Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 (()) I'm really sorry for all that you are having to go through. You and your family will be in my prayers. Have you talked with Darla about the vasculitis?? She could prob. be of some help to you since Asenath has that too. Hang in there, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 , I am so so very sorry to hear that yet more is being dished upon your plate. Here is a link I found on vasculitis. http://vasculitis.med.jhu.edu/ Simply, it is inflimation of blood vessels. From what I read and what my father went through for a dx, an MRI might only indicate. See below: How do we Diagnose Vasculitis? Patients with vasculitis learn that making the diagnosis is sometimes quite difficult. Many endure numerous doctors’ visits, tests, and hospitalizations before the pieces of the puzzle are assembled. The diagnosis of vasculitis usually requires a biopsy of an involved organ to secure a "tissue diagnosis". The two reasons for this are: # ONE: Vasculitis has many MIMICKERS (other diseases that have similar features but require different treatments). # TWO: The treatments for vasculitis itself involve substantial risk. No physician should prescribe such treatment without making every effort to secure a firm diagnosis. Blood tests, X–rays, and other studies may suggest the diagnosis of vasculitis, but often the only way to clinch the diagnosis is to biopsy an involved tissue, examine the tissue under the microscope in consultation with a pathologist (ideally one experienced at examining biopsies in vasculitis), and find the pathologic hallmarks of the disease. The trick to diagnosing vasculitis is to figure out the least invasive method of accomplishing this task. If a patient’s symptoms, physical examination, and diagnostic testing suggest involvement of a particular organ, one of the procedures below may be used to confirm (or exclude) the diagnosis of vasculitis: I would think your husband's surgeron needs to know about the loss in bowel and bladder function. He may be doing himself more damage. Can you at least call the doctor on his behalf? As for you, how are YOU doing besides going crazy worring about your family? You have to worry about you too. Hugs, Mrsmurffy@... wrote: Well I got a call yesterday from my sons Neuro. Remember he was in hospital about 3 weeks ago. He lost his eye sight and motor skills again. The neuro asked me for all his old MRI/MRA films and took more films. He called and said that my son has vasculitis. UGH.... I swear I am abaout at my end.. My husband is not recovering or getting better after his back surgery, he actually is getting worse. He is loosing control of bowel and bladder and cant walk well...he refuses any help and wont use his wheelchair... sorry to vent but I am at the end of my rope.... thanks Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 , I'm so sorry. I wish I had some magic words for you but there are none. You have had a horrible year and it looks as if the news just keeps getting worse for you. Hopefully, 2004 will turn things around. Can you talk to someone who is close to your husband who might have some influence on his thinking? It sounds as if he is dealing with pride. It has to be so tough. What does his doctor say about these problems? Hugs! Alice From: Mrsmurffy@... Well I got a call yesterday from my sons Neuro. Remember he was in hospital about 3 weeks ago. He lost his eye sight and motor skills again. The neuro asked me for all his old MRI/MRA films and took more films.He called and said that my son has vasculitis. UGH....I swear I am abaout at my end..My husband is not recovering or getting better after his back surgery, he actually is getting worse. He is loosing control of bowel and bladder and cant walk well...he refuses any help and wont use his wheelchair...sorry to vent but I am at the end of my rope....thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 , Please hang in there. We are all praying for you. What do they plan to do to treat your son for this? Does he have another appointment with the neuro? (If you haven't already, you need to call your husband's doctor and let them know how he's doing.) I hope you have someone close by to help you with some of these issues (physically and emotionally). You're a very strong person and I know you have the strength to to get you through this, but please lean on someone once and a while when you need to. Hugs, Maggie > Well I got a call yesterday from my sons Neuro. Remember he was in hospital > about 3 weeks ago. He lost his eye sight and motor skills again. The neuro > asked me for all his old MRI/MRA films and took more films. > He called and said that my son has vasculitis. UGH.... > I swear I am abaout at my end.. > My husband is not recovering or getting better after his back surgery, he > actually is getting worse. He is loosing control of bowel and bladder and cant > walk well...he refuses any help and wont use his wheelchair... > sorry to vent but I am at the end of my rope.... > thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 My heart and thoughts go out to you. I just want to wrap my arms around you. Others have made good suggestions and I know you are very strong. My dad has done well with his vasculitis, not even staying on the steroids like he was told to do. Hugs to you all, laurie > From: Mrsmurffy@... > Reply-To: > Date: Fri, 5 Dec 2003 08:25:00 EST > To: > Subject: : It never ends > > Well I got a call yesterday from my sons Neuro. Remember he was in hospital > about 3 weeks ago. He lost his eye sight and motor skills again. The neuro > asked me for all his old MRI/MRA films and took more films. > He called and said that my son has vasculitis. UGH.... > I swear I am abaout at my end.. > My husband is not recovering or getting better after his back surgery, he > actually is getting worse. He is loosing control of bowel and bladder and > cant > walk well...he refuses any help and wont use his wheelchair... > sorry to vent but I am at the end of my rope.... > thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 , Don't you apologize for venting girl!!!!!! That is what we are all here for! You have a lot on your plate right now, if you don't scoot some off on us you will pop!!!!! Hang in there and keep venting or you will never make it through all of this. Take it from an expert ventor girl!!!!LOL Hang tough ! Big Hugs O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 , I don't have any advice, but do want to let you know that I am keeping you in my thoughts and prayers. I am sending big gentle hugs your way. Hugs, a Well I got a call yesterday from my sons Neuro. Remember he was in hospital about 3 weeks ago. He lost his eye sight and motor skills again. The neuro asked me for all his old MRI/MRA films and took more films.He called and said that my son has vasculitis. UGH....I swear I am abaout at my end..My husband is not recovering or getting better after his back surgery, he actually is getting worse. He is loosing control of bowel and bladder and cant walk well...he refuses any help and wont use his wheelchair...sorry to vent but I am at the end of my rope....thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Dear , I hope you get some good news--SOON. I hope you can get your husband to the doctor as soon as possible. It certainly sounds as if somethng went awry in the surgery. I do not think that most men make very good patients. As you well know, the women in their lives must be in charge of the medical arena. I hope the docs can help your son's vasculitis. Amidst all this, please try to take care of yourself, too. You are in our thoughts and prayers. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Thanks for the link . Ill go through the site as soon as I get the chance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Thanks Maggie, Maybe this week coming up I can give you a call... i think we both need shoulders right now... Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2003 Report Share Posted December 7, 2003 Hi , Sending hugs and prayers your way. Ruth -----Original Message-----From: Mrsmurffy@... Sent: Friday, December 05, 2003 8:25 AMTo: Subject: : It never endsWell I got a call yesterday from my sons Neuro. Remember he was in hospital about 3 weeks ago. He lost his eye sight and motor skills again. The neuro asked me for all his old MRI/MRA films and took more films.He called and said that my son has vasculitis. UGH....I swear I am abaout at my end..My husband is not recovering or getting better after his back surgery, he actually is getting worse. He is loosing control of bowel and bladder and cant walk well...he refuses any help and wont use his wheelchair...sorry to vent but I am at the end of my rope....thanks Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
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