Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 It sounds like you are all coping very well with the surgery and its aftermath. It only gets better. Emma had much more than a slight bend in her casts- they are almost at 90 degree angles so standing was pretty much out of the question, though over the past week she has been pulling herself up a bit. Tomorrow they come off! She is acting a bit apprehensive about getting them off instead of being excited. - ATTT Surgery My son just had the ATTT surgery completed on December 18th. THe surgery was performed on both feet. He is wearing thigh high casts on both feet, with a slight bend in the knees. The surgery itself took approxiametly 3 hours. Unfortunately for my son, a condition runs in the family called Maliginant Hypertrophy, which required a different method of Anethesiology to be delivered. In short, my son had to be intubated for delivery of anesthesiology as opposed to being but under wearing a mask. The post operation recovery period was hard for him and for myself and my wife. Due to being intubated, his esophagus was swollen, and he spent an inordinate amount of time in the recovery room due to a shortage of available beds in the Pediatrics ward. THe first 12 hours after surgery, he was given three doses of morphine, and was switched over to Tylenol with Codeine afterwards. I would say my son was more in discomfort than in pain after the initial 12 hours. Elliott (my son) ran a low grade fever, 100, and when we were told that is not uncommon after surgery. RIght after we were released, we took him to his pediatrician for a follow up, and again we were told that this was all normal. Literally, as I right this, we took his temperature, and it back to normal. The only area right now, is that my son is afraid to stand up. He will either sit down, or lay down, but makes very little effort to move. Standing is not an option, as anytime we try to get him to stand, he immediately protests and starts to cry. We will call the orthopedits after the weekend if this does not improve. I apologize for the lenght and choppiness of this post, but I have very little sleep over the past three days because of Elliott's surgery, but I wanted to update those who children are facing this surgery. Happy Holidays to Everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 A few days have passed since Elliott had the surgery. So far, he doesnt seem phased by the casts. Due the curve at the knee in the casts, he is unable to stand, but he is crawling around, and he is able to sit up by himself. Unfortunately, he has caught the flu bug that is going around. We were scared this weekend, because he was running a high fever, that there might be an infection, but a visit this morning to his pediatrician told us that it is only the flu. In two weeks, we go back to the orthopedic to have the stitches taken out, and at that point, Elliott will receive new casts. THe doctor told us that they should be a little smaller, and less thick than what he is wearing now. I will try to keep everyone updated. Thanks, Barry Father of Elliott, 2 > It sounds like you are all coping very well with the surgery and its > aftermath. It only gets better. > > Emma had much more than a slight bend in her casts- they are almost at 90 > degree angles so standing was pretty much out of the question, though over > the past week she has been pulling herself up a bit. > Tomorrow they come off! She is acting a bit apprehensive about getting them > off instead of being excited. > > - > > > ATTT Surgery > > > My son just had the ATTT surgery completed on December 18th. THe > surgery was performed on both feet. He is wearing thigh high casts > on both feet, with a slight bend in the knees. > The surgery itself took approxiametly 3 hours. Unfortunately for my > son, a condition runs in the family called Maliginant Hypertrophy, > which required a different method of Anethesiology to be delivered. > In short, my son had to be intubated for delivery of anesthesiology > as opposed to being but under wearing a mask. > The post operation recovery period was hard for him and for myself > and my wife. Due to being intubated, his esophagus was swollen, and > he spent an inordinate amount of time in the recovery room due to a > shortage of available beds in the Pediatrics ward. > THe first 12 hours after surgery, he was given three doses of > morphine, and was switched over to Tylenol with Codeine afterwards. > I would say my son was more in discomfort than in pain after the > initial 12 hours. > Elliott (my son) ran a low grade fever, 100, and when we were told > that is not uncommon after surgery. RIght after we were released, > we took him to his pediatrician for a follow up, and again we were > told that this was all normal. Literally, as I right this, we took > his temperature, and it back to normal. > The only area right now, is that my son is afraid to stand up. He > will either sit down, or lay down, but makes very little effort to > move. Standing is not an option, as anytime we try to get him to > stand, he immediately protests and starts to cry. We will call the > orthopedits after the weekend if this does not improve. > I apologize for the lenght and choppiness of this post, but I have > very little sleep over the past three days because of Elliott's > surgery, but I wanted to update those who children are facing this > surgery. > Happy Holidays to Everyone. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 If he's anything like my son, the casts won't slow him down. Dylan had a 90 degree bend at the knee and he could still walk AND run in them. LOL. It always amazed everyone. Sorry to hear about the flu. we all just got over it. Not fun. Bonnie B. Wife to Jack, 5/3/92 mom to Zack, 8/3/93, , 12/29/97, and Dylan, 10/26/00- bilateral CF, ATTT 10/28/03, last casts off-1/01/04 Re: ATTT Surgery A few days have passed since Elliott had the surgery. So far, he doesnt seem phased by the casts. Due the curve at the knee in the casts, he is unable to stand, but he is crawling around, and he is able to sit up by himself. Unfortunately, he has caught the flu bug that is going around. We were scared this weekend, because he was running a high fever, that there might be an infection, but a visit this morning to his pediatrician told us that it is only the flu. In two weeks, we go back to the orthopedic to have the stitches taken out, and at that point, Elliott will receive new casts. THe doctor told us that they should be a little smaller, and less thick than what he is wearing now. I will try to keep everyone updated. Thanks, Barry Father of Elliott, 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 I just read your email. I am sorry that you are experiencing difficulties. The reason I responded is that my family has MH (malignant hyperthermia) too. I thought it was really rare. My son has a right cf (clubfoot). He is eleven months old. I too have not been getting a lot of sleep. My son recently had the flu. If you would like to you can email me at lrnbfry@.... Swede89436 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Thank you to everyone who's posted their child's experience with this surgery. All the information has been really helpful and reassuring. Sophie had her surgery today and everything went well. Dr. Mosca moved her anterior tib tendon laterally and also released the flexor hallucis longus tendons to her toes. She's in a below the knee cast (at our request) for 6 weeks. We won't get to see her beautiful foot until mid-February! As soon as she was wheeled to the O.R. I lost it and started to cry because at that moment I had second thoughts about our decision to go ahead with the surgery. It's hard to put on a brave face for your child when you're worried about the risks of surgery. It helped to talk with Dr. Mosca and Dr. Ponseti beforehand and to read every literature we could about this surgery. I just hope we made the right decision. Only time will tell. The nurses at the hospital are nice, but the rooms are crowded as the hospital is undergoing some remodeling. We are trying to keep on top of the pain and so far she's doing okay. She says the bottom of her foot hurts, probably from the button, but we were given a heads up for that. Quote Link to comment Share on other sites More sharing options...
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