Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 Hi Kim We are vegetarian also and the diet is still possible. We have been CF for a few weeks strictly and mostly for the past 12 years. Give the situation a lot of thought. Sometimes just a change of attitude toward what is considered food helps. We have had to do that with icecream and cheese. Good luck! - I had my son on a CF diet, but not > gluten free because he > is vegetarian and most of his diet has gluten in > it.. I even make my own > gluten stakes. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Kim, What test did you have done? There are only a few that are reliable measures of gluten intolerance. Also, eliminating casein without gluten is in most cases pointless due to the fact that casein and gluten are so similar at the molecular level. Although it is true that some kids show a strong attachment to one or the other for their " fix " . Some kids are milk-a-holics and others are bread-a-holics and some are neither, but it rarely means that only one has to be removed from the diet. Sometimes, since gluten is so difficult to remove from the diet, we parents make a rationalization that only casein needs to be removed. It's not easy, but a cf/gf diet can be done, even on a vegetarian diet. With best intentions, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 I also know how hard it is to take away your childs favorite food. I try to tell myself, being a parent means doing what's best for my child. Sometimes that's the only thing that helps me through it. Like I've read in the books, he is probably addicted to something in the chips that he is allergic to. I know how heart breaking it is to take them away but my opinion is... you need to. It gets better. Try to substitute with something else he really likes. I would " bribe " my older son. I explained to him he was allergic and they " hurt " his body. I would suggest instead we go to the park and he eat something gfcf. Or if he would eat something else, we go to the dollar store and get a toy. I don't know if this is considered bad parenting or not but it made him happy. And when he is happy, I'm happy. Be strong. Your the only mom he has. My husband told me when I was so upset over our daughters Autism dx that, " God considers us special people. He knows " who " to give these children to. He selects people who will love and care for them in the best possible way. He can give a healthy child to anybody, but a child on a special diet, who needs therapy, needs supplements and so on and so forth, he gives to those who can handle it. " It made me feel better. Good Luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 In a message dated 10/15/2000 1:55:11 PM Eastern Daylight Time, lcangie@... writes: << Good Luck. >> Thanks. It is just that his intake is so limited that even now he refuses just about everything. But I am determined to hang in there. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 > Hi > My name is Meri, I had an open RNY at UCLA March 8, 2000, performed by the > amazing Dr Liu. So far I have lost 94 pounds. ************* congrats! I started at 263, wore a 2X; > I now wear a 10/12. I have been on a plateau for several months, but > continue to lose inches. > I take two chewable vitamins daily, a lactaid, (which helps me with the > smelly gas problem), and 400 iu of dry E (thank you vitalady), and three > calcium citrate. I have one protein drink a day, 55 grams. ************* split it in half, since you can't absorb more than 30g at one time.... Sorry, loking good, elsewise! I am starting > the B12 injections tomorrow. although I have been using the sublinguals, I > feel like I should have more energy than I do. ********** was gonna ask where your iron is, but I see they're keeping it a little secret! LOL! I am not sure what my last > labs were, unfortunately the Dr never faxed them to me. I will check them > before getting my shot tomorrow, and have made an appointment for my year > check up. I am enjoying getting to know everyone. > Meri > 3-8-00, -94 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 ******************** > My name is Janelle. I had surgery 9 March 2000. I am > 5'8 " and I started at 317. I now weigh 161, so I have > lost 156 pounds. Dr. Champion did my surgery in > Atlanta and he did it lap. YEA!!! I have no problems > to speak of and I cannot believe what the weight loss > has done for my life. I want to throw this out there > because I am sure there are others like me. My weight > did not define who I was as a person - I liked who I > was when I was fat - I was just tired of being so > heavy. I feel lucky for this fact because developing > who I am now has been much easier and it has allowed > me to branch out in other ways by not carrying the > baggage that often accompanies being overweight. It > is amazing how many doors have opened for me now that > I am thinner. It has allowed me to understand > prejudice to the max. When I used to step in a room > professionally, I now know I was judged first by my > weight and then by my intelligence, or what I had to > offer. It still amazes me how much more receptive > people are now on a professional level. Anyone else > feel this way??? **************** Janelle, Welcome to the group. Indeed you have found a true teasure. The folks on this list are the best! I, too, did not let my weight be my whole being. As the song says " I did it my way " ! It wasn't until I had a hysterectomy 3 years ago that I put on an extra 50 lbs and the pressure on my body began my slow slide into extreme fat hell. I was very lucky to find a friend who had had this surgery. I have seen a big difference in my professinal life as well as many other areas of my life. Just yesterday, though, I had to put my half-sister-in-law in her place. We live several hours away so don't see each other but about once a year. When I walked into my mom-in-law's house my dh's half sis and brother were amazed. But, my sis-in-law had to make a comment about how I was half the person I used to be and then added that I must " feel so much better about how I feel about myself " . WRONG....I told her in a very matter of fact way that I do feel better, but that I have not changed all that much. I told her that I did not let my fat years dictate who I was while I was there and that I was fine with myself then....that it was the preception other people had of me that was the problem. It was their problem, not mine. I made sure that she understood that I had married a wonderful man (27 years on Friday), had two wonderful children, found a good job and was happy with my life up to the point that I gained that extra 50 lbs. Did my fat life make me who I am...probably. But, it didn't stop me from doing everything that I wanted to do. I was happy with who I was then and am even happier with who I am now. Needless to say, she didn't have much to say after that. Of course, you needed to be there to hear the tone of these coments she made. I think that was what set me off! Sorry to babble. Just wanted to welcome you and let you know that you are not the only one out there that was a " satisfied with life " pre-op. But, an even more satisfied post-op. I started at a high weight of 364 and now weigh (by my scales) 200 (in the buff, in the a.m., after I tinkle, no jewelery, no glasses, pluck my eyebrows, shave my legs & underarms, brush my hair to get rid of the extras, brush my teeth to get rid of the plaque, NO EXTRA WEIGHT ON ME ANYWHERE, etc.....just me, LOL! Not like in my docs office!). Live, Laugh, & Love, Reba in Auburn, AL Open RNY - 1/10/00 Dr. Henry Laws - B'ham, AL 155 lbs lost!(unofficial - 164) _______________________________________________________ Send a cool gift with your E-Card http://www.bluemountain.com/giftcenter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 Hi my name is Angie. My father has Shy Drager Syndrome. He was diagnosed about 5 years ago. He isn't doing very well and gets worse every time I see him. I think he has given up. There doesn't seem to be any medications that help him with the symptoms. He seems to have almost all the symptoms I've read about. He can barely walk and falls all the time. His speech is so bad its difficult to understand him. He is exhausted all the time and has gotten to the point of not doing anything unless he has to. These symptoms along with a multiptude of others has him very depressed. He doesn't follow any type of exercising or diet. I live out of state and unfortunately only get to see him 2-3 times a year. I speak to him and my Mother frequently at least once a week. We really don't know how to help him. Any advise would be appreciated. Thanks Angie _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 Thank you for the message. It means a lot to know that others care. I noticed that you signed the message as Dr and that you are from Memphis, TN. I am from Memphis originally. My family(Sister and Brother) still live there. My parents go there all the time to visit. Do you treat this disase? And if not do you know a doctor that does. The doctor my Dad sees doesn't really know anything about this. He has told my Dad that if he finds any information to share it with him. But maybe if he could see someone who could give him definite information then he might fight this disease a little. Thank you. Angie Tippett > >Reply-To: shydrager >To: shydrager >Subject: Re: introduction >Date: Mon, 07 May 2001 22:58:45 -0500 > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Dear Mrs. Tippett MSA is a difficult neurological disease to be : 1- diagnosed 2- treated 3- deal with for sometimes many years. From my experience we need to do the followings: 1- continuous pressure on the media to make MSA ptns. voice heard. 2- more research funds for MSA 3- attend your local MSA support group meetings. When you see & talk with MSA ptns.you will think about who to help these patients now & in the future. My heart with your mother and you. Dr. Rashed, Memphis, TN. >From: " Tippett" >Reply-To: shydrager >To: shydrager >Subject: introduction >Date: Mon, 07 May 2001 15:30:56 -0400 > >Hi my name is Angie. My father has Shy Drager Syndrome. He was diagnosed >about 5 years ago. He isn't doing very well and gets worse every time I see >him. I think he has given up. There doesn't seem to be any medications that >help him with the symptoms. He seems to have almost all the symptoms I've >read about. He can barely walk and falls all the time. His speech is so bad >its difficult to understand him. He is exhausted all the time and has gotten >to the point of not doing anything unless he has to. These symptoms along >with a multiptude of others has him very depressed. He doesn't follow any >type of exercising or diet. I live out of state and unfortunately only get >to see him 2-3 times a year. I speak to him and my Mother frequently at >least once a week. We really don't know how to help him. Any advise would be >appreciated. Thanks >Angie >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.