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Your Name (age)?: Armstrong

Where do you live?: Raglan, New Zealand

Name (age) of Child(ren) wcf: (Forever 23yrs)

Birthday of Child(ren) wcf: 17.03.78

Name (age) of siblings: 25yrs

Name (age) of spouse: 0

Your Hobbies: Craft work, gardening, reading, knitting,

computers.

Your Pet Peeve: The N.Z. Justice System

Your favorite Artist: Ethram

Visit my 'Dedication Website' to

http://mysite.xtra.co.nz/`Forever23

" Some people come into our lives and quickly go...

Others stay for a while and leave footprints on our

hearts and we are never the same "

" The Lord watch between me and thee, when we are absent

one from another "

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

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> Your Name (age)?: Carey Christiansen

>

> Where do you live?: Northern Utah, USA

>

> Name (age) of Child(ren) Calvin, 4 no CF - Liam 15 mo. w/ CF

>

> Birthday of Child(ren) wcf: 5/97 and 3/00

>

> Name (age) of spouse: Tyler

>

> Your Hobbies:

> Your Pet Peeve: closed minds

>

> Your favorite Artist: too many to name :)

>

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I am Sandy Campion (36 years) married to Ed (34 years)

We have 1 child - 2 years old who has cf and asthma

I am also 25 weeks pregnant (no cf)

We live in Christchurch, NEW ZEALAND which is a beautiful country about 3 1/2

hrs flight from Australia

We love motorcycling and were lucky enough in 1995 to ship our bikes to Los

Angeles and ride up to the Sturgis motorcycle rally in South Dakota.

I love all different types of music

Pet peeve would be people that do not know the road rules (I stay away from road

rage tho)

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My name is Herriott (32) married to Randy(36) our anniversary is

July 29 and it will be 9 yrs, but have been together for 11 yrs.

our children are

12 yrs w cf double delta f 508

7 yrs no cf and not a carrier

Elijah 2 yrs no cf and is a carrier

brandon has a different bio father.

We live in washington PA-- USA and at the end of the month we sell our

house to buy another--- much much bigger finally.

has had meconium ileus, stoma bag, reconnection, hernias,

incisional hernias, meconium ileus equivalent , pseudo, staph, strenomonous,

lung infections like crazy, and just about everything else.

as of today he is in the hospital and doing better but thats another email.

we are currently searching for a transplant hospital.

things we like to do--- mmmmmm i have to think about that our life anymore

is cf and work and the other kids and everything else.

but we do like to be at the ocean where it is peaceful and not cf related.

pet peeve dr finder and other drs that think they are better than us.

_______________________________________________________

Send a cool gift with your E-Card

http://www.bluemountain.com/giftcenter/

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Your Name (age)?:

Fox-Gray (40yr)

Where do you live?: Mesa, Arizona (Outskirts of Phoenix)

Name (age) of Child(ren) wcf: Shantell , 19

1/2 years old (Her Highness The Princess), she's going into her second year in

college at Arizona State University, majoring in biology (wants to be a marine

biologist) holds a 4.3 grade point average. She's 5'4 " , 110 pounds, sandy

blonde hair, blue eyes and a perfect figure that I wish I had!

Birthday of Child(ren) wcf: 12-12-81 (Christmas

baby!) Born in a storm on Kodiak Island, Alaska and flown to Anchorage for

emergency surgery for meconium ileus. I was 19years old at the time, and

never heard of CF in my life. No family history anywhere with CF. I

was so naive, I thought it was cerebral palsy when the doctors told me!

Name (age) of siblings: (Bullfrog) 22years

Robby

18 years

Tony

14 years

Name (age) of spouse: Jack () Gray

(46yr) My second husband, we were married last year on Valentine's Day

2-14-00.

Your Hobbies: Travelling (I work for an airline), talking to

this List on-line, spending time with my kids and helping them grow up. I

used to sew, cook, bake and all those wonderful things when I didn't have to

work for a living...man! Do I miss those days! I'm looking forward

to being a grandma many times over.

Your Pet Peeve: People who don't treat others the way they want

to be treated themselves

Your favorite Artist: Meatlof (Rosemary and I are

his biggest fans!!), Cher, Tom Petty, Celine Dion, and country music of all

sorts!

I want to thank everyone for being on this List, it has been such a

wonderful experience being able to communicate on the same level. For

nearly two decades (I learned of this list in January of this year), I have felt

alone in my struggle to understand CF, to help my daughter and to talk to other

people who know exactly what I'm going through. You are all my extended

family now, and I only hope that I can help in some way and return the

friendships of all!

--- Gray

--- bfoxgray@...

--- EarthLink: It's your Internet.

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In a message dated 7/11/01 9:14:31 PM Central Daylight Time, bono40@...

writes:

<<

> Your Name (age)?: Debbie Attig

>

> Where do you live?: Iowa, USA

>

> Name (age) of Child(ren) w/CF 9, Lynzie wo/CF 7, Natalynn w/CF 4

>

> Birthday of Child(ren) wcf: 7/21/92, 3/7/94, 5/3/97

>

> Name (age) of spouse:

>

> Your Hobbies: Riding my bike, crafts, swimming

> Your Pet Peeve: People that don't think before they speak

>

> Your favorite Artist: anything that sings Country Music

>

>>

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I

<<

> Your Name (age)?: Jennie (aka Jen)

>

> Where do you live?: Knoxville, Tn

>

> Name (age) of Child(ren)Miranda 9, Mollie 8, 7, 5, Madison 5,

Mallory 3, ph 2

>

> Birthday of Child(ren) wcf: 1/29/96, Mallory 10/5/97, ph

6/18/99

>

> Name (age) of spouse: Ron

>

> Your Hobbies: boating, scrapbooking or making picture collages for kids

walls, computers and email

> Your Pet Peeve: hmmmmmm? not sure

>

> Your favorite Artist: mostly old stuff

Jen

Mommy of 7, including ph 2 with CF, Mallory 3 with CF, RAD, GERD, OSA,

port-a-cath; 5 with CF, port-a-cath; 6, Miranda 9, Mollie 8

with Type 1 diabetes (juvenile diabetes) ; Madison 5 yo ; also aunt to

4 yo with CF

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Hi Leigh,

welcome to the list. Nice to hear that is doing well. And you

live near one of the best CF centers in the world, what is an

advantage too. Regarding the use of antibiotics you have to

distinguish between what is said in the media about overuse of

antibiotics in the general population and their necessity for our

kids. Antibiotics are a crucial part of CF treatment and are majorly

responsible for the large increase in life expectancy over the last

decades.

A normal ped, who isn't aware of the special needs of children with

CF may be VERY surprised about the dose and the length of antibiotic

intake (our ped was), but giving high doses for a long enough period

of time is important to lessen the risk of resistance.

Bye

Torsten

> Name: Leigh Staelin, 32

>

> Live: Chapel Hill, NC

>

> Children: 2 daughters, Frances 11 (in Sept.) Kennan 3, and 1 son,

> 16 months (w/cf)

>

> Spouse: Adam 35 (in Oct)

>

> We are still fairly new to CF, was not diagnosed until

January 2001.

> He is doing great and gaining weight steadily so far. He has not

been

> hospitalized other than having a bronch in March. He hates CPT and

> therefore that is the worst part of my day! I have been reading

everyone's

> posts on the vest and hope that will be an option for us one day.

He has

> been on oral antibiotics several times and we hope that we are not

allowing

> this too often so that there will be resistances too soon. (Still

not clear

> on that)

>

>

>

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