Re: long time no post----had medical issues

[Guest guest]

---Sorry to hear your family has been having such a rough winter. We

all desearve our pity parties once and a while. I hope you are

blessed with more healthy days this spring.

Best Wishes Dawn

In , " mitomomtoo " <mitomomtoo@a...> wrote:

> Hey Friends,

> I can't remember the last time I had the chance to post! It seems

> like forever!

>

> I will TRY to make this short and just hit a few " highlights " ------

-

> The kids and I have been having one issue after another.

>

> Here is just a guick list of the low down:

> 1. had my first infuse-a-port placed in Sept.

> 2. crapped out 3 weeks later needed a new one placed(slipped out

of

> the artery and clotted off so even the TPA wouldn't have helped)

> 3.been getting IV fliuds at home on and off for several months due

to

> dehydration and low potassiium. I get the cyclic vomiting and it

> drops my glucose and potassium.

> 4.suffered with several infections-----resp and otherwise.

> 5. had my nightmare come true when got the flu (of course

the

> one NOT covered by the shot :-) Had him home a week and almost had

to

> be hospitalized 2 times.

> 6. Drew home with strep which passed to me the the rest of the

family

> 7. needed a hysterectomy whcih had me out of comission for over 6

> weeks----let's face it we mito people don't recover a fast as the

> rest of the world----especially when there are any muscles

involved (

> abdomenal)

> 8.now suffering with another resp infection and the ole asthma is

> acting up----on steroids, my doc told me to tell the husband to

move

> out b/c by the end of the 5th day I ought to be a ***** on

wheels :-)

> 9 have had to put my daughter in full time daycare so I can

attempt

> to get a bit healthier (costing a near fortune and of course

although

> I would love to have my own life and maybe even got a job -----the

> Husband and Doc just laugh at me and wonder how long it would be

> before I woul need to first sick day off-----especially since my

> health bites when I am home resting and doing the basics. I have

to

> admit there are times when I really hate this disease becasue it

> makes feel a prisioner in my own body and prevents me from having

a

> normal productive life. I didn't go to College and get in lock

with

> loans to stay home and do laundery when I am well enough.

>

> Well enough of the Pity Party--------just wanted to explain my

> absence.

>

> Oh, BTW, I am a bit ticked about the New Date for the Conference---

---

> -most of us Southerners start school that very week and thereofre

it

> makes it virtually impossible for any of us to attend !!!!!

>

> Take Care Friends and be Healthy,

>

[Guest guest]

Dawn

Thanks so mcuh for thinking of us--------it is so great to knpw that

at anytime I can post and rely on all of you to help with the good

and bad times--------You all are the best and I am prevlidged to know

each and evryone of you!

[Guest guest]

,

I can't tell you how good it is to hear from you. I am sorry that you have had such a rough time of it lately. I haven't been good at e-mailing either. (I lost my address book, therefore losing your address). You and your family are in my thoughts and prayers. You certainly deserve a break from all of this!

Smiles and hugs,

a

On Wed, 10 Mar 2004 14:42:35 -0000 "mitomomtoo" writes:

Hey Friends,I can't remember the last time I had the chance to post! It seems like forever!I will TRY to make this short and just hit a few "highlights"-------The kids and I have been having one issue after another.Here is just a guick list of the low down:1. had my first infuse-a-port placed in Sept.2. crapped out 3 weeks later needed a new one placed(slipped out of the artery and clotted off so even the TPA wouldn't have helped)3.been getting IV fliuds at home on and off for several months due to dehydration and low potassiium. I get the cyclic vomiting and it drops my glucose and potassium.4.suffered with several infections-----resp and otherwise.5. had my nightmare come true when got the flu (of course the one NOT covered by the shot :-) Had him home a week and almost had to be hospitalized 2 times.6. Drew home with strep which passed to me the the rest of the family7. needed a hysterectomy whcih had me out of comission for over 6 weeks----let's face it we mito people don't recover a fast as the rest of the world----especially when there are any muscles involved ( abdomenal)8.now suffering with another resp infection and the ole asthma is acting up----on steroids, my doc told me to tell the husband to move out b/c by the end of the 5th day I ought to be a ***** on wheels :-)9 have had to put my daughter in full time daycare so I can attempt to get a bit healthier (costing a near fortune and of course although I would love to have my own life and maybe even got a job -----the Husband and Doc just laugh at me and wonder how long it would be before I woul need to first sick day off-----especially since my health bites when I am home resting and doing the basics. I have to admit there are times when I really hate this disease becasue it makes feel a prisioner in my own body and prevents me from having a normal productive life. I didn't go to College and get in lock with loans to stay home and do laundery when I am well enough.Well enough of the Pity Party--------just wanted to explain my absence.Oh, BTW, I am a bit ticked about the New Date for the Conference-------most of us Southerners start school that very week and thereofre it makes it virtually impossible for any of us to attend !!!!!Take Care Friends and be Healthy,Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack.

[Guest guest]

I am so sorry you have been dealing with so much sickness and surgery.

As far as the date change for the conference, the old date was not good

either as it was during the last two weeks of school - exam time. It must be

hard to find a time when families and professionals can be available. Be

sure to let UMDF that this one is at a bad time.

Hugs,

laurie

>

> Reply-To:

> Date: Wed, 10 Mar 2004 14:42:35 -0000

> To:

> Subject: long time no post----had medical issues

>

> Hey Friends,

> I can't remember the last time I had the chance to post! It seems

> like forever!

>

> I will TRY to make this short and just hit a few " highlights " -------

> The kids and I have been having one issue after another.

>

> Here is just a guick list of the low down:

> 1. had my first infuse-a-port placed in Sept.

> 2. crapped out 3 weeks later needed a new one placed(slipped out of

> the artery and clotted off so even the TPA wouldn't have helped)

> 3.been getting IV fliuds at home on and off for several months due to

> dehydration and low potassiium. I get the cyclic vomiting and it

> drops my glucose and potassium.

> 4.suffered with several infections-----resp and otherwise.

> 5. had my nightmare come true when got the flu (of course the

> one NOT covered by the shot :-) Had him home a week and almost had to

> be hospitalized 2 times.

> 6. Drew home with strep which passed to me the the rest of the family

> 7. needed a hysterectomy whcih had me out of comission for over 6

> weeks----let's face it we mito people don't recover a fast as the

> rest of the world----especially when there are any muscles involved (

> abdomenal)

> 8.now suffering with another resp infection and the ole asthma is

> acting up----on steroids, my doc told me to tell the husband to move

> out b/c by the end of the 5th day I ought to be a ***** on wheels :-)

> 9 have had to put my daughter in full time daycare so I can attempt

> to get a bit healthier (costing a near fortune and of course although

> I would love to have my own life and maybe even got a job -----the

> Husband and Doc just laugh at me and wonder how long it would be

> before I woul need to first sick day off-----especially since my

> health bites when I am home resting and doing the basics. I have to

> admit there are times when I really hate this disease becasue it

> makes feel a prisioner in my own body and prevents me from having a

> normal productive life. I didn't go to College and get in lock with

> loans to stay home and do laundery when I am well enough.

>

> Well enough of the Pity Party--------just wanted to explain my

> absence.

>

> Oh, BTW, I am a bit ticked about the New Date for the Conference------

> -most of us Southerners start school that very week and thereofre it

> makes it virtually impossible for any of us to attend !!!!!

>

> Take Care Friends and be Healthy,

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>