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Re: Going for a blood test. When to take my meds??

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Hi Gwen,

Take meds after draw so as not have a higher reading. That is how I

do it anyway, especially when doing a fasting draw for other

things. It will also give you another perspective on where your

levels are in the a.m. Hope this helps.

Dawn in Canada

>

> Hi everyone

> This week I'm going to go for blood work. But this time I need to

fast

> for other tests so I'm up in the air as to if I should take my

meds

> before or after the draw. I'm on Synthroid. Normally when I just

do a

> draw for thyroid I go in the afternoon and its about 8 hours after

I

> have taken my meds. I try to keep it around the same time so we

can

> compare. But with having to fast that means I'm going first thing

for

> the blood draw. So to keep it as close to being the same would it

be

> best to do the draw before I take my meds?

>

> I'm confused about all of this. I had one doc who said not to take

the

> med before a draw and one that said it did not matter. I would

think

> that your T4 level would be higher at some point,depending on how

your

> body absorbs it. For me when I cahnged doses I could feel the new

dose

> within an hour.

>

> Would love to hear thoughts and what others do.

> Thanks

> Gwen

>

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Take the Synthroid after the blood draw.... it does elevate the T4 level

if you take it before....

Topper ()

On Tue, 06 Jun 2006 23:25:40 -0000 " gwenbob39 "

writes:

> Hi everyone

> This week I'm going to go for blood work. But this time I need to

> fast

> for other tests so I'm up in the air as to if I should take my meds

>

> before or after the draw. I'm on Synthroid. Normally when I just do

> a

> draw for thyroid I go in the afternoon and its about 8 hours after I

>

> have taken my meds. I try to keep it around the same time so we can

>

> compare. But with having to fast that means I'm going first thing

> for

> the blood draw. So to keep it as close to being the same would it be

>

> best to do the draw before I take my meds?

>

> I'm confused about all of this. I had one doc who said not to take

> the

> med before a draw and one that said it did not matter. I would think

>

> that your T4 level would be higher at some point,depending on how

> your

> body absorbs it. For me when I cahnged doses I could feel the new

> dose

> within an hour.

>

> Would love to hear thoughts and what others do.

> Thanks

> Gwen

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Do you think the times I did a blood draw 8 hours after taking the

meds was a true reading of my levels?

I so appreciate the thoughts here from everyone. I'm actaully looking

forward to getting my blood drawn!. I feel yucky. I dont think my

levels are optimal yet and I want to get the truest level reading I

can.

Gwen

>

> Take the Synthroid after the blood draw.... it does elevate the T4

level

> if you take it before....

>

> Topper ()

>

> On Tue, 06 Jun 2006 23:25:40 -0000 " gwenbob39 "

> writes:

> > Hi everyone

> > This week I'm going to go for blood work. But this time I need to

> > fast

> > for other tests so I'm up in the air as to if I should take my

meds

> >

> > before or after the draw. I'm on Synthroid. Normally when I just

do

> > a

> > draw for thyroid I go in the afternoon and its about 8 hours

after I

> >

> > have taken my meds. I try to keep it around the same time so we

can

> >

> > compare. But with having to fast that means I'm going first thing

> > for

> > the blood draw. So to keep it as close to being the same would it

be

> >

> > best to do the draw before I take my meds?

> >

> > I'm confused about all of this. I had one doc who said not to

take

> > the

> > med before a draw and one that said it did not matter. I would

think

> >

> > that your T4 level would be higher at some point,depending on how

> > your

> > body absorbs it. For me when I cahnged doses I could feel the new

> > dose

> > within an hour.

> >

> > Would love to hear thoughts and what others do.

> > Thanks

> > Gwen

>

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Hi Dawn

Thanks you very much for your thoughts. You bring up a great point on

knowing then where I stand in the AM pre meds. I can remember times

that I did get a blood draw in the morning but I had taken my meds. I

should go back thru tests and see what the readings were. I have

Hashi and some of the tests I recall were really out there number

wise while they were trying to balance me.

Gwen

> >

> > Hi everyone

> > This week I'm going to go for blood work. But this time I need to

> fast

> > for other tests so I'm up in the air as to if I should take my

> meds

> > before or after the draw. I'm on Synthroid. Normally when I just

> do a

> > draw for thyroid I go in the afternoon and its about 8 hours

after

> I

> > have taken my meds. I try to keep it around the same time so we

> can

> > compare. But with having to fast that means I'm going first thing

> for

> > the blood draw. So to keep it as close to being the same would it

> be

> > best to do the draw before I take my meds?

> >

> > I'm confused about all of this. I had one doc who said not to

take

> the

> > med before a draw and one that said it did not matter. I would

> think

> > that your T4 level would be higher at some point,depending on how

> your

> > body absorbs it. For me when I cahnged doses I could feel the new

> dose

> > within an hour.

> >

> > Would love to hear thoughts and what others do.

> > Thanks

> > Gwen

> >

>

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HI Gwen,

I was actually able to put the blood draw test to a test :)

I had my primary doc order thryoid panel as well as my endo.

With one I took my T4 before with the other I did not. They were drawn ONE DAY apart

And here are my results and as you can see almost no difference other than the T4F which does seem to rise with the meds taken prior.

sue

4/27, NO THYROID MEDS BEFORE DRAW:

TSH: .41   range: .40-5.50

T3F: 285  range: 230-420

T4F: 1.1  range .8-1.8

4/28, took ALL MEDS, both T3 and T4 prior

TSH: .35 (L)     range: .40-5.50

T3F: 295          range: 230-420

T4F: 2.5 (H)    range: .8-1.8

I was on .112 levoxyl and 15 mcg Cytomel.

Do you think the times I did a blood draw 8 hours after taking the

meds was a true reading of my levels?

I so appreciate the thoughts here from everyone. I'm actaully looking

forward to getting my blood drawn!. I feel yucky. I dont think my

levels are optimal yet and I want to get the truest level reading I

can.

Gwen

>

> Take the Synthroid after the blood draw.... it does elevate the T4

level

> if you take it before....

>

> Topper ()

>

> On Tue, 06 Jun 2006 23:25:40 -0000 " gwenbob39 "

> writes:

> > Hi everyone

> > This week I'm going to go for blood work. But this time I need to

> > fast

> > for other tests so I'm up in the air as to if I should take my

meds

> >

> > before or after the draw. I'm on Synthroid. Normally when I just

do

> > a

> > draw for thyroid I go in the afternoon and its about 8 hours

after I

> >

> > have taken my meds. I try to keep it around the same time so we

can

> >

> > compare. But with having to fast that means I'm going first thing

> > for

> > the blood draw. So to keep it as close to being the same would it

be

> >

> > best to do the draw before I take my meds?

> >

> > I'm confused about all of this. I had one doc who said not to

take

> > the

> > med before a draw and one that said it did not matter. I would

think

> >

> > that your T4 level would be higher at some point,depending on how

> > your

> > body absorbs it. For me when I cahnged doses I could feel the new

> > dose

> > within an hour.

> >

> > Would love to hear thoughts and what others do.

> > Thanks

> > Gwen

>

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>

>

> Do you think the times I did a blood draw 8 hours after taking the

> meds was a true reading of my levels?

> I so appreciate the thoughts here from everyone. I'm actually

looking

> forward to getting my blood drawn!. I feel yucky. I dont think my

> levels are optimal yet and I want to get the truest level reading

I

> can.

> Gwen

My understanding is Synthroid or the other T4 hormones reach a peak

in the blood approx 1/2 hours after you take the pill. Now this is

not the T4 in your system but the T4 from the pill going into the

system. The T4 in your system has a 1/2 life somewhere around 7 days.

The free T4 test does not differenciate between what is coming out

and what is going into the system.. some places I have read to not

take your meds at all that day and other sources say 4 hours..so if

you are going for a morning blood draw you wait til after the test,

if you are going for an afternoon blood draw you space it a minimum

4 hours after your medication..I am not sure how this applies to

Armour but I would assume the T4 has the same direct effect on the

blood readings? Maybe someone else knows..

But for consistancy readings it is best to get blood drawn at the

same time each time so most opt for no meds, do am blood work and

then pop the pills and go on with the day.

Kats3boys

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kats3boys

Great explanation. Can't thank you enough. I agree with getting the

tests done at the same time. I think I will switch to mornings now

seeing they thew these fasting tests at me this time. All my other

tests were done late afternoon so I guess it will be an interesting

comparison.

Gwen

> >

> >

> > Do you think the times I did a blood draw 8 hours after taking

the

> > meds was a true reading of my levels?

> > I so appreciate the thoughts here from everyone. I'm actually

> looking

> > forward to getting my blood drawn!. I feel yucky. I dont think my

> > levels are optimal yet and I want to get the truest level reading

> I

> > can.

> > Gwen

>

>

> My understanding is Synthroid or the other T4 hormones reach a peak

> in the blood approx 1/2 hours after you take the pill. Now this is

> not the T4 in your system but the T4 from the pill going into the

> system. The T4 in your system has a 1/2 life somewhere around 7

days.

> The free T4 test does not differenciate between what is coming out

> and what is going into the system.. some places I have read to not

> take your meds at all that day and other sources say 4 hours..so if

> you are going for a morning blood draw you wait til after the test,

> if you are going for an afternoon blood draw you space it a minimum

> 4 hours after your medication..I am not sure how this applies to

> Armour but I would assume the T4 has the same direct effect on the

> blood readings? Maybe someone else knows..

> But for consistancy readings it is best to get blood drawn at the

> same time each time so most opt for no meds, do am blood work and

> then pop the pills and go on with the day.

>

> Kats3boys

>

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Wow Sue

Thanks for sharing that. Do you feel hyper after you take your meds?

I think I'm going to skip taking my meds until after the blood draw.

Gwen

> >> >

> >> > Take the Synthroid after the blood draw.... it does elevate

the T4

> > level

> >> > if you take it before....

> >> >

> >> > Topper ()

> >> >

> >> > On Tue, 06 Jun 2006 23:25:40 -0000 " gwenbob39 " <gwenbob39@>

> >> > writes:

> >>> > > Hi everyone

> >>> > > This week I'm going to go for blood work. But this time I

need to

> >>> > > fast

> >>> > > for other tests so I'm up in the air as to if I should take

my

> > meds

> >>> > >

> >>> > > before or after the draw. I'm on Synthroid. Normally when I

just

> > do

> >>> > > a

> >>> > > draw for thyroid I go in the afternoon and its about 8 hours

> > after I

> >>> > >

> >>> > > have taken my meds. I try to keep it around the same time

so we

> > can

> >>> > >

> >>> > > compare. But with having to fast that means I'm going first

thing

> >>> > > for

> >>> > > the blood draw. So to keep it as close to being the same

would it

> > be

> >>> > >

> >>> > > best to do the draw before I take my meds?

> >>> > >

> >>> > > I'm confused about all of this. I had one doc who said not

to

> > take

> >>> > > the

> >>> > > med before a draw and one that said it did not matter. I

would

> > think

> >>> > >

> >>> > > that your T4 level would be higher at some point,depending

on how

> >>> > > your

> >>> > > body absorbs it. For me when I cahnged doses I could feel

the new

> >>> > > dose

> >>> > > within an hour.

> >>> > >

> >>> > > Would love to hear thoughts and what others do.

> >>> > > Thanks

> >>> > > Gwen

> >> >

> >

> >

> >

>

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Hi Gwen,

The T3, cytomel used to give me a “rush” when I first started on it in March, but I have never felt anything from the T4.

I think not taking the meds is good if you do A.M. Blood work but if it’s late afternoon, to take it — after all, it’s the measurement of how your body is doing ON the meds and not without them.

I know some disagree with that but it’s the way I see it — if I don’t take my blood pressure med before a doctor appt, it goes way up... So they need to see how well the med is working.

Just my humble 2 cents.

sue

Wow Sue

Thanks for sharing that. Do you feel hyper after you take your meds?

I think I'm going to skip taking my meds until after the blood draw.

Gwen

>

> HI Gwen,

> I was actually able to put the blood draw test to a test :)

>

> I had my primary doc order thryoid panel as well as my endo.

> With one I took my T4 before with the other I did not. They were

drawn ONE

> DAY apart

> And here are my results and as you can see almost no difference

other than

> the T4F which does seem to rise with the meds taken prior.

>

> sue

>

>

> 4/27, NO THYROID MEDS BEFORE DRAW:

>

> TSH: .41   range: .40-5.50

> T3F: 285  range: 230-420

> T4F: 1.1  range .8-1.8

>

> 4/28, took ALL MEDS, both T3 and T4 prior

>

> TSH: .35 (L)     range: .40-5.50

> T3F: 295          range: 230-420

> T4F: 2.5 (H)    range: .8-1.8

>

>

> I was on .112 levoxyl and 15 mcg Cytomel.

>

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My own personal thoughts with this is that, for me, I want to get the

reading that shows what my body is doing with the dose I am taking...

I don't care what it's doing while the dose is fresh in my system.

What matters is whether the body has enough hormone stored away to

give it what it needs to make the T3 that we need to live... If we

can't 'be healthy' between doses... we're not where we need to be

yet, are we?

It's bad enough to have to take a medication every day.... but... how

to put this....

My body still has conversion issues. So I have to keep multi-dosing

to keep my T3 levels up enough for my body to function..... It's not

so bad now, not like it was a couple of years ago... being late with

a dose a couple of years ago and I'd be nodding off in my chair... I

did ANOTHER test on myself, just to see what would happen.... I

skipped my bedtime dose last night.... Now... in the past that would

have guaranteed that I'd be waking up with 'which truck hit me this

time' syndrome... but as it is I just have a mild headache... the

kind you get with too much sun outside....

Anyway.. that's my logic in taking 'fasting' labs (not taking thyroid

meds for 8 to 12 hours or so before a blood draw).

Topper ()

>

>

> Do you think the times I did a blood draw 8 hours after taking the

> meds was a true reading of my levels?

> I so appreciate the thoughts here from everyone. I'm actaully

looking

> forward to getting my blood drawn!. I feel yucky. I dont think my

> levels are optimal yet and I want to get the truest level reading I

> can.

> Gwen

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I see what your saying Topper

Years and years ago when I was on a stable dose there would be days

that forgot to take my meds. Once I missed 2 days in a row and I

felt no ill effects from that. I did not make that a habit but it

would just slip my mind because I felt great.

I dont convert well. My T3 is in the bottom levels. I take Synthroid

and have since 1988. Up until the last 4 years I had felt great. No

One even knew I had Thyroid issues.

I appreciate your thoughts. Going tomorrow for my blood draw. I just

fast for it and thing I hate about that is it seems you know you have

to stop eating at a certain time. It just seems I'm starving your at

my cut off time!! LOL

I do think I'm going to take my med after the draw this time. My

usually time to take my med is betwenn 7-8am and I plan on a 7:30am

blood draw.

Gwen

> >

> >

> > Do you think the times I did a blood draw 8 hours after taking

the

> > meds was a true reading of my levels?

> > I so appreciate the thoughts here from everyone. I'm actaully

> looking

> > forward to getting my blood drawn!. I feel yucky. I dont think my

> > levels are optimal yet and I want to get the truest level reading

I

> > can.

> > Gwen

>

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Hi Topper, hope things are going well for you. :)

Good point but as you even state, you need to multi-dose to keep that T3 level up so

in essence we are NOT healthy “between doses” but WITH the doses.

While I don’t think meds should be taken right before a blood draw, as y’all can see by

by results from with and without, there is very little difference if you do take your med

except for the T4.

The docs need to see how we are doing WITH the meds, not so much without them...

Hope that makes sense.

Sue

What matters is whether the body has enough hormone stored away to

give it what it needs to make the T3 that we need to live... If we

can't 'be healthy' between doses... we're not where we need to be

yet, are we?

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Hi Topper, hope things are going well for you. :)Good point but as you even state, you need to multi-dose to keep that T3 level up so in essence we are NOT healthy “between doses” but WITH the doses.While I don’t think meds should be taken right before a blood draw, as y’all can see by by results from with and without, there is very little difference if you do take your med except for the T4. The docs need to see how we are doing WITH the meds, not so much without them...Hope that makes sense.Sue

..

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Guest guest

I just

> fast for it and thing I hate about that is it seems you know you

have

> to stop eating at a certain time. It just seems I'm starving your at

> my cut off time!! LOL

I agree, I hate fasting..I always ask my doctor what I di dto piss him

off when he sends me for a fasting test. I go to bed after I can not

eat or try to and wake up as close as I can to the blood draw as

possible... I am not on meds to worry about btu I pack a snack to eat

as soon as they do the blood draw.

Kats3boys

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Hi Kats, hope all is well.

RE: fasting: my doc just has me stop eating after 10pm, sometimes midnight and I don’t eat that late anyway, do you?

Then I go first thing in the morning for the draw -- so all I miss is my one cup of coffee that’s just postponed an hour or so...

I used to be a night owl and dinner was late as was snack but those days are long gone :)

Sue

I agree, I hate fasting..I always ask my doctor what I di dto piss him

off when he sends me for a fasting test. I go to bed after I can not

eat or try to and wake up as close as I can to the blood draw as

possible... I am not on meds to worry about btu I pack a snack to eat

as soon as they do the blood draw.

Kats3boys

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Guest guest

My problem is not at night but in the morning, I am usually up

around 6:30-7 and I wake up hungry.. the labs do not open here til

8:30 and making food for three hungry boys so they can go to school

and not being able to eat does not go over very well..I eat all day

but in the mornings is when I am really hungry and I tend to be a

grump without my food and even if I am not hungry , tell me I can

not have food and food is all I will think about..

Good luck with the blood test..

Kats3boys

> > Hi Kats, hope all is well.

> >

> > RE: fasting: my doc just has me stop eating after 10pm,

sometimes midnight

> > and I don¹t eat that late anyway, do you?

> >

> > Then I go first thing in the morning for the draw -- so all I

miss is my one

> > cup of coffee that¹s just postponed an hour or so...

> >

> > I used to be a night owl and dinner was late as was snack but

those days are

> > long gone :)

> >

> > Sue

> >

> >

> >

> >

> >

> >

> >

> >

> > I agree, I hate fasting..I always ask my doctor what I di dto

piss him

> > off when he sends me for a fasting test. I go to bed after I can

not

> > eat or try to and wake up as close as I can to the blood draw as

> > possible... I am not on meds to worry about btu I pack a snack

to eat

> > as soon as they do the blood draw.

> >

> > Kats3boys

> >

> >

> >

>

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Hi Kats,

So when do you take your thyroid meds and how soon after do you eat?

I get up at 6:30 to 7 am most days and can’t eat for at least an hour cuz I take my T4 on waking,

so I just run get my labwork since my endo is open by 8 am.

I don’t have any blood tests for at least a month but Gwen does ...

Sue

My problem is not at night but in the morning, I am usually up

around 6:30-7 and I wake up hungry.. the labs do not open here til

8:30 and making food for three hungry boys so they can go to school

and not being able to eat does not go over very well..I eat all day

but in the mornings is when I am really hungry and I tend to be a

grump without my food and even if I am not hungry , tell me I can

not have food and food is all I will think about..

Good luck with the blood test..

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Guest guest

>

>

> Hi Kats,

>

> So when do you take your thyroid meds and how soon after do you

eat?

> I get up at 6:30 to 7 am most days and can¹t eat for at least an

hour cuz I

> take my T4 on waking,

> so I just run get my labwork since my endo is open by 8 am.

>

> I don¹t have any blood tests for at least a month but Gwen does ...

>

> Sue

>

>

I am not on any meds, so I do not have that problem. hoping to not

need meds but thinking for me bedtime would be better.

Kats3boys

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Hi Kats,

Ok, I figured you were on thyroid meds with a lot of your responses about all the meds...and blood work...Did you used to be on them?

I don’t memorize what everyone has posted do if you have told your story before, I must have missed it, sorry, I thought you were on meds.

sue

> Sue

>

>

I am not on any meds, so I do not have that problem. hoping to not

need meds but thinking for me bedtime would be better.

Kats3boys

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Guest guest

>

> Hi Kats,

>

> Ok, I figured you were on thyroid meds with a lot of your

responses about

> all the meds...and blood work...Did you used to be on them?

>

> I don¹t memorize what everyone has posted do if you have told your

story

> before, I must have missed it, sorry, I thought you were on meds.

>

> sue

>

So far I am undiagnosised, or diagnosised subclinical hyper with

hyper swings and the dumb docs have no idea why..so far it has been

about a year and a half, I do a lot of reading and a lot of

research. Either I am going to go full blown hyper or crash hypo so

keeping options open I am just trying to learn what I can until the

rollercoaster ride stops.

Kats3boys

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Hi Kats,

What were your last labs/ranges?

I think you mentioned you don’t want to be on meds but if you are that hyper, it sounds like you might need to be.

It sounds horrible to be going on such a roller coaster as you describe — I have been there –for about 15 years in my 20s to 30s until I did “crash”.

Some is thyroid, some adrenal, and some just doing too much all the time, every day without having taken good care of myself.

It happens to so many women – we just never seem to be able to shut down emotionally and mentally...or at least I didn’t for decades...

Sue

>

> Hi Kats,

>

> Ok, I figured you were on thyroid meds with a lot of your

responses about

> all the meds...and blood work...Did you used to be on them?

>

> I don’t memorize what everyone has posted do if you have told your

story

> before, I must have missed it, sorry, I thought you were on meds.

>

> sue

>

So far I am undiagnosised, or diagnosised subclinical hyper with

hyper swings and the dumb docs have no idea why..so far it has been

about a year and a half, I do a lot of reading and a lot of

research. Either I am going to go full blown hyper or crash hypo so

keeping options open I am just trying to learn what I can until the

rollercoaster ride stops.

Kats3boys

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Guest guest

>

> Hi Kats,

>

> What were your last labs/ranges?

>

> I think you mentioned you don¹t want to be on meds but if you are

that

> hyper, it sounds like you might need to be.

> It sounds horrible to be going on such a roller coaster as you

describe ‹ I

> have been there ­for about 15 years in my 20s to 30s until I did

³crash².

>

> Some is thyroid, some adrenal, and some just doing too much all

the time,

> every day without having taken good care of myself.

> It happens to so many women ­ we just never seem to be able to shut

down

> emotionally and mentally...or at least I didn¹t for decades...

>

> Sue

>

>

TRAB 5..>5 neg, < 15 positive.

TPO 34 0-35

TSH 0.92 0.45-5

FT4 19 9-20.

Doctor's therory is I swing hyper and back, not enough to show on

the bloodwork though. The doctor did do a trial of PTU to see if it

would level things out in which after three weeks of taking it and

Benadryl I had to discontinue..allergic.

I have allergies big time.. not to food but a chemical sensitivity.

Although the doc says I can try Tapazole because I have a

sulphur/sulpha/sulpite allergy and both PTU and Tap contain sulphite

molecules he would rather save it until needed as he figures I will

react to it.. tried Bromelain to reduce the goiter to see if that

would help and found out they extract the sulpites from the

pineapple to make it..after a hospital trip..

Although I have no nodules but a diffuse enlarged goiter the ENDO

did a FNA to rul eout Hashi's. and now I am att he point where my

allergist says it is my thyroid, my ENDO says it is my allergies and

I am waiting for more allergy testing but it will need to be done in

the hospital.

The new line of thinking is that I am allergic to Iodine and my body

is attacking the iodine in my thyroid??

But if you break down my allergies..red #3, yellow #5,yellow dyes,

msg, sulphites, chlorine and meds most of them either contain iodine

or sulphites.

I still have my days but I have been doing much better by limiting

my iodine intake and when I don't I know it is a big trigger for me.

My ENDO sent me for a 24 hour urine iodine test but it is not

available here so I was dumb and did the patch test in which I hived

out bad in about 20 mins.

On a good note RAI is out of the question for me. The only time RAI

has come up in conversation is the ENDO telling me I would not be

allowed to have RAI or RAI uptake scan or any iodine contrasting

agents..

Diet wise I do pretty good most of the time, having had long

standing MSG and Sulphite allergies I do not do much processed food

at all. I have always eaten a lot and been on the lower end of the

wieght scale so anything diet is taboo in my house so no nutrasweet

or other chemicals.

So so far I take a b-complex and avoid iodine, still need to quit

smoking and see if that helps although the doc is convinced it will

send me hyper.. I limit my coffee to one cup in the morning( use to

drink a lot) and take a reactine because my allergies are getting

worse( some customer at work sent me to the hospital with too much

perfume on, first time for that about a month ago) I have noticed

with the Reactine though I am not getting the sharp pains in my

thyroid as much and my swings are less so maybe that is helping?

Long story sorry, but you see why I am not on any meds..

Basically my options do not look good unless I wake up one morning

and this all goes away..

Option 1..supressive dose of T4 meds..not happening unless my TSH

can be proven to be responsive.

Option 2..try Tap and if allergic partial thyroidectomy.

Option 3..if iodine is the problem try medically desensitizing to

iodine but would have to be done in the hospital and if it can not

be done then a total thyroidectomy.

Option 4..wait and see, do more research and hope they come up with

a better option..

Kats3boys

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Guest guest

Hi Kats,

How did you get all your allergies diagnosed, particularly the food dye ones?

I would love to have that done but don’t have a clue where to start.

I live in Texas and tell doctors I have allergies and they prescribe Zyrtec or Flonase and that’s the end of it.

What is PTU and what were you allergic to that you had to stop doing for the test?

How’s your immune system and I wonder why you have so many allergies to so many things in the environment..?

Were you sick often as a child or frail?

Your labs look “normal” to me and in good ranges but for the TPO which is just about out of range and would point to Hashis, wouldn’t it?

Sue

>

TRAB 5..>5 neg, < 15 positive.

TPO 34 0-35

TSH 0.92 0.45-5

FT4 19 9-20.

Doctor's therory is I swing hyper and back, not enough to show on

the bloodwork though. The doctor did do a trial of PTU to see if it

would level things out in which after three weeks of taking it and

Benadryl I had to discontinue..allergic.

I have allergies big time.. not to food but a chemical sensitivity.

Although the doc says I can try Tapazole because I have a

sulphur/sulpha/sulpite allergy and both PTU and Tap contain sulphite

molecules he would rather save it until needed as he figures I will

react to it.. tried Bromelain to reduce the goiter to see if that

would help and found out they extract the sulpites from the

pineapple to make it..after a hospital trip..

Although I have no nodules but a diffuse enlarged goiter the ENDO

did a FNA to rul eout Hashi's. and now I am att he point where my

allergist says it is my thyroid, my ENDO says it is my allergies and

I am waiting for more allergy testing but it will need to be done in

the hospital.

The new line of thinking is that I am allergic to Iodine and my body

is attacking the iodine in my thyroid??

But if you break down my allergies..red #3, yellow #5,yellow dyes,

msg, sulphites, chlorine and meds most of them either contain iodine

or sulphites.

I still have my days but I have been doing much better by limiting

my iodine intake and when I don't I know it is a big trigger for me.

My ENDO sent me for a 24 hour urine iodine test but it is not

available here so I was dumb and did the patch test in which I hived

out bad in about 20 mins.

On a good note RAI is out of the question for me. The only time RAI

has come up in conversation is the ENDO telling me I would not be

allowed to have RAI or RAI uptake scan or any iodine contrasting

agents..

Diet wise I do pretty good most of the time, having had long

standing MSG and Sulphite allergies I do not do much processed food

at all. I have always eaten a lot and been on the lower end of the

wieght scale so anything diet is taboo in my house so no nutrasweet

or other chemicals.

So so far I take a b-complex and avoid iodine, still need to quit

smoking and see if that helps although the doc is convinced it will

send me hyper.. I limit my coffee to one cup in the morning( use to

drink a lot) and take a reactine because my allergies are getting

worse( some customer at work sent me to the hospital with too much

perfume on, first time for that about a month ago) I have noticed

with the Reactine though I am not getting the sharp pains in my

thyroid as much and my swings are less so maybe that is helping?

Long story sorry, but you see why I am not on any meds..

Basically my options do not look good unless I wake up one morning

and this all goes away..

Option 1..supressive dose of T4 meds..not happening unless my TSH

can be proven to be responsive.

Option 2..try Tap and if allergic partial thyroidectomy.

Option 3..if iodine is the problem try medically desensitizing to

iodine but would have to be done in the hospital and if it can not

be done then a total thyroidectomy.

Option 4..wait and see, do more research and hope they come up with

a better option..

Kats3boys

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Guest guest

>

> Hi Kats,

>

> How did you get all your allergies diagnosed, particularly the

food dye

> ones?

> I would love to have that done but don¹t have a clue where to

start.

> I live in Texas and tell doctors I have allergies and they

prescribe Zyrtec

> or Flonase and that¹s the end of it.

>

> What is PTU and what were you allergic to that you had to stop

doing for the

> test?

>

> How¹s your immune system and I wonder why you have so many

allergies to so

> many things in the environment..?

> Were you sick often as a child or frail?

>

> Your labs look ³normal² to me and in good ranges but for the TPO

which is

> just about out of range and would point to Hashis, wouldn¹t it?

>

> Sue

>

I am healthy, never really sick as a child either, very athletic..my

allergies started in Grade 10 doing an experiment in chem class that

involved different heat sources and reactions to sulphur..put me in

the hospital for 4 days. For the other allergies it is a matter of

keeping a food diary and yeah unfortunately I have been to the

hospital more than once with an allergic reaction..other than

allergies never sick unless it is a sinus infection from the

allergies. But most of my allergies are digested so hives, swollen

lips, swollen face..this is how they usually tell if it is something

you have eaten or something in the air..

my allergist does what he calls challenge tests.. usually if I can

suspect it he will then give me the substance starting off in small

increments and slowly increasing the amount to see if I have a

reaction..

My last one was to see if I was still allergic to codiene.. I was

given 1mg every 15 mins for 2 doses and then 2 mgs every 15

mins..til I hit 8 mgs..that was the end of it for me..hives.

PTU is like Tapazole, an anti thyroid drug,it is meant to slow the

production of the thyroid down..I was on a low dose just to try and

stop the flucuating. I was allergic to PTU did not have to stop it

for a test but because even taking it with Benadryl my body reacted

to it.

My labs are normal..My FT4 is at the top of the range, it swings

back and forth between being at the top end and being just over.

This is why I am playing the wait and see game.

TPO is seen in both Hashi's and Grave's although with Hashi's it is

seen normally at a much higher number. TPO is an enxyme in the

thyroid, during thyroid inflammation and also during the cell

destruction seen in Hashi's TPO is released into the blood stream..

Being that TPO is not suppose to enter the blood stream the body

reccognizes it as foriegn and produces antibodies against it. TPO in

sense is an inflammatory marker for the thyroid.

This is from the Thyroid manager on FNA's and what my ENDO has gone

on..

Benign Cytology

Aspirates obtained from multinodular goiters, benign microfollicular

adenoma, or normal thyroid are referred to as " colloid nodules " and

show loosely cohesive sheaths of follicular epithelium, colloid,

blood, and rare macrophages. Colloid nodules contain an abundance of

colloid with sparse follicular cells. There is considerable

variation in the number of cells as well as the type and amount of

colloid present.

Another benign diagnosis is Hashimoto's thyroiditis; it has a fairly

characteristic pattern on FNA smears, showing hypercellularity with

lymphocytes, Hürthle cells, and minimal or no colloid

This is what my Biopsy report says..

follicular epithelium, colloid, blood, and rare macrophages.

So no lympocytes or hurthle cells means no Hashi's and the thyroid

is normal..

Although a high TPO in the 100's or higher usually indicates

Hashimoto's I know some on the Grave's board that have TPO's in the

1000's, and any medical source that I find reliable with scientific

background have all said FNA is the only true test for Hashimoto's

although up until a few years ago TPO was believed to be the test

for it, now it is seen only as an inflammatory marker of the thyroid.

Kats3boys

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