Visiting the Endocrinoloog

June 11, 2001

Hi

Last week we visited the endocrinoloog and the uroloog with our son Jesper.

The uroloog told us they will need three operation to fix his hypospadia. And

later on in puberty he probably need a last one. Futher they will try to find

out why he has this hypospadia. This all will happen after he is 1,5 years old.

We also did speak to the endocrinoloog about Jesper. She did not agree with our

doctor about the diagnose RSS but she did not say that it might not be RSS. She

said time will tell. And so we know nothing more.

Is there some one who has some data for me about weight and lenght from birth

through the first year.

And from when can or do RSS kids start having trouble eating? is this from birth

or later....

We feel bad about not having a diagnose for Jesper and we feel that this will

take a lot of time before we will have a diagnose.

ltr

Dennis, Manon en Jesper

(Jesper 20-03-01 34 4/7 wk 1.235 gram)

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