Needing some encouragement

[Guest guest]

Today was the staffing to get the results of my sons evaluation that was

done to evaluate where is and what placement he should be put in

next year (he will be 3 years old in August) for pre-school. is XYY

(has an extra Y chromosome) and has pretty severe apraxia which involves his

oral skills and motor planning. He is not saying any other words except

³yeah², but he does do some signing. The psychologist reported that an

evaluation that was done when he was 15 months old showed him to be at an

age appropriate cognitive level. However, this time his testing indicated

that he is between 16-24 months cognitively (he is 33 months). She felt

like due to his slow progress that he could possible be MR (mentally

retarded). She said while they have not put that as a diagnosis they have

put it as something to rule out. It was devastating news to hear because

all along we really felt like he was progressing, just at somewhat of a

lower pace. The one hopeful piece is that she said because of his motor

planning and oral difficulties it is hard to do testing and get an accurate

picture of what he understands. I am wondering if anyone else has

experienced this and how your child has progressed. I am feeling incredibly

sad and discouraged. My heart aches for my precious little guy.

Petruk

Mom to , 47XYY, apraxia, hypotonia, developmental delay

[Guest guest]

, they probably did not use non-verbal cognitive testing, it's

probably inaccurate. You know where he is better than they do.

Peace,

Kathy E.

[Guest guest]

AH! Motor planning problems. Know them well. My son tests like

crap; pardon the language. He fails to do skills upon demand that

I've seen him do many times at home. It is frustrating to me... I

cannot imagine how it is for him.

My child tested at -3 standard deviations below the mean in

cognitive functioning at his last evaluation (35 months). That

places him in the MR range. This is a 38 month old who counts to 10

(objects), knows basic colors, understands joking around, etc.

Everyone tells me the tests aren't accurate.

THEN WHY NOT USE A TEST THAT WILL BE ACCURATE????!!!

It should get easier as these kids get older. At this point, my

goals are to find ways for my son to show us what he knows. With

less than optimal receptive language (due to motor planning and

auditory processing disorder, in my opinion), he can't even answer

questions such as " what is your name? "

I know nothing about XXY. Is MR seen frequently with XXY? " Between

16-24 months " is a huge range. Does he have scattered skills that

go up to 24 months? Perhaps then it is the motor planning and not

MR that leads to these delays. Hopefully you will find good people

to help you through this mess of diagnoses.

Off to take care of son #1. He is 7.5 and has his first ear

infection since he was 10 months old!!! I thought this was over

with. Poor kid is miserable.

Take care,

Pam

mom to Noah, Olivia and Ian (low-normal tone, dyspraxia, speech

delayed, possible Auditory Processing Disorder, possible Autism, but

all around perfect little man!)

> Today was the staffing to get the results of my sons evaluation

that was

> done to evaluate where is and what placement he should be

put in

> next year (he will be 3 years old in August) for pre-school.

is XYY

> (has an extra Y chromosome) and has pretty severe apraxia which

involves his

> oral skills and motor planning. He is not saying any other words

except

> ³yeah², but he does do some signing. The psychologist reported

that an

> evaluation that was done when he was 15 months old showed him to

be at an

> age appropriate cognitive level. However, this time his testing

indicated

> that he is between 16-24 months cognitively (he is 33 months).

She felt

> like due to his slow progress that he could possible be MR

(mentally

> retarded). She said while they have not put that as a diagnosis

they have

> put it as something to rule out. It was devastating news to hear

because

> all along we really felt like he was progressing, just at somewhat

of a

> lower pace. The one hopeful piece is that she said because of his

motor

> planning and oral difficulties it is hard to do testing and get an

accurate

> picture of what he understands. I am wondering if anyone else has

> experienced this and how your child has progressed. I am feeling

incredibly

> sad and discouraged. My heart aches for my precious little guy.

>

> Petruk

> Mom to , 47XYY, apraxia, hypotonia, developmental delay

>

>

>

[Guest guest]

Hi Kathy,

Congratulations on the birth of your child!

I do think it's possible that you are worse off now because of the pregnancy. I

felt my body was completely depleted after the birth of my son. Of course, I

wasn't on Bee's diet back then (6 years ago), but I do think that pregnancy

takes a huge toll on the body and it could be why you aren't tolerating the diet

as well this time around.

Since you were last on the diet, Bee has made several changes to her program, so

it would be a good idea for you to re-read some of her articles again.

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

In particular, we don't refer to healing reactions as " die-off " anymore because

Bee has realized that candida can't be killed off and that the term " die-off "

was created by the medical community to describe evidence that the body is

healing itself.

Also, rejuvelac is no longer required because Bee has discovered that probiotics

aren't necessary for the body to heal itself; it will create them if they are

necessary. You should still make sure you are getting B vitamins since they are

important for healing, but perhaps you might try taking it in the capsule form

to see if you tolerate it better.

Since you are having a rough time, you might want to try the 9-Day program.

http://www.healingnaturallybybee.com/articles/dig6.php

Perhaps it's necessary for you to cut down on your fat intake until you are

better able to tolerate them.

Hang in there!

Group Moderator

>

> Hi Bee

> I did this diet in the fall of 2009 and had no problems with it. I had my

fats and protein up and I really never experienced any die off reactions. I

drank 2 egg drinks a day and had a dinner of meat, vegetable and olive oil.

Then after 10 years of infertility I got pregnant. While pregnant I slipped off

the diet.

>

> Since my baby was born 7 months ago I've been trying to get back on the diet.

I have had a rough time of it. The egg drinks make me gag...although I drink

one every day. And I can't seem to tolerate the fats like I used to. I've had

to slowly, slowly wean off brown rice as a carb. I have had many, many die

offs. This past weekend was the worst. Maybe because I was completely off the

carbs.

>

> Do you think it's been so hard because of post-partum hormones? I can barely

stand myself any more! Last night I threw up my whole dinner.

> Do you have any suggestions for me?

>

> I have to confess that the two things that i'm not doing right now are taking

the nutritional yeast flakes (they make me gag this time) and I haven't been

drinking the rejuvelac.

>

> Are those my missing pieces?

> Thanks so much, Kathy F.Cinci, OH

>