Re: I'm in bits

[Guest guest]

Really to answer your question I have t ask some. DId you have any labs

for cortisol done before starting Pred? Have you checked your BP to see

if your cortiosl is low?

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

was actually thinking I can't put in another day of this.

I am sorry to hear you are going through such traumas.

Haven't been following this thread so cannot really comment on the meds.

side of things, just wanted to say that you have my love and support and to

remind you that when things are at their VERY worst, it is usually just as they

are about to improve, the darkest hour comes before dawn kind of thing.

So take it one day at a time and with Val's advice and the support of the

list (and hopefully some good medical care) you will be back on an even keel

before you know it.

Pse don't don't feel alone, there are hundreds of us here, maybe even more

these days, and we are all here for you.

Mo x

[Guest guest]

wits end with the medical establishment here in Ireland. he is afraid

because I'm not getting better and feels helpless and angry. Our

business needs me to drive sales and I've been almost an invalid for

the last 10 weeks

Again excuse my not knowing the details as I said earlier I just picked up

on this thread.

I am from Dublin by the way

I can understand how awful it must be for both of you and that you need to

get up on your feel as quickly as possible.

Who are you seeing, the endo at the hospital I think you saw and a GP.

Can you afford to go private because I know there is a Top Doc in Dublin, I

think he is called McGovern....

Hang on......... I'll see if I can find him for you..........

I found him and here is the link -

_http://www.thyroid-info.com/topdrs/ireland.htm_

(http://www.thyroid-info.com/topdrs/ireland.htm)

I don't know where you are in Ireland. He is in Blackrock on the outskirts

of Dublin if you are not familiar with the area. And I don't know if you can

afford him, you may even know about him already but he does come highly

recommended as you will see.

Mo

[Guest guest]

Thank you Mo, so nice to hear you are in Dublin. I am in Navan. I am

currently seeing Dr Diarmuid out of Beaumont private, he took

me into Bons Secour hosp for tests week before last.

Well another coincidence, I am FROM Dublin but live in Devon in the south

west of England BUT

when I lived in Dublin my family home was in - you guessed it - Beaumont!

I went to Beaumont School which is just before the left turn into the

hospital. There was no hospital there when I was a child, it has all changed

beyond

recognition now.

So I hope you get good results/information from these tests but sounds like

your adrenals are not getting enough support.

And they cannot test for that now that you are on adrenal meds but Val will

sort you out I am sure of it.

She knows more than most doctors.

Mo x

[Guest guest]

I hope with all my heart she can too xx

You better believe it sister !

Mo

[Guest guest]

I hate the way I feel right now and I don't want to deal with being alive

right now because it's too hard.

Oh , you too? I have felt on the edge of a breakdown in recent days,

last week. Just so many pressures coming from so many angles and how are our

poor suffering adrenals supposed to cope when things get so bad?

I took myself for hands-on healing at the local library on Friday lunchtime

and it helped enormously. So I am off to do the same again tomorrow. It is a

really useful local resource and I somehow manage to 'forget' all about until

I find myself in crisis.

Last week I just wanted to get on a plane and leave all my worries behind.

My version of wanting to hide under the duvet I suppose.

Is how you are feeling SAD related? I would guess you would have looked into

this by now if it was.

What do you think is causing the way you are feeling?

Mo

[Guest guest]

I believe it's without a doubt SAD

And you are taking Vitamin D ?

Would a blue light bulb help temporarily, the one's architects and graphic

designers use in their anglepose lamps?

I believe they are similar if not the same as natural light. And also, even

if it is cloudy, if you go outside you will get help by looking up at the sky

for a while several times a day. I read that somewhere.

Mo

[Guest guest]

Thanks for responding I was at the A & E most of yesterday because of

tremors and palpitations. To answer your questions no cortisol level

not checked before Pred, I was on Isocort and they wanted to ensure I

would be covered when they took me off it while they could do

testing. By BP can be a little low (was on Friday after 2 days of

increase Armour) but generally is fine but then its only been checked

since I've been on the Pred. I feel so mentally bad this morning, I

was actually thinking I can't put in another day of this. I've put in

a call to my gp and tried to get the endo but his line is busy. I'm

afraid to get thru anyway in case he tells me he can't help or its

all in my head. last nite hosp did free t4 which was 9.3 range is 9

to 19 and total t3 (insisted they would do free but only total got

done) which was .89 range is .9 to 2.4

I know this means I should take meds but afraid to as I'll get

headaches and palpitations again..don't know how this mess has

happened I was doing fine for the last 2 years. feeling hopeless.

>

> Really to answer your question I have t ask some. DId you have any

labs

> for cortisol done before starting Pred? Have you checked your BP to

see

> if your cortiosl is low?

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

>

[Guest guest]

Thanks so much Mo, it really meant an awful lot to read that. I'm in

tears at the moment because my partner and I have had words again, we

are business partners too and my not being able to work has put such

a huge strain on the business and therefore both of us. We are at our

wits end with the medical establishment here in Ireland. he is afraid

because I'm not getting better and feels helpless and angry. Our

business needs me to drive sales and I've been almost an invalid for

the last 10 weeks. We don't have much family support either.

>

> was actually thinking I can't put in another day of this.

>

> I am sorry to hear you are going through such traumas.

> Haven't been following this thread so cannot really comment on the

meds.

> side of things, just wanted to say that you have my love and

support and to

> remind you that when things are at their VERY worst, it is usually

just as they

> are about to improve, the darkest hour comes before dawn kind of

thing.

> So take it one day at a time and with Val's advice and the support

of the

> list (and hopefully some good medical care) you will be back on an

even keel

> before you know it.

> Pse don't don't feel alone, there are hundreds of us here, maybe

even more

> these days, and we are all here for you.

>

> Mo x

>

>

>

>

>

>

>

[Guest guest]

Thank you Mo, so nice to hear you are in Dublin. I am in Navan. I am

currently seeing Dr Diarmuid out of Beaumont private, he took

me into Bons Secour hosp for tests week before last. He was away last

week. he called my mobile 20 minutes ago and for some reason it

didn't ring so I missed him! Rang back and got his sec who said he'd

just left and would call later or tomorrow again, I told her not

acceptable tomorrow must be today. My partner called her again after

and said he wants to speak to him too. Said secretary sounded like

she was just fobbing him off..we'll see if he calls back today. I saw

Dr. Magovern in early '05 and he put me back on Armour after being

switched to eltroxin when i came home from the US in July '04. From

all the reading I'd done at that stage I had a hunch my adrenals were

shot and he had me do the Adrenal Stress index which showed complete

exhaustion..he started me on a host of vitamins and adrenal boosters

(22 different ones daily!) but after 6 weeks there was no difference

to my energy so he said next would be hydrocortisone.my local gp at

the time freaked me out about it said it was nuts etc and I had just

started to use Maca for PMS and read in higher doses it was great

adrenal/thyroid booster so I took that instead and it worked fab for

me for 18 months. At which point I switched to Isocort. Anyway I was

going to say I fell out with Magovern but it was really he who fell

out with me. His secretary was giving me advise about what to take

and not to take and I felt I wanted Dr M to confirm that. He ended up

acting bizarly saying I obviously had a personality conflicct with

her...total rubbish..it ended with him saying he couldn't continue to

treat me and I at least got him to write a local gp instructing that

I needed to be on Armour not eltroxin. I have since called him with

credit card in hand desperate for his intervention and he sent a

message back to me that more or less too much time has passed!! I

even got in touch last week with TUK and Lyn there said she would

call him for me but I have not heard anything back.

>

> Again excuse my not knowing the details as I said earlier I just

picked up

> on this thread.

> I am from Dublin by the way

> I can understand how awful it must be for both of you and that you

need to

> get up on your feel as quickly as possible.

> Who are you seeing, the endo at the hospital I think you saw and a

GP.

> Can you afford to go private because I know there is a Top Doc in

Dublin, I

> think he is called McGovern....

> Hang on......... I'll see if I can find him for you..........

> I found him and here is the link -

> _http://www.thyroid-info.com/topdrs/ireland.htm_

(http://www.thyroid-info.com/topdrs/ireland.htm)

> I don't know where you are in Ireland. He is in Blackrock on the

outskirts

> of Dublin if you are not familiar with the area. And I don't know

if you can

> afford him, you may even know about him already but he does come

highly

> recommended as you will see.

>

> Mo

>

>

>

>

>

>

>

[Guest guest]

Sorry I read so many posts can you opost how much Pred you are on again

and how you are taking it? A good place to start reading is in our files

section where you will learn the self tetss to see if your cortiosl is

near right. Tracking temps per www.drrind.com and BP sitting then rising

is two of the best means to know if oyu are taking ENOUGH steroid to

replace what your bopdy needs and I suspect you are not there yet.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Thanks Val, how do I check my BP at home? I have started doing temps

last week but am expecting period on Wed so according to Peatfield

it's not the right time to chart as it will be higher anyway at this

time?? I can tell you I decided to take 60 Armoour an hour ago after

being off it fri sat sun and I'm already felling dizzy from it. Any

idea what that could mean?

>

> Sorry I read so many posts can you opost how much Pred you are on

again

> and how you are taking it? A good place to start reading is in our

files

> section where you will learn the self tetss to see if your cortiosl

is

> near right. Tracking temps per www.drrind.com and BP sitting then

rising

> is two of the best means to know if oyu are taking ENOUGH steroid

to

> replace what your bopdy needs and I suspect you are not there yet.

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

>

[Guest guest]

>>I decided to take 60 Armoour an hour ago after

being off it fri sat sun and I'm already felling dizzy from it. Any

idea what that could mean?<<

It m4enas your adrenal support is not enough.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Sorry forgot to say: I am on 5mg prednisolone taking it around 9 or

10 am, on the advise of 1 doc, I took extra 5mg on fri at 5pm and did

feel much better friday night. Sat I took 10mg in the am and again

felt more 'normal' than I have for 2 months..head seemed so 'clear'

by 7 pm I was beginning to wane and feel abit nauseaus so I took

another 5mg (he had advised me to take 15mg all weekend, 10 am 5 pm)

It helped a bit but by 8 30 I started tremors again and nausea and

light headedness so Sunday just took 5mg in the am and tremors and

palpitations felt really bad by 3 pm so I went to doc on call who

sent me to A & E..for evaluation

> Sorry I read so many posts can you opost how much Pred you are on

again

> and how you are taking it? A good place to start reading is in our

files

> section where you will learn the self tetss to see if your cortiosl

is

> near right. Tracking temps per www.drrind.com and BP sitting then

rising

> is two of the best means to know if oyu are taking ENOUGH steroid

to

> replace what your bopdy needs and I suspect you are not there yet.

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

>

[Guest guest]

>>Sorry forgot to say: I am on 5mg prednisolone taking it around 9 or

10 am, on the advise of 1 doc, I took extra 5mg on fri at 5pm and did

feel much better friday night. Sat I took 10mg in the am and again

felt more 'normal' than I have for 2 months..head seemed so 'clear'

by 7 pm I was beginning to wane and feel abit nauseaus so I took

another 5mg (he had advised me to take 15mg all weekend, 10 am 5 pm)

It helped a bit but by 8 30 I started tremors again and nausea and

light headedness so Sunday just took 5mg in the am and tremors and

palpitations felt really bad by 3 pm so I went to doc on call who

sent me to A & E..for evaluation<<

Have you tried Hydrocortisone which is MUCH more easily regulated? Also I woudl

ask for smaller size tablets if you are to stay on the Pred as you need ot be

able to adjust it better. Then try 7.5mg in the AM and 2.5MG in the afternoon

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Thank you again Mo, I hope with all my heart she can too xx

>

> Well another coincidence, I am FROM Dublin but live in Devon in the

south

> west of England BUT

> when I lived in Dublin my family home was in - you guessed it -

Beaumont!

> I went to Beaumont School which is just before the left turn into

the

> hospital. There was no hospital there when I was a child, it has

all changed beyond

> recognition now.

> So I hope you get good results/information from these tests but

sounds like

> your adrenals are not getting enough support.

> And they cannot test for that now that you are on adrenal meds but

Val will

> sort you out I am sure of it.

> She knows more than most doctors.

>

> Mo x

>

>

>

>

>

>

>

[Guest guest]

Thank you so very much Val, I feel so much less alone than this morning. I hate

to say it but I really have been feeling quite suicidal. I have some hydroC, Dr

had me take 10mg am and 10mg pm for 2 days before I went into hosp so he

could do short synacten and all day cortisol curve (blood drawn every 2 hours

for 14 hours) the following 2 days without me being on any steroid and that way

it would be out of my system for the test. He did say potentially depending on

tests etc he would want to switch me to hydoC to be used before I have 'a dip'

in the day but not in the context of it being used so I can handle taking the

Armour..x

T wrote: >>Sorry forgot to say: I

am on 5mg prednisolone taking it around 9 or

10 am, on the advise of 1 doc, I took extra 5mg on fri at 5pm and did

feel much better friday night. Sat I took 10mg in the am and again

felt more 'normal' than I have for 2 months..head seemed so 'clear'

by 7 pm I was beginning to wane and feel abit nauseaus so I took

another 5mg (he had advised me to take 15mg all weekend, 10 am 5 pm)

It helped a bit but by 8 30 I started tremors again and nausea and

light headedness so Sunday just took 5mg in the am and tremors and

palpitations felt really bad by 3 pm so I went to doc on call who

sent me to A & E..for evaluation<<

Have you tried Hydrocortisone which is MUCH more easily regulated? Also I woudl

ask for smaller size tablets if you are to stay on the Pred as you need ot be

able to adjust it better. Then try 7.5mg in the AM and 2.5MG in the afternoon

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Have you done this testing yet? It will be VERY hard for you to do the

two days off steroid to do this and you MUST stop all thyroid whiel you

are trying to do this as that can cause an adreanl crisis in the state

oyur cortisl is in.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

You are not alone. I woke up this morning again with that horrible dread.

Everything is so dark and no sunshine and I just wanted to be dead or at least

stay in bed with the covers over my head until Spring. I hate the way I feel

right now and I don't want to deal with being alive right now because it's too

hard. We are all here for eachother.

Re: Re: I'm in bits

Thank you so very much Val, I feel so much less alone than this morning. I

hate to say it but I really have been feeling quite suicidal. I have some

hydroC, Dr had me take 10mg am and 10mg pm for 2 days before I went into

hosp so he could do short synacten and all day cortisol curve (blood drawn every

2 hours for 14 hours) the following 2 days without me being on any steroid and

that way it would be out of my system for the test. He did say potentially

depending on tests etc he would want to switch me to hydoC to be used before I

have 'a dip' in the day but not in the context of it being used so I can handle

taking the Armour..x

T wrote: >>Sorry forgot to say: I am on

5mg prednisolone taking it around 9 or

10 am, on the advise of 1 doc, I took extra 5mg on fri at 5pm and did

feel much better friday night. Sat I took 10mg in the am and again

felt more 'normal' than I have for 2 months..head seemed so 'clear'

by 7 pm I was beginning to wane and feel abit nauseaus so I took

another 5mg (he had advised me to take 15mg all weekend, 10 am 5 pm)

It helped a bit but by 8 30 I started tremors again and nausea and

light headedness so Sunday just took 5mg in the am and tremors and

palpitations felt really bad by 3 pm so I went to doc on call who

sent me to A & E..for evaluation<<

Have you tried Hydrocortisone which is MUCH more easily regulated? Also I

woudl ask for smaller size tablets if you are to stay on the Pred as you need ot

be able to adjust it better. Then try 7.5mg in the AM and 2.5MG in the afternoon

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Yes Val, I was in hospital for 5 days week before last. I was off

steroid for the 2 days but did continue to take 60mg Armour. I did feel

quite lousy by the end of the day..sick exhausted feeling, headache

despite being in bed all day but I had no tremors, they had gone away

when I was upd from 45mg Armour to 60 mg. except if I 'overdid it'

which was basically just trying to have a normal day..but really only

amounting to 2-3 hours of normal activity like emailing, returning a

phone call, wash the dishes..and then I'd have to lie down because of

the overwhelming sick/exhausted/can't relax feelings. I thought when I

wawas increased to 75mg it would be better again but instead got severe

shivering inside with tremors and headache.

>

> Have you done this testing yet? It will be VERY hard for you to do

the

> two days off steroid to do this and you MUST stop all thyroid whiel

you

> are trying to do this as that can cause an adreanl crisis in the

state

> oyur cortisl is in.

>

> --

>

[Guest guest]

Sounds liek your doctor has NO CLUE abotu thyroid/cortisol interaction.

Have him read the prescribing instruciotns that are with EVERY thyroid

med out there thta state you shoudl not take thyroid while in a state

of costisol insufficiency. Your body cannot use thyroid hormones when

cortiosl is low thus it causes extreme stress adn toxic feeligns when ou

take it with low cortiosl. Your cortisol sounds liek it is close to

's levels. Have they also tested Aldosterone?

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

I suppose to be fair at this point he has no results back on my

cortisol levels and hasn't seen me since I was in hosp so hasn't

witnessed my state. He was away all last week. (didn't tell me he was

going away either!?) and no covering doctor. I don't know if he has

tested for Aldosterone, is it a simple blood test? Beginning to feel

the exhaustion approach. Btw did I tell you that ER doc gave me a

beta blocker last night to slow my heart? I wasn't happy after I took

it but it was to late to do anything then..do you think I should take

10mg of hydroC? I'm still waiting for either my GP or the endo to

call me back

>

> Sounds liek your doctor has NO CLUE abotu thyroid/cortisol

interaction.

> Have him read the prescribing instruciotns that are with EVERY

thyroid

> med out there thta state you shoudl not take thyroid while in a

state

> of costisol insufficiency. Your body cannot use thyroid hormones

when

> cortiosl is low thus it causes extreme stress adn toxic feeligns

when ou

> take it with low cortiosl. Your cortisol sounds liek it is close to

> 's levels. Have they also tested Aldosterone?

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

>

[Guest guest]

I believe it's without a doubt SAD and today I'm calling my doc to prescribe a

light box because I cannot take this anymore. I'm also TRYING to get it covered

by my insurance company. I don't even know how I'm going to cope with dealing

with them because this depression and anxiety is pretty bad. I just keep

pushing myself.

sandra

Re: Re: I'm in bits

I hate the way I feel right now and I don't want to deal with being alive

right now because it's too hard.

Oh , you too? I have felt on the edge of a breakdown in recent days,

last week. Just so many pressures coming from so many angles and how are our

poor suffering adrenals supposed to cope when things get so bad?

I took myself for hands-on healing at the local library on Friday lunchtime

and it helped enormously. So I am off to do the same again tomorrow. It is a

really useful local resource and I somehow manage to 'forget' all about until

I find myself in crisis.

Last week I just wanted to get on a plane and leave all my worries behind.

My version of wanting to hide under the duvet I suppose.

Is how you are feeling SAD related? I would guess you would have looked into

this by now if it was.

What do you think is causing the way you are feeling?

Mo

[Guest guest]

Yes I would take some HC. The beta blocker while it will lower heart

rate, will also make you more hypothyroid. Unless your pulse is over 130

I would not take them.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

I doubt a natural blue light would help. You need a high output

natural light, the light boxes use at least 10,000 lux and you need to

sit right in front of it for half an hour every morning

Lynda

Re: Re: I'm in bits

>I believe it's without a doubt SAD

>

> And you are taking Vitamin D ?

> Would a blue light bulb help temporarily, the one's architects and

> graphic

> designers use in their anglepose lamps?

> I believe they are similar if not the same as natural light. And

> also, even

> if it is cloudy, if you go outside you will get help by looking up

> at the sky

> for a while several times a day. I read that somewhere.

>

> Mo

>