Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Years ago my uncle encountered an issue where he could not get his HMO to treat him. He went outside network and got treatment/diagnosis and then went back to the HMO to pay for the costs involved - they did. Sometimes you are left with no choice and have to do such things via alternative methods. Good luck. Sandy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ slkscb@... ~ Open RNY 12/8/03, 150 cm, Barix Clinics, 303/290 day of surgery/204 current/ goal is to be HEALTHY. Emergency appendectomy 11/1/04, Gallbladder 1/12/05. "Know your labs and track your trends." Check out my gastric bypass journal at www.acdlady.com/WLS_1 for many educational links. My OH profile is at http://www.obesityhelp.com/morbidobesity/profile.phtml?N=M1062876220 I am not affiliated with the medical profession except as a proactive WLS post-op. "Trust your own instinct. Your mistakes might as well be your own, instead of someone else’s." – Wilder New Member Hi everyone. My name is and I have a 22 month old daughter Kaitlin who is in the process, we hope, of being diagnosed. Since Christmas we have noticed that our daughter's hair is thinning and falling out. She is also very tired all the time. She wakes up in the morning and after naps and it is as if she never got any sleep. She gets frequent infections and it seems like they take twice as long to resolve. If she needs to be treated with antibiotics it usually takes 2-3 rounds before the infection clears up.About 3 weeks ago her doctor (family pract.) ordered blood work for her. We were told that thyroid conditions in children her age wer relatively rare so when the first set of results came back they repeated the process. We were told that it was a "false positive". However when I spoke with the doctor to get the results I was a bit shocked. I have done enought research in the past 3 weeks that I know the results are not accurate. Her T3/T4 ratio is within "normal" range however her TSH was 9.6 My father happens to know an endocrinologist that he works with and gave the results to him. He believes that she is hypothyroid, especially since she is showing so many of the symptoms. Here's the problem...Our dr. won't give us a referral to a ped. endocrinologist because he BELIEVES that NOTHING IS WRONG!!! I have been so frustrated. Of course I will take Kaitlin in myself however it would be nice to have insurance because I know specialist are expensive.Sorry this is so long but I just needed to vent with others who would understand my frustration.I look forward to learning more from the group and I'm sure glad I found you guys. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Sandy's right... dealing with doctors will leave you on your toes and very very crafty... like a fox... yes, like a crafty scrapbooking fox... mmmhmm... absolutely. *nods* New Member Hi everyone. My name is and I have a 22 month old daughter Kaitlin who is in the process, we hope, of being diagnosed. Since Christmas we have noticed that our daughter's hair is thinning and falling out. She is also very tired all the time. She wakes up in the morning and after naps and it is as if she never got any sleep. She gets frequent infections and it seems like they take twice as long to resolve. If she needs to be treated with antibiotics it usually takes 2-3 rounds before the infection clears up.About 3 weeks ago her doctor (family pract.) ordered blood work for her. We were told that thyroid conditions in children her age wer relatively rare so when the first set of results came back they repeated the process. We were told that it was a "false positive". However when I spoke with the doctor to get the results I was a bit shocked. I have done enought research in the past 3 weeks that I know the results are not accurate. Her T3/T4 ratio is within "normal" range however her TSH was 9.6 My father happens to know an endocrinologist that he works with and gave the results to him. He believes that she is hypothyroid, especially since she is showing so many of the symptoms. Here's the problem...Our dr. won't give us a referral to a ped. endocrinologist because he BELIEVES that NOTHING IS WRONG!!! I have been so frustrated. Of course I will take Kaitlin in myself however it would be nice to have insurance because I know specialist are expensive.Sorry this is so long but I just needed to vent with others who would understand my frustration.I look forward to learning more from the group and I'm sure glad I found you guys. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 , hi.... I'm way behind on emails and working on catching up... Have you had a chance to get to see another doc about your daughter? It's VERY important to get this taken care of.. There is something that is very obviously wrong with a TSH that high. A child, infant through puberty, is growing and developing, physically and mentally, to deprive them of the hormones that they need is criminal... Not that you are.. it's the dumb docs that are ignoring her symptoms that should be shot. Bang your fists on desks if you have to, get her in to a doc that understands proper care of thyroid and does something to help her. As far as thyroid disorders being rare in children.... that's not so true anymore.. if it were how come newborns are having thyroid screening now?? Topper () On Mon, 27 Feb 2006 13:25:42 -0000 " S" writes: Hi everyone. My name is and I have a 22 month old daughter Kaitlin who is in the process, we hope, of being diagnosed. Since Christmas we have noticed that our daughter's hair is thinning and falling out. She is also very tired all the time. She wakes up in the morning and after naps and it is as if she never got any sleep. She gets frequent infections and it seems like they take twice as long to resolve. If she needs to be treated with antibiotics it usually takes 2-3 rounds before the infection clears up.About 3 weeks ago her doctor (family pract.) ordered blood work for her. We were told that thyroid conditions in children her age wer relatively rare so when the first set of results came back they repeated the process. We were told that it was a "false positive". However when I spoke with the doctor to get the results I was a bit shocked. I have done enought research in the past 3 weeks that I know the results are not accurate. Her T3/T4 ratio is within "normal" range however her TSH was 9.6 My father happens to know an endocrinologist that he works with and gave the results to him. He believes that she is hypothyroid, especially since she is showing so many of the symptoms. Here's the problem...Our dr. won't give us a referral to a ped. endocrinologist because he BELIEVES that NOTHING IS WRONG!!! I have been so frustrated. Of course I will take Kaitlin in myself however it would be nice to have insurance because I know specialist are expensive.Sorry this is so long but I just needed to vent with others who would understand my frustration.I look forward to learning more from the group and I'm sure glad I found you guys. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Just a quick note to welcome you, Tammy. *WELCOME!* We're a friendly group. These people here help me get a thyroid education better than anything out there. They're a smart group! You'll love it. I'm off to bed - finally! Night all, -Lynn Tammy Wolfgram wrote: > Hello all! > > A friend of mine recommended this list, and since I was > dxed with Hashimoto's about six or seven years ago, I > thought I would take advantage of the support and > knowledge that you have here. I was first tested for > thyroid problems after a dramatic weight gain (80 pounds > in less than a year!). I also have Fibromyalgia and Chronic > Fatigue Syndrome, so some of the hypothyroid symptoms > were present but ignored as a thyroid thing because they > are also symptoms of FMS and CFS. > > I look forward to learning and sharing here with all of you. > > Take care, > Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hello Tammy....This group is great. Welcome. Amber New Member Hello all!A friend of mine recommended this list, and since I wasdxed with Hashimoto's about six or seven years ago, Ithought I would take advantage of the support and knowledge that you have here. I was first tested forthyroid problems after a dramatic weight gain (80 poundsin less than a year!). I also have Fibromyalgia and ChronicFatigue Syndrome, so some of the hypothyroid symptomswere present but ignored as a thyroid thing because theyare also symptoms of FMS and CFS.I look forward to learning and sharing here with all of you.Take care,Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hello, my name is Mikki and I have just joined because I'd like to have people to talk to that are going through some of the same things that I am with my thyroid! I just turned 40, I've had thyro problems since my 20's but the lab tests were never "bad enough" for anyone to think I should get treatment. The first time I noticed problems was after my first miscarriage. At the time I took an OTC thyroid replacement from the natural food store and it's all that kept me functioning. When I had my first successful pregnancy, my thyroid perked back up and I was able to stop taking the stuff. Fast forward a few years past a nasty divorce and re-marriage to the man of my dreams... more miscarriages, I had my TSH tested and it was about 2.1 but my BMR cycle testing was consistently 95.5-96.5... but still no one would listen since my TSH was "normal" ... 5 more miscarriages (and about 5 extra lbs per m/c!) and finally 2 successful pregnancies (including twins which was a real shocker!!!) ... I have the life and family I've always dreamed of ... too bad I feel like crap most of the time, eh? Oh yeah, and that extra 20 lbs post-twins that won't go away no matter how much I exercise (I've been doing 700-800 calorie cardio sessions several times a week for 18 months) or how carefully I count calories ... with those sidelong looks from my husband that clearly say "you MUST be cheating" because the math says I should be losing 2 lbs a week... Well, a few weeks ago I started LACTATING for God's sake (it's been 15 months since I last nursed a baby), so I went to the GYN clinic, and they did some testing, my prolactin is normal but my TSH is 2.9 (which the OB still called "normal") and my cholesterol is 275. Well at least it's "bad enough" to get me a referral to an endocrinologist, and my first appointment with him is on Thursday. In a way I'm angry that I've been working so hard for "nothing" all this time when a proper diagnosis could have saved so much time and trouble, not to mention feeling like a complete loser most of the time ... on the other hand I'm very excited that I will finally (HOPEFULLY) get some treatment and be able to feel better both physically and mentally! As soon as I got my TSH back I found an OTC supplement (Enzymatic Therapy Co Thyroid Formula) and I DO feel better but my morning temps are still under 96. So right now I'm 180 lbs but I'm in terrific shape and very strong from the weight training and tae kwon do I've been doing ... but go down the thyroid symptom list and I've got most of them - carpal tunnel, arthritis, low body temp, mild depression/anxiety (although who WOULDN'T when doing all the right things doesn't produce any results???), dull skin, saggy looking face, can't lose weight, high cholesterol, hmmm did I miss any? LOL. Nothing debilitating - I still work full time and raising a 10 year old daughter and 3 toddler boys, exercise 5 times a week and have even been thinking about going back to school for a PhD in genetic analysis (I'm a statistician) ... but enough that everything just seems harder than it should be, nothing seems to work very WELL, and I'm not as happy as having all my dreams come true should make me Anyway, this got long, thanks if you made it this far, and I look forward to meeting you all! Mikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hi Mikki, Glad to have you aboard and I am sure that you will get some of the answers you are looking for. Had some miscarriages too and know how that takes a toll on you, but glad that you have quite the family now. When you get your blood tests in if you could post them the girls can take a look and see how they are and give an opinion as to where to go from there. Dawn > > Hello, my name is Mikki and I have just joined because I'd like to have people to talk to that are going through some of the same things that I am with my thyroid! I just turned 40, I've had thyro problems since my 20's but the lab tests were never " bad enough " for anyone to think I should get treatment. The first time I noticed problems was after my first miscarriage. At the time I took an OTC thyroid replacement from the natural food store and it's all that kept me functioning. When I had my first successful pregnancy, my thyroid perked back up and I was able to stop taking the stuff. > > Fast forward a few years past a nasty divorce and re-marriage to the man of my dreams... more miscarriages, I had my TSH tested and it was about 2.1 but my BMR cycle testing was consistently 95.5- 96.5... but still no one would listen since my TSH was " normal " ... 5 more miscarriages (and about 5 extra lbs per m/c!) and finally 2 successful pregnancies (including twins which was a real shocker!!!) ... I have the life and family I've always dreamed of ... too bad I feel like crap most of the time, eh? Oh yeah, and that extra 20 lbs post-twins that won't go away no matter how much I exercise (I've been doing 700-800 calorie cardio sessions several times a week for 18 months) or how carefully I count calories ... with those sidelong looks from my husband that clearly say " you MUST be cheating " because the math says I should be losing 2 lbs a week... > > Well, a few weeks ago I started LACTATING for God's sake (it's been 15 months since I last nursed a baby), so I went to the GYN clinic, and they did some testing, my prolactin is normal but my TSH is 2.9 (which the OB still called " normal " ) and my cholesterol is 275. Well at least it's " bad enough " to get me a referral to an endocrinologist, and my first appointment with him is on Thursday. > > In a way I'm angry that I've been working so hard for " nothing " all this time when a proper diagnosis could have saved so much time and trouble, not to mention feeling like a complete loser most of the time ... on the other hand I'm very excited that I will finally (HOPEFULLY) get some treatment and be able to feel better both physically and mentally! As soon as I got my TSH back I found an OTC supplement (Enzymatic Therapy Co Thyroid Formula) and I DO feel better but my morning temps are still under 96. > > So right now I'm 180 lbs but I'm in terrific shape and very strong from the weight training and tae kwon do I've been doing ... but go down the thyroid symptom list and I've got most of them - carpal tunnel, arthritis, low body temp, mild depression/anxiety (although who WOULDN'T when doing all the right things doesn't produce any results???), dull skin, saggy looking face, can't lose weight, high cholesterol, hmmm did I miss any? LOL. Nothing debilitating - I still work full time and raising a 10 year old daughter and 3 toddler boys, exercise 5 times a week and have even been thinking about going back to school for a PhD in genetic analysis (I'm a statistician) ... but enough that everything just seems harder than it should be, nothing seems to work very WELL, and I'm not as happy as having all my dreams come true should make me > > Anyway, this got long, thanks if you made it this far, and I look forward to meeting you all! > > Mikki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hi Mikki, I'm glad your here.. Connie > > Hello, my name is Mikki and I have just joined because I'd like to have people to talk to that are going through some of the same things that I am with my thyroid! I just turned 40, I've had thyro problems since my 20's but the lab tests were never " bad enough " for anyone to think I should get treatment. The first time I noticed problems was after my first miscarriage. At the time I took an OTC thyroid replacement from the natural food store and it's all that kept me functioning. When I had my first successful pregnancy, my thyroid perked back up and I was able to stop taking the stuff. > > Fast forward a few years past a nasty divorce and re-marriage to the man of my dreams... more miscarriages, I had my TSH tested and it was about 2.1 but my BMR cycle testing was consistently 95.5- 96.5... but still no one would listen since my TSH was " normal " ... 5 more miscarriages (and about 5 extra lbs per m/c!) and finally 2 successful pregnancies (including twins which was a real shocker!!!) ... I have the life and family I've always dreamed of ... too bad I feel like crap most of the time, eh? Oh yeah, and that extra 20 lbs post-twins that won't go away no matter how much I exercise (I've been doing 700-800 calorie cardio sessions several times a week for 18 months) or how carefully I count calories ... with those sidelong looks from my husband that clearly say " you MUST be cheating " because the math says I should be losing 2 lbs a week... > > Well, a few weeks ago I started LACTATING for God's sake (it's been 15 months since I last nursed a baby), so I went to the GYN clinic, and they did some testing, my prolactin is normal but my TSH is 2.9 (which the OB still called " normal " ) and my cholesterol is 275. Well at least it's " bad enough " to get me a referral to an endocrinologist, and my first appointment with him is on Thursday. > > In a way I'm angry that I've been working so hard for " nothing " all this time when a proper diagnosis could have saved so much time and trouble, not to mention feeling like a complete loser most of the time ... on the other hand I'm very excited that I will finally (HOPEFULLY) get some treatment and be able to feel better both physically and mentally! As soon as I got my TSH back I found an OTC supplement (Enzymatic Therapy Co Thyroid Formula) and I DO feel better but my morning temps are still under 96. > > So right now I'm 180 lbs but I'm in terrific shape and very strong from the weight training and tae kwon do I've been doing ... but go down the thyroid symptom list and I've got most of them - carpal tunnel, arthritis, low body temp, mild depression/anxiety (although who WOULDN'T when doing all the right things doesn't produce any results???), dull skin, saggy looking face, can't lose weight, high cholesterol, hmmm did I miss any? LOL. Nothing debilitating - I still work full time and raising a 10 year old daughter and 3 toddler boys, exercise 5 times a week and have even been thinking about going back to school for a PhD in genetic analysis (I'm a statistician) ... but enough that everything just seems harder than it should be, nothing seems to work very WELL, and I'm not as happy as having all my dreams come true should make me > > Anyway, this got long, thanks if you made it this far, and I look forward to meeting you all! > > Mikki > Quote Link to comment Share on other sites More sharing options...
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