Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Thanks for your share. Ten years ago I was told I had HPilori antibodies in my system. (Up until that time no doctor was even aware of it. I had read about it in the New Yorker!) I have had stomache problems for years and stay on a boring bland diet almost all the times. I have noticed that when I relent and let my Indian friend persuade me to taste something spicey, or when I drink (which I hardly ever do) my hives get even angrier. I think I'll check the HPilori out again. I am taking Zantac along with my Zyrtec for the H1, H2 thing. My stomache is better! For anyone reading: I tried to get off the Zyrtec last week by spending the day fasting, eating white rice and vergies, and doing Tai Chi and Meditation all day. I lasted until about 3pm and then the hives went wild. I think they are alive and think because they are very vengeful! Anyway, I decided to go the other direction and take more Zyrtec. My doctor wasn't available so I just took a chance. I am taking 30mgs of Zyrtec, in 8 hours increments, and so far (about 4 days) I am almost hive free. They are under the skin lying in wait and small ones pop out when 8 hours approaches. But they are not so angry and itchy. I am hoping I can train my body to loseits need for hives and then slowly get off the Zyrtec. That's just a dream right now. Does anyone know if 30mgs of Zyrtec is too much? I called my doctor but she hasn't returned my call yet. The Pharmacist at Kaiser said she thought it was a lot but couldn't find anything published on side effects of 30mgs. Will keep you posted. P.S. Along with this I try to lead a very stressfree life, I am moving more slowly(I am basically an Atype person) and doing Tai Chi and Meditation and playing the piano and reading. I do dance and have dinner with friends and walk 1 hour a day. I am trying a new Accupuncturist next week. Keeping my fingers crossed. Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Tree... Right on. So, my understanding is that if you have Lupus, you have it. And if you don't, you don't. But, either through this ongoing debate, or my own insecurity...is Lupus that simple, to detect? Because I think that it may be such an animal that it may be that way in one person, or a completely other in another. Is the Lupus testing done today, the definitive, the positive answer? I wonder if others feel that maybe Lupus, as an autoimmune disease or disorder, by nature, like a cancer? Because cancer has a history of being there and being gone or cured and then dead...yes? Because cancer is the definitive word in health. You have it, you don't. So...I think...at least in my pea brain, Lupus, may be like the understanding of Cancers, and the answer is....ever changing. Or...does it have variables? Can you not have and then have it? I don't know. And maybe more telling, is our (or mine) non-beliefs of what doctors can or cannot know? And maybe, we have placed that much on them, to know that answer, when in fact, it may not be known. Also, I would ask....is this the same doctor? Or, is this her journey of doctor after doctor, seeking....her answer? Because, medicine is medicine...right? No. not really, and I can still have the reason of a nurse's statement to me just yesterday, as she doubted the test of another hospital...and felt the need that my urologist would want me to be retested at his hospital. Very discerning! I thought...well...you all know the uncertainty. And the odd thing, is that I was under this stomach doctor and I like her and I trust her, and she was looking for my "phantom" pain, and they called me and said there was Bilateral renal stones, and the left urethra is swollen and they cannot rule out blockage. So, go to your kidney stone doctor. Yeah. Stones. Again. Yeah. Yeah. Yeah. Oh pooh! Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 Hey Jackie, I hope you are well. As I hope all hivers are well. But...I have a question. When you wrote "spin down", can you explain? Thank you. Peace Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 Hi Patti. All I can tell you about the spinning down of blood is this: First, it is for a test for autoimmunity. They draw a tube of blood, put it in this machine, which literally spins the blood, forcing something or other to seperate - good old-fashioned centrifugal force. It takes like an hour, if I remember correctly. I'm not sure if they inject what is left over, or whatever was extracted from the blood, but they then inject " something " back into you, sub-cue. The results were quite dramatic, the hive from it was bigger and came up faster than even having an injection of histamine. It's been a few years since I had that test and it was explained to me, so sorry the explanation is fuzzy... Jackie Life is tough, but I'm tougher. ----Original Message Follows---- From: Hiveyjivey@... Reply-To: urticaria To: urticaria Subject: Re: Lupus and Hives Date: Sat, 21 Jul 2001 00:05:46 EDT Hey Jackie, I hope you are well. As I hope all hivers are well. But...I have a question. When you wrote " spin down " , can you explain? Thank you. Peace Patti _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 I have written before about the fact that it seems that everyone here has gone thru the exact things I have gone thru for the past 15 years. I have also been tested for all the same things - no allergies show up on the testing. This will be about the 4th time that my allergist wants to do testing of everything AGAIN! I know what he's looking for - lupus. One ANA test was positive out all the times tested, and down the next. I am just wondering with all the tests that all of us have had, has anyone been actually diagnosed with Lupus? I'm afraid to go for the tests again...I don't want Lupus on top of everything else. That's all I need! Could you have hives for 15 years with no other symptoms except itching and still have some other thing going on? Can hives be truly idiopathic? That is, with no other diagnosis? Again, I am thankful that I have found this site after 15 years of wondering if anyone out there feels the same as me! Thanks!! Quote Link to comment Share on other sites More sharing options...
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