Mic apraxia ,autism

[Guest guest]

I have been bothered by this for along time, awhile back I wrote about Mic being

ds/asd many of you wrote me back to inform well Mic is apraxic,mis is hypotonic,

mic has severe sensory desfunction mic has severe communication problems.Mic

does not play with toys allot of self stim cant handle change.He stopped eating

table food and speaking at 2 years old. What do some of you people think make up

autism spectrum disaorder , all these symptons put together.I was highly

insulted at all these people from this group telling me hes not autistic just

all the other problems.Well if some of you did some reaserch on autistim you

might find that allot of your children fit the autistic spectrum disorder Heres

a link I would love some of you who question my doctors to read this and maybe

take a look at your own children. so here it is

www.disabilitysolutions.org/pdf/3-5-6..PDF maybe some of you will " GET IT " This

has burning my stomach for along time.Thank you for letting me vent. I thought

this

needed to be brought to your attention so that when another mom doesnt

questions her 3 dxes.Would love feedback bad or good helps me to learn. Laurie

[Guest guest]

I'm not sure if the website you looked at describes PDD (Pervasive Disability

Disorder). This is what my daughter has...we only found out 10 days ago. It was

such a relief to know that this condition exists! Eve is mildly apraxic, mildly

hypotonic, mildly sensitive to sound, has autistic tendencies but isn't

autistic, and many other little things that just didn't add up. She is highly

functioning, loving, and outgoing, but there is something that is just " not

right " . That's the only way I can describe it. Anyway, my cousin, who is a 3rd

grade teacher, asked me if she had ever been evaluated for PDD. I said no, and

had never heard of it. Basically, it's a condition used to describe people like

Eve who just don't " fit " into that one category...not autistic, not totally

apraxic, etc. There's a fantastic website (sorry, don't remember the name...just

do a " google " search for PDD and you'll find it) that actually has a diagnostic

test you can take and then print out to give to your doctor. It was a prayer

answered. Hope this helps!! It sounds like this could very well be your son. The

good news is that there are many, many things they can do to help these kids.

[Guest guest]

Hi ,

The difference between PDD and autism depends on who you speak to,

but it is on the autism spectrum.

Here's a good quote from a good article

" Dr. Doris , a developmental specialist at the Albert Einstein

College of Medicine, calls PDD " a way of not diagnosing autism, " a

diagnosis doctors use when they want to avoid the word. PDD has

become a professional euphemism, a soft term for something

considered too harsh or too blunt "

http://www.bbbautism.com/what_is_the_difference_between_a.htm

=====

[Guest guest]

This may be the website you are talking about.

http://www.childbrain.com/pdd.shtml

It describes PDD, autism, PDD-NOS and has the " The PDD assessment

scale/screening questionnaire " .

-Kathy

>

> I'm not sure if the website you looked at describes PDD (Pervasive

Disability Disorder). This is what my daughter has...we only found out

10 days ago. It was such a relief to know that this condition exists!

Eve is mildly apraxic, mildly hypotonic, mildly sensitive to sound,

has autistic tendencies but isn't autistic, and many other little

things that just didn't add up. She is highly functioning, loving, and

outgoing, but there is something that is just " not right " . That's the

only way I can describe it. Anyway, my cousin, who is a 3rd grade

teacher, asked me if she had ever been evaluated for PDD. I said no,

and had never heard of it. Basically, it's a condition used to

describe people like Eve who just don't " fit " into that one

category...not autistic, not totally apraxic, etc. There's a fantastic

website (sorry, don't remember the name...just do a " google " search

for PDD and you'll find it) that actually has a diagnostic test you

can take and then print out to give to your doctor. It was a prayer

answered. Hope this helps!! It sounds like this could very well be

your son. The good news is that there are many, many things they can

do to help these kids.

>

[Guest guest]

While we are talking about autism I would like to dispel the myth that

kids with autism are unloving. My son has autism as well as apraxia.

He is very loving and connected to his family. He always wants to be

with me and loves getting huges and kisses. He is in a preschool for

kids with autism and all 3 of his classmates are children who love

their parents very much. It is not just parents either. My son is also

very attached to his teachers, therapist and classmates.

It is also a myth that all autistic kids don't want to talk. My son

wants very much to communicate with me verbally and tries hard to

understand and say words but he has a lot of difficulty. 70% of kids

on the autistic spectrum are verbal so obviously many want to talk.

Even in the special needs community kids with autism are sometimes

discriminated against because they are seen as " not wanting to talk "

or " not wanting to be loved " . It is so sad!

[Guest guest]

Mic was dxed autistic moderately. The web site is www.disabilitiessolutions.org.

It covers all of it PDD_NOS which Mic is not autism is Mics biggest

problem.Believe me I have spent 5 years researching this.Thanks for the link I

will take a look Laurie

[Guest guest]

Hope is the same way. She has the double whammy of autism and apraxia as

well. For her it's not that she doesnt want to talk, it's she cant. The

motor planning gets in the way and she's still learning where her lips and

tounge go. It took her until just recently to learn how to drink out of a

regular cup because she kept wanting to put her tounge inside it. But she's

getting there slowly.

She loves getting hugs and kisses too. But she has to come to you. There

are times when she doesnt want to be touched and if you try and hug her

then, she'll meltdown. We've just gotten used to asking her if we can have

a hug and she'll come, or she'll come and tell us she wants a hug.

Now she's getting more verbal and she's working with PECS to communicate the

words she just doesnt have yet, and her teachers and therapists are finding

out she can read. They knew she was bright and just couldnt get out what

was in her head. They started pointing to letters in words to get her to

say them, and she skipped that part and just read the words instead. Her

new TSS has been great with breaking out workbooks that have short sentences

to read and she's the one who got the PECS started. Hope adores her and she

gets hugs every day when she leaves. She says Vera is her buddy. :-)

Around here there is a pretty large autism support group, and all of the

kids are verbal. Every one of them talks to some extent, and most of them

are little love muffins when they're in the mood. Next week we're heading

into the city for a Christmas party the group is having for the kids. We

taking covered dishes, almost everyone is cooking GF/CF for the party, they

have a Santa lined up who deals with autistic kids, and we have a whole big

indoor play park reserved just for the kids and the families. So they dont

have to deal with rude looks, rude parents, and just have fun. and the

parents get to unwind since we can go and not be thinking about all the

things that people could say or do if the kids have a meltdown.

Toni

[ ] Re: Mic apraxia ,autism

While we are talking about autism I would like to dispel the myth that

kids with autism are unloving. My son has autism as well as apraxia.

He is very loving and connected to his family. He always wants to be

with me and loves getting huges and kisses. He is in a preschool for

kids with autism and all 3 of his classmates are children who love

their parents very much. It is not just parents either. My son is also

very attached to his teachers, therapist and classmates.

It is also a myth that all autistic kids don't want to talk. My son

wants very much to communicate with me verbally and tries hard to

understand and say words but he has a lot of difficulty. 70% of kids

on the autistic spectrum are verbal so obviously many want to talk.

Even in the special needs community kids with autism are sometimes

discriminated against because they are seen as " not wanting to talk "

or " not wanting to be loved " . It is so sad!