new here-Virginia Beach area-3 yr old

[Guest guest]

We live in va beach, VA my twin girls are 3 years old and was told

that Amie has oral and verbal apraxia and kimberly has oral and

severe verbal apraxia. They have sensory issues also. but they have

come along way with their therapy since last year. they are doing

great with the sensory things. they used to be so scared of going

down steps that now they do it holding on to the rail or my hand.

which i am so happy since they were getting heave to carry all the

time lol. their speech is so so amie will say either the ending or

beginning of sounds she knows some sign language her real words are

bye bye and ball. some jargon still and she tries to copy us talk to

her. kimberlys real word is bye bye and she make a lot of sounds

through out the day. she does not tell me what she wants or anything.

they have speech private twice a week 45 mins each they are in

preschool now and getting 3 times a week for 25 min though. so far

they are liking preschool. i just want them to be able to tell me

what they want. it's so hard for them and me at times when i don't

know. amie gets the hang of it but kimberly is still behind. but i am

pushing to help them. ok just wanted to say hi and glad to find other

parents that are going through the same things as us.

[Guest guest]

Welcome - you're in the right place! What types of therapy are our

daughters in? Have you purchased a copy of the Late Talker book? It's got a

lot of great advice, answers, etc. - available on Amazon. Have you read The Out

of Sync Child? It's got great advice and explanations for kids with sensory

issues (as well as the sequel to that one - The Out of Sync Child at Play if I

remember correctly). Strongly recommend both. Again, welcome!

Sherry

Baudin <j_cipriano@...> wrote:

We live in va beach, VA my twin girls are 3 years old and was told

that Amie has oral and verbal apraxia and kimberly has oral and

severe verbal apraxia. They have sensory issues also. but they have

come along way with their therapy since last year. they are doing

great with the sensory things. they used to be so scared of going

down steps that now they do it holding on to the rail or my hand.

which i am so happy since they were getting heave to carry all the

time lol. their speech is so so amie will say either the ending or

beginning of sounds she knows some sign language her real words are

bye bye and ball. some jargon still and she tries to copy us talk to

her. kimberlys real word is bye bye and she make a lot of sounds

through out the day. she does not tell me what she wants or anything.

they have speech private twice a week 45 mins each they are in

preschool now and getting 3 times a week for 25 min though. so far

they are liking preschool. i just want them to be able to tell me

what they want. it's so hard for them and me at times when i don't

know. amie gets the hang of it but kimberly is still behind. but i am

pushing to help them. ok just wanted to say hi and glad to find other

parents that are going through the same things as us.

[Guest guest]

they get speech therapy one on one. i'm not sure what you mean by

type? they go twice a week and work on their mouth and getting them

to form like blowing whistles, bubbles etc. kimberly is using

pictures right now. i have those books and i enjoyed reading them

also.

[Guest guest]

" > type? they go twice a week and work on their mouth and getting

them

> to form like blowing whistles, bubbles etc. "

I just wanted to comment that there is no research to support that

oral motor tx WITHOUT speech production (ie - blowing horns and

bubbles w/ no talking) helps a child w/ apraxia learn to talk. If the

child has low tone in the face (like dysarthria), then yes, it may

help to strengthen the facial muscles needed for speech. Using oral

motor tx to produce speech production is ok IMO - like blowing

bubbles and then saying " pop, pop, pop " over and over while you pop

the bubbles or saying the " ue " sound while putting your mouth around

a tube or a peice of garden hose. BUT, just blowing bubbles or

blowing on horns - how does that teach a child w/ apraxia to learn

sounds and then sequence sounds?

My dd spent her 1st yr in ST saying nothing, blowing lots of bubbles

and horns. Still, no speech. But, she sure could blow a bubble! We

found a slp who was experienced in treating motor speech disorders.

My dd said more in that 1st session than I have ever heard her say.

She needed someone to show her how to sequence sounds for speech.

I will lend you a tape at our first meeting that shows one of the

apraxia experts from CHOP treating several children w/ apraxia. After

watching it, you will know if you have the right slp!

Traci,

Hampton Roads SE VA Apraxia Support Group

[Guest guest]

just to let you know my twins also have low hyptonia as well. i mean

they don't just blow horns and bubbles and that's it. i mean with

kimberly she is using pictures for her to choose from since she does

not gesture or anything. but lately she has. she gets her to or try

for her to say pop pop pop with the bubbles.

with amie is the same thing amie just said beans today and she is

getting there also. i know this slp is right for my girls she is one

that gave me info on apraxia and on books. so i know i have the right

slp for my girls.

[Guest guest]

> she gets her to or try

> for her to say pop pop pop with the bubbles.

> with amie is the same thing amie just said beans today and she is

> getting there also.

That's great! I didn't mean to imply you have the wrong slp - I

mentioned being sure you have the right slp because our 1st slp dx my

dd w/ apraxia and gave me books, literature, etc. So, I felt she was

the right slp since she gave the dx and all this info to me. So, we

stayed w/ her for a yr. Later, after I decided to change slps, I

found out our 1st slp was using " auditory bombardment " to treat my

dd's apraxia. To put it mildly, I was very upset we had wasted an

entire yr on tx! I just hate to see anyone else go through that.

Good luck,

Traci

[Guest guest]

oh i know you were not impling we have the wrong slp. who do you see

now and what are they using for the speech method?

[Guest guest]

"

> oh i know you were not impling we have the wrong slp. who do you

see

> now and what are they using for the speech method? "

Hi again,

We see Cindi Zarpas of Norfolk Speech and Language on Monday. It will

be our 1st session w/ her. We have already seen 3 slp's in the area.

I just felt they didn't have a clear understanding of apraxia. (For

example, one slp felt Kennedy had a moderate receptive delay because

it takes massed and distributed practice of a goal in order for her

to develop a motor plan permanently - that would not be a moderate

receptive delay - it would be Apraxia!)

Cindi is the most experienced Prompt slp in the area, so Prompt is

the method she prefers to use. She also uses a multisensory approach -

so, she might be giving a Prompt cue, visual cue and auditory cue for

a sound at the same time. Kennedy does not like her face touched, so

I'm not sure if Prompt will work w/ her. Hopefully the brushing I

started recently will help. I've tried for yrs to " desensitize " her

face w/ no luck. Our OT said it was an " whole " body thing and we

needed to brush. So, we'll see!

Best,

Traci

[Guest guest]

We started brushing about 5 weeks ago. I couldn't believe the effects

it had on our son. He has apraxia with sensory issues. Per my

previous post, he only eats yogurt and crackers and outright refused

to even touch other foods. About a week after we started brushing, he

started taking apples out of the fridge and putting them to his mouth

and mouthing them. He still has never taking a bite but the fact that

he will touch them is amazing. He also likes to rub them on his bare

belly? He also does it with strawberries. When I ask him if he would

like me to brush him, he gets excited and nods yes. About 4 weeks

into brushing, he started brushing himself, he even brushed his belly

and tongue. I'm baffled by it but it's working!! Good luck

>

>

> Hi again,

>

> We see Cindi Zarpas of Norfolk Speech and Language on Monday. It

will

> be our 1st session w/ her. We have already seen 3 slp's in the

area.

> I just felt they didn't have a clear understanding of apraxia. (For

> example, one slp felt Kennedy had a moderate receptive delay

because

> it takes massed and distributed practice of a goal in order for her

> to develop a motor plan permanently - that would not be a moderate

> receptive delay - it would be Apraxia!)

>

> Cindi is the most experienced Prompt slp in the area, so Prompt is

> the method she prefers to use. She also uses a multisensory

approach -

> so, she might be giving a Prompt cue, visual cue and auditory cue

for

> a sound at the same time. Kennedy does not like her face touched,

so

> I'm not sure if Prompt will work w/ her. Hopefully the brushing I

> started recently will help. I've tried for yrs to " desensitize " her

> face w/ no luck. Our OT said it was an " whole " body thing and we

> needed to brush. So, we'll see!

>

> Best,

> Traci