Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi- My son was no preemie by any means (born on his due date at 10 pounds) but he was corrected with 4 casts and a tenonomy (unilateral). My son still wore the DBB for 23hrs a day for 3 months. I would be concerned for your doctor to start the DBB down to nap times/night time if it has been less than 3 months. The protocol is 23hrs a day for 3 months, then down to 16hours a day and then sometimes down to 12hrs. I would worry about regression if let out of the DBB 23hrs a day too early. > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: preemies and clubfoot >Date: Wed, 25 Feb 2004 23:31:27 -0000 > >Hi all! I was just wondering if there is anyone in the group who had >a preemie treated >for clubfoot using ponseti method and if the treatment was more >successful, less >relapse, easier, etc. My son was born about six weeks early (he's a >twin) with bilateral >clubfoot. Serial casting was started when he was 11 days old. He >only had 5 casts >and did not have a tenotomy. He's wearing DBB now 23 hours but the >doc we go to >says he may be able to switch to nap and bedtime next visit. I'm >kind of nervous >about him having a relapse because the correction seemed way to easy >compared to >most others I read about. Anyone have any articles or stories? I'l >appreciate any info! >Thanks!-eryn- > >Mom to Gavin >bilateral CF 10/14/03 > > _________________________________________________________________ Take off on a romantic weekend or a family adventure to these great U.S. locations. http://special.msn.com/local/hotdestinations.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi Eryn, Preemies can have a relapse show sooner than a full term if not braced properly after correction of the clubfoot. While I agree there is no P.T. needed for these little feet after they are fully corrected {15-20 Degrees dorsiflexion} I do tell the families to get their hands on the feet by stretching and moving them in order to be intimate enough with the foot to realize if it is loosing any correction or becoming stiff. The families who have done this caught early relapse's in the feet and consult with their Physicians sooner. Castlady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Eryn, In an article that Dr. Ponseti wrote in 2001, he mentioned that relapses can occur quickly in premature infants. He said " Relapses appear to be related to the intensity of collagen synthesis as the foot grows. Thus, relapses occur swiftly in premature infants and more slowly in older infants. Relapses are less common and less severe in mild club feet with little fibrosis and in children with loose ligaments. They occur because the factors inducing the deformity are still active. " http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/13223 He also discusses this idea in his book by an example on pages 99- 100. There he talks about a premature infant. He says the feet " ...were corrected in one month with manipulation and 4 plaster cast changes. When the last casts were removed, no shoes were available for bracing the tiny feet. So we asked the mother to bring the baby back to the clinic in a week for custom made shoes. To my surprise, the deformity had recurred to almost the same degree as it was originally. This time the clubfeet were corrected with manipulation and 3 plaster casts. After correction a splint was applied which the parents discarded in one week. There months later the deformity had recurred to a minimal degree in the right foot and only to 20 degrees of supination in the left foot. " I hope that this information is of help. > Hi all! I was just wondering if there is anyone in the group who had > a preemie treated > for clubfoot using ponseti method and if the treatment was more > successful, less > relapse, easier, etc. My son was born about six weeks early (he's a > twin) with bilateral > clubfoot. Serial casting was started when he was 11 days old. He > only had 5 casts > and did not have a tenotomy. He's wearing DBB now 23 hours but the > doc we go to > says he may be able to switch to nap and bedtime next visit. I'm > kind of nervous > about him having a relapse because the correction seemed way to easy > compared to > most others I read about. Anyone have any articles or stories? I'l > appreciate any info! > Thanks!-eryn- > > Mom to Gavin > bilateral CF 10/14/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hello! My daughter Audrey was a preemie (5 weeks early) and has bilateral clubfoot (she'll be 5 months old tomorrow)...she began the serial casting at 3 weeks old and has not had a tenotomy done on either foot at this point. She's been wearing the dbb for 23 hours/day for 2 months now. Her feet corrected nicely and have good flexibility (one better than the other though)...so far, things have gone pretty smoothly overall except that she developed a really bad blister/sore on her heel. Bess At 04:31 PM 2/25/2004, you wrote: >Hi all! I was just wondering if there is anyone in the group who had >a preemie treated >for clubfoot using ponseti method and if the treatment was more >successful, less >relapse, easier, etc. My son was born about six weeks early (he's a >twin) with bilateral >clubfoot. Serial casting was started when he was 11 days old. He >only had 5 casts >and did not have a tenotomy. He's wearing DBB now 23 hours but the >doc we go to >says he may be able to switch to nap and bedtime next visit. I'm >kind of nervous >about him having a relapse because the correction seemed way to easy >compared to >most others I read about. Anyone have any articles or stories? I'l >appreciate any info! >Thanks!-eryn- > >Mom to Gavin >bilateral CF 10/14/03 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Thank you all for your replies! It has eased my mind alot to know that a relapse would probably occur earlier in Gavin rather than later. Gavin's feet have great flexibility and the doctors could get them into almost corrected position since birth before they casted him. I rub his feet everyday and check to see if they are tightening up. It does not seem so. He can really move them now!! He will be switching to nap and bedtime at about 4 months of DBB wear. I'm sure a little longer than 3 months would not hurt. If there is anyone in the San Diego area and is military whose baby is born with clubfoot, Dr. Cassidy at Balboa is awesome!!! In fact the whole team is wonderful and supportive. Thank you all for your advice! -Eryn- > Hi all! I was just wondering if there is anyone in the group who had > a preemie treated > for clubfoot using ponseti method and if the treatment was more > successful, less > relapse, easier, etc. My son was born about six weeks early (he's a > twin) with bilateral > clubfoot. Serial casting was started when he was 11 days old. He > only had 5 casts > and did not have a tenotomy. He's wearing DBB now 23 hours but the > doc we go to > says he may be able to switch to nap and bedtime next visit. I'm > kind of nervous > about him having a relapse because the correction seemed way to easy > compared to > most others I read about. Anyone have any articles or stories? I'l > appreciate any info! > Thanks!-eryn- > > Mom to Gavin > bilateral CF 10/14/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Dr. Cassidy is at Naval medical center San diego. (Since we are Navy, we had the kids there...) He is using the Ponseti method to treat clubfoot and I beleive that he did a fellowship for the technique. He seems to be following the protocol to the letter. When Gavin was ready for DBB, he had the prosthetic people from Chula Vista come and measure him right in the office. The navy only paid for a portion of the boots, but we didnt have much out of pocket. I think this is because he is not using the traditional methods or AFO's. I really couldnt tell you how long he's been using the method but I sure am glad that he is! Unfortunately, he is not in private practice at this time but maybe someday he will be. He would be a great addition to the pediatric orthopedic community in the area if he doesn't get shipped out... -Eryn_ > > > Hi all! I was just wondering if there is anyone in the group who > >had > > > a preemie treated > > > for clubfoot using ponseti method and if the treatment was more > > > successful, less > > > relapse, easier, etc. My son was born about six weeks early (he's a > > > twin) with bilateral > > > clubfoot. Serial casting was started when he was 11 days old. He > > > only had 5 casts > > > and did not have a tenotomy. He's wearing DBB now 23 hours but the > > > doc we go to > > > says he may be able to switch to nap and bedtime next visit. I'm > > > kind of nervous > > > about him having a relapse because the correction seemed way to easy > > > compared to > > > most others I read about. Anyone have any articles or stories? I'l > > > appreciate any info! > > > Thanks!-eryn- > > > > > > Mom to Gavin > > > bilateral CF 10/14/03 > > > > _________________________________________________________________ > Dream of owning a home? Find out how in the First-time Home Buying Guide. > http://special.msn.com/home/firsthome.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi Eryn, I have twins as well. They were born 7 weeks premature and one of them has a right clubfoot. It was labelled 'moderate to severe' and took 7 Ponseti casts and a tenotomy to correct it. He then went into the DBB full-time for 3 months, followed by 18 hours/day for 6 months, and 14-16 hours/day since. He's almost 1 1/2 years now and is doing fine. All the best, with Alister (RCF) and (*11 Sep 02) --- elawrence wrote: > Hi all! I was just wondering if there is anyone in > the group who had > a preemie treated > for clubfoot using ponseti method and if the > treatment was more > successful, less > relapse, easier, etc. My son was born about six > weeks early (he's a > twin) with bilateral > clubfoot. Serial casting was started when he was 11 > days old. He > only had 5 casts > and did not have a tenotomy. He's wearing DBB now > 23 hours but the > doc we go to > says he may be able to switch to nap and bedtime > next visit. I'm > kind of nervous > about him having a relapse because the correction > seemed way to easy > compared to > most others I read about. Anyone have any articles > or stories? I'l > appreciate any info! > Thanks!-eryn- > > Mom to Gavin > bilateral CF 10/14/03 > > > ___________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
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