with great

anticipation in the hope of fitting a few more pieces together. All

this sharing is so good.

[Guest guest]

oh my! mine is 26 and I could not tolerate iron supplements I tried. using only

molasses. it helped a bit but I could not take a second test yet.which

supplement is most tolerable?

thanks val

Nil

Re: Re: wired but tired - ? for

Ferritin for women should be between 70-90 and for men higher but I am

not certain the range for men.

--

[Guest guest]

>

> Ferritin for women should be between 70-90 and for men higher but I

am

> not certain the range for men.

Does that apply to postmenopausal women as well Val? I was told by the

doc that it wouldn't be a problem for me, so not to bother testing.

Thanks.

[Guest guest]

>

> I will tell you my experience, if I may.

Just wanted to say thank you for doing that Pat. More to think about!

[Guest guest]

Some people have good results with Geritol with Ferrex.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

>>Does that apply to postmenopausal women as well Val? I was told by the

doc that it wouldn't be a problem for me, so not to bother testing.<<

YES it ap;lies to all women and you can have low ferritin form other things

besides periods as men have it too! HYPO can cause low ferritin.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Thanks Val.

Nil

Re: Re: wired but tired - ? for

Some people have good results with Geritol with Ferrex.

[Guest guest]

Interesting because I had a catecholamines test done last year when I was quite

wired and I have very high levels of catecholamines which tend to go along more

with overactive thyroid activity than underactive. I've had some horrific

reactions to antidepressants that literally made me almost manic and very highly

agitated. Maybe I am closer to hyperT than Hypo, I don't know anymore. I do

know that compared to you, I have very high estrogen (am perimenopausal) and

don't need anymore.

Re: wired but tired - ? for

,

I've been following your posts with interest.

I also could not tolerate even small doses of Armour, had the same

reaction as you. I only used it 4 days and quit. I'm not currently

taking anything.

Have you been tested for TSI (thyroid stimulating immunoglobulins)?

If these are over 2%, you are considered positive for Grave's.

I had mine tested and I was 102%, so this could be one of the reasons

I cannot tolerate it.

I agree that low ferritin is a contributing factor (mine was 23) as

low iron increases the adrenergic response resulting in an increase in

catecholamines.

But I have to say the thing that has made the biggest difference is

using Estradiol. It has calmed me down, helped me to sleep. I found

progesterone cream was contributing to the hyperness, anxiety, and

increased bp.

I do hope you are able to find the answer for this. You must be very

frustrated

>

> Oh and you wanted me to elaborate on why I get all revved up when I

try to take thyroid hormone. Well, since only 1/8 of a grain still

does this to me, and since I am on what I consider to be enough

cortisol now, and since I understand that even a person with normal

thyroid function should be able to tolerate up to a certain amount of

thyroid hormone without side effects, then I can only summize that

maybe my gyno is right and I'm closer to hyper than hypo so this is

why this happens. I don't know what else to think. I tried taking

1/8 of a grain a few days ago and felt wired all day and I kept

checking my pulse which is normally between 70-80 or so and it went up

to 90, granted, I realize that's not dangerous but it was just much

too uncomfortable. I just can't function like that.

>

>

>

[Guest guest]

,

Have you been tested for a pheochromocytoma? It's extra adrenal

tissue (tumor) that can be on the adrenals or migrate elsewhere, and

it will secrete high levels of catecholamines. The definitive test

for this is the plasma free metanephrine test.

>

> Interesting because I had a catecholamines test done last year when

I was quite wired and I have very high levels of catecholamines which

tend to go along more with overactive thyroid activity than

underactive. I've had some horrific reactions to antidepressants that

literally made me almost manic and very highly agitated. Maybe I am

closer to hyperT than Hypo, I don't know anymore. I do know that

compared to you, I have very high estrogen (am perimenopausal) and

don't need anymore.

>

>

>

> --

[Guest guest]

No, I haven't been tested for that but I did have a CT of the adrenals recently

during my work-up. This was normal. Would this excess adrenal tissue (tumor)

likely have showed up on the CT if I had this?

Re: wired but tired - ? for

,

Have you been tested for a pheochromocytoma? It's extra adrenal

tissue (tumor) that can be on the adrenals or migrate elsewhere, and

it will secrete high levels of catecholamines. The definitive test

for this is the plasma free metanephrine test.

>

> Interesting because I had a catecholamines test done last year when

I was quite wired and I have very high levels of catecholamines which

tend to go along more with overactive thyroid activity than

underactive. I've had some horrific reactions to antidepressants that

literally made me almost manic and very highly agitated. Maybe I am

closer to hyperT than Hypo, I don't know anymore. I do know that

compared to you, I have very high estrogen (am perimenopausal) and

don't need anymore.

>

>

>

> --

[Guest guest]

I just googled this and I am doubtful that I have it since my blood pressure has

always been very low and is still on the lower side of normal even with full

dose of HC.

Thanks,

Re: wired but tired - ? for

,

Have you been tested for a pheochromocytoma? It's extra adrenal

tissue (tumor) that can be on the adrenals or migrate elsewhere, and

it will secrete high levels of catecholamines. The definitive test

for this is the plasma free metanephrine test.

>

> Interesting because I had a catecholamines test done last year when

I was quite wired and I have very high levels of catecholamines which

tend to go along more with overactive thyroid activity than

underactive. I've had some horrific reactions to antidepressants that

literally made me almost manic and very highly agitated. Maybe I am

closer to hyperT than Hypo, I don't know anymore. I do know that

compared to you, I have very high estrogen (am perimenopausal) and

don't need anymore.

>

>

>

> --

[Guest guest]

,

Sometimes the tumor can be so small it's almost impossible to detect

with imaging. And the extra adrenal tissue can migrate (kind of like

endometriosis) to other parts of the body. One woman had a pheo near

her thyroid!

That is why the plasma free metanephrine test is so important, as it

can detect the presence of a tumor that is undetectable by other means.

>

> No, I haven't been tested for that but I did have a CT of the

adrenals recently during my work-up. This was normal. Would this

excess adrenal tissue (tumor) likely have showed up on the CT if I had

this?

>

>

> Re: wired but tired - ? for

>

>

> ,

> Have you been tested for a pheochromocytoma?

[Guest guest]

-OK, I didn't know that. Usually the symptoms of pheo are paroxysmal

and intense, although some people do have ongoing bp problems with it

that is difficult to control even with bp meds.

Oh well, so much for that thought. But you might still want to get

your TSI done. I ordered mine through health check usa.

-- In NaturalThyroidHormonesADRENALS , " Gikas "

wrote:

>

> I just googled this and I am doubtful that I have it since my blood

pressure has always been very low and is still on the lower side of

normal even with full dose of HC.

>

> Thanks,

>

>

[Guest guest]

But wouldn't a person with this have high blood pressure?

Re: wired but tired - ? for

>

>

> ,

> Have you been tested for a pheochromocytoma?