Guest guest Posted July 29, 2003 Report Share Posted July 29, 2003 The other address wouldn't work, hopefully this will. Please remove my e-mail from your list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Well all I can say is this group saved my life!! I even had a date set where I was going to leave this planet if I had to live in the hell I was in. I'm not "there" yet but am on the way (((((thanks all))))................ ----- Original Message ----- From: Liz C. s Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Meleese, We are sorry to see you go and wish you would stay. we will certainly miss you and your input in the group. huggsss Tina ps hang in there and feel better soon.Meleese wrote: Well all I can say is this group saved my life!! I even had a date set where I was going to leave this planet if I had to live in the hell I was in. I'm not "there" yet but am on the way (((((thanks all))))................ ----- Original Message ----- From: Liz C. s Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[ Yahoo! Mail goes everywhere you do. Get it on your phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Tina I'm not the one going....................it's Liz...............gosh this group is my lifeline, ..............xxxx Re: Unsubscribe Meleese, We are sorry to see you go and wish you would stay. we will certainly miss you and your input in the group. huggsss Tina ps hang in there and feel better soon.Meleese wrote: Well all I can say is this group saved my life!! I even had a date set where I was going to leave this planet if I had to live in the hell I was in. I'm not "there" yet but am on the way (((((thanks all))))................ ----- Original Message ----- From: Liz C. s Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Oh good I am glad well I am sorry she feels that way but no one on this group every professed to be a doctor that is on the Home page if I am not mistaken and I am with you i would not have gotten this far in this journey without this group. I am so glad your not going. By the way do you know has that eagle hatched those eggs yet I no longer can get the site to open. my hubby thought I was nutso i use to sit here and just watch the eagle cause I thought they were so beautiful. Tina Meleese wrote: Tina I'm not the one going....................it's Liz...............gosh this group is my lifeline, ..............xxxx Re: Unsubscribe Meleese, We are sorry to see you go and wish you would stay. we will certainly miss you and your input in the group. huggsss Tina ps hang in there and feel better soon.Meleese wrote: Well all I can say is this group saved my life!! I even had a date set where I was going to leave this planet if I had to live in the hell I was in. I'm not "there" yet but am on the way (((((thanks all))))................ ----- Original Message ----- From: Liz C. s Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Dear misunderstanding Liz, I must address a few of the comments in our leaving as I am sure you have not left yet. First off if you truly believe your doctor is "God" & knows all & sees all & can fix you with a few visits then you better run not walk outta here & we'll see you back in a few years when you have finally figured out Doctors are not "God" & most have very little experience in thyroid problems & most don't care to find out. The people in this group have EXPERIENCED many stupid doctors that have no clue what they are doing & have made them feel worse & made thier bodies practically fall apart. MOST doctors DO NOT listen, nor do they understand. Most want to say it's in your head, they only want to fix the problems they know about. The lead people in this group have done thier home work & know what they are talking about. There is TONS of information on the web & you can do hours of reading & looking but for most of us it is much quicker to ask a person who truely cares about other people. When it comes to "dietary claims" & not supplying any data.....get real here, not every thing works for every person & no matter what you are stating someone can find contradicting "DATA". If you believe in Soy , keep right on eating it, no one will come to your house & make you stop. I personally could care less about a debate on soy. If you put the word "soy" in the search box you could find all the posts about it & if you then had a further point you wanted to make, then I am sure some one would be willing to discuss it with you, I go back to my earlier statement "eat it if you want". I have a teaspoon of RAW local organic honey with a 1/2 teaspoon of cinnamon twice a day for arthritis & it is actully working great for me, been doing it for 2 weeks now. I give it as a "suggestion" not as "medical advice". What amazes me is that more people don't take the time to do research on thier own. I will say that Topper is very knowledgeable & probably SHOULD be a doctor. She has done the research, & has friends with that same problem. How about this idea.....If you are so sure your right.....why don't you start your own group?? From the few groups I have been in EVERY one of them gives advice. Tell me when you go to the doc do you ask him for "Data" to assure yourself he or she knows what he's talking about? When people put stuff on here & I think it sounds fishy I enter the key words & do a little research. I am sure I am not the only one who does so. I could go on but I won't. Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. Well ............ I haven't been on this group very long and they give advice on the things they themselves know about and have experienced. They do say they aren't doctors and that you can take the advice or leave it. It's up to you. This group is for SUPPORT!! And that is what the members here give! For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. It's because doctors believe in the RANGE ZONE! I tend to disagree by what I am feeling and going through myself. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. But you have the choice again here, it's up to you if you want to listen to this or not!!! Nobody is saying if you are in this group don't do this or that are they! They offer help on what they know! One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. I am sorry you feel this way Liz! But I have had more support here than I get from my own doctor about it all. They all understand what I mean when I say my doc is unsympathetic towards how I am feeling about my weight, health and exercise etc! Blames my weight gain and not being able to lose it coz I am lazy! I am sorry but nobody here has a gun to anyone's head saying you have to do as they say or else! The advice is there for you but it's up to you if you want to take it or not. Liz My yahoo pageMy Website Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 By the way do you know has that eagle hatched those eggs yet I no longer can get the site to open. > my hubby thought I was nutso i use to sit here and just watch the eagle cause I thought they were so beautiful. > > Tina Neither of the eggs made it..Another cam has been set up courtesy of a crane ( at a distance) on a nest close by the pair we were watching that has three eaglettes on it. The site was down while they were doing the switch but as of this morning the site is back up. I am a little disappointed though..as much as I wanted the eggs to hatch I enjoyed watching that pair and could tell mom and dad apart..but with out eaglettes they felt it better to seek some out. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 > > Dear List, > > I am unsubscribing from this list for the following reasons: > > There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. > > For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. > > Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. > > This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. > > For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. > > One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . > > I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. > > Liz > Soap boxes are good sometimes, we try to keep it hidden in the corner most times though. Non of us have said we are doctors, if I was a doctor I would have a dignosis by now instead of being told yeah my thyroid is messed but they don't know why and they don't know what it is doing. I have posted links, personally I perfer the medical sites that doctors use..but it is technical reading and takes a while to figure out the gargon..I tried to post the soy, low carb connection with medical research, highly respected medical text books that real doctors use everyday..the response I got was I don't get it..but then I don't have time for a hissy fit cause people don't agree with me. There is a set protocol for thyroid testing, from the drug manufactuers themselves, from the medical groups and from the government sites that are responsible for regulating and paying for the testing, medication etc. very little varys in treatment.. When someone joins and says they feel like crap but the thyroid is fine, doc started them on Synthroid 6 months ago..but based on a TSH test and they have had no follow up work done..yeah we say go see your doctor..testing is every 6 weeks while on dose adjustment..these are what your labs mean, this is why you are taking medication etc.. it is not giving medical advice it is giving real advice..I can not order the bloodwork, I can not write a different prescription but I can tell someone to go back and see a doctor who can and explain to them why.. My mom had RAI for being hyper and she did not know what hyper was..because the hospital diagnosed her and did the RAI a copy was sent to the family doctor, doc figured the hospital was doing follow up, hospital figured they sent a copy to the family doc that the family doc was doing follow up..she went real hypo really quick..I had to tell her to go see her doc, it was not normal..dco started her on Synthroid and told her to come back in 12 weeks..she was still hypo..it was not until I searched and figured out 6 week testing and convinced my mom that she went back to the doc fo rmore testing..but being hypo you do not care..getting up going to work and sleeping is all you really have energy for.. after a few 6 week testing and increasing doses she is no longer hypo and feeling a lot better..problem is her doc only deals with those already hypo..regular bloodwork once a year..the odd dose adjustment and on with your life..no one ever came to her hypo they were all already medicated..once she asked the doc a lightbulb went off and yeah it works.. When looking for advice though you need to look at the source and realize not everything works for everyone..I am in Canada..I have an advantage as between the govenment medical system and my work plan I have full medical coverage..100% coverage.I do not pay for labs, doctors, specialists or medication for that matter. But I realize a lot that post do not have medical coverage..they can not afford to go see a doctor or afford the blood tests..and they do not live in areas of free clinics etc..never mind a specialist with in a 3 hour drive.. With myself the only thing that really helped was when the Iodine issue comes up..some say you need more iodine, some say stay away from iodine..even medical research seems to be split on that one.. And the fringe medical sites are even worse..some claim iodine to be the miracle cure to end all problems.. Me I opted out of iodine for two weeks to see if I felt better..did not really notice a difference..then added it back in and sure enough my heart rate way up..I got shakey and restless and all the hyper symptoms.. I stay away from iodine I still get hyper but not as much..that is just the way my body works..yet I know tons of people( personally , not online) that swear by iodine.. Someone posted the calorie counter..I thought I was doing good for eating..realized I am up to over 7000 calories a day..I figured I was between 2500-3000.. and still need to take a b-complex 100 twice a day to keep my energy levels up and eat more protien so I do not lose wieght.. Sometimes you need to take what you can use, and file away the rest, both eyes wide open..you would be surprised what you can learn.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 I could not agree more Kat! It is like everything in life, it could be relationships, work, church, whatever...YOu take what you need and leave the rest. Liz, I hope you get better. Take care of yourself. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 I can say this group helped me feel better when my doctor never would have figured it out. We aren't making empty claims, the things we say, we've read somewhere, or know first hand that it worked for us, so we're sharing our knowledge with others in the hopes that they can save the wasted time that others experienced, and jump right onto things that might work. We're just telling it like it is for us, and expecting the members to understand that not everything works the same for everyone. Not everyone has the same symptoms, or even the same diagnosis, but we're all in this together, one way or another. I'm sorry you don't feel like you're getting the level of support you sought. We're here because other people refuse to give us the medical advice that we so desperately need, because we can't get it elsewhere, and obviously, it's working for many of us. I wish you wellness and peace. Re: Unsubscribe Well all I can say is this group saved my life!! I even had a date set where I was going to leave this planet if I had to live in the hell I was in. I'm not "there" yet but am on the way (((((thanks all))))................ ----- Original Message ----- From: Liz C. s Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Liz,Rather than leaving the list for the reasons you state, I would hope that you would stick around to provide balance in various ideas andin the ways that members approach things. I like hearing yourperspective on things.TammyDear List, I am unsubscribing from this list for the following reasons:   There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice.   For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice.  Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this.  This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject.   One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here .  I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better.   Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Liz, I've been gone for a while - but I hope you get this message. Remember me? I'm the one who recommended Dr. Brownsteins's book for your back. I hope that worked out by the way - it was the key to healing for me. About the points you raised - while I do get uncomfortable with certain suggestions, I try to make myself remember that without this back and forth exchance I wouldn't find the right ammunition to take to my doctor.... to get him thinking in a new way... If it hadn't been for this group - I wouldn't have found some of the stuff I took to the doctors. I wouldn't have found out about naturethroid which is a hypoallergenic version of armour. So please reconsider. Keep the parts that make sense, and let the rest slide. What works for me might not work for others and vice versa. Anyway - sorry you're unhappy. Hugs, -Lynn > > > > Dear List, > > > > I am unsubscribing from this list for the following reasons: > > > > There seems to be amind set on this list in which people who are > not qualified medical professionals are giving medical advice. > > > > For example, members are posting their thyroid numbers, and asking > others to analyze the results. Not only are others accepting the > advice of unqualified professionals, they may also be following that > advice. > > > > Although I understand that we need to be proactive in our > healthcare, and do become familiar with the various aspects of our > individual conditions, such as thyroid level readings, it is > irresponsible and dangerous to do this. > > > > This also seems to be the case with respect to dietary claims in > which one person will make an unsupported claim, but not provide any > type of data. > > > > For example, someone mentioned that soy was a carsinogen, but > didn't back it up with supporting evidence, so it's just an empty > claim. When I supplied supporting documentation, hoping to start a > dialog, this was met with a statement implying that the matter was > closed, and there has been no further dialog on the subject. > > > > One of the codes of ethics for us language interpreters is that we > never give medical or legal advice. We politely direct the patient > or client to discuss their situation with their healthcare > provider/attorney, and I strongly believe the same applies here . > > > > I had hopes for this list to be a support and resource for me to > understand my thyroid disease. Sadly, I'm finding it's a soap box > for pet theories and unsupported claims. Too bad 'cause it could > have been so much better. > > > > Liz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Well thank you very well said. if anyone had taken the time to read the home page first it states no one here is proclaiming to be a doctor we are all just folks who have been through the same things felt the same ways and are give advice and if you don't believe it just look it up for themselves. I myself was really down and out when I joined here but between Topper and they taught me to be strong and stand up to Dr's who tell me it is all in my head. Cause it isn't I know what I feel and they aren't going me make me the crazy person. Because of these 2 women I finally had my first Endo appointment and they are not sure if it is just my thyroid or if I have Cushings Syndrome as well. This is all because Topper and Gave me back my nerve and fighting spirit to say no I am not crazy stop telling me I am I know how and what I feel. I became very aggressive about my health with the Doctors and they have finally started to listen. Gues what ? I am not crazy !!!! Thanks Topper and up there looking down eating all the cheese she can find.....LOL Tina wrote: Dear misunderstanding Liz, I must address a few of the comments in our leaving as I am sure you have not left yet. First off if you truly believe your doctor is "God" & knows all & sees all & can fix you with a few visits then you better run not walk outta here & we'll see you back in a few years when you have finally figured out Doctors are not "God" & most have very little experience in thyroid problems & most don't care to find out. The people in this group have EXPERIENCED many stupid doctors that have no clue what they are doing & have made them feel worse & made thier bodies practically fall apart. MOST doctors DO NOT listen, nor do they understand. Most want to say it's in your head, they only want to fix the problems they know about. The lead people in this group have done thier home work & know what they are talking about. There is TONS of information on the web & you can do hours of reading & looking but for most of us it is much quicker to ask a person who truely cares about other people. When it comes to "dietary claims" & not supplying any data.....get real here, not every thing works for every person & no matter what you are stating someone can find contradicting "DATA". If you believe in Soy , keep right on eating it, no one will come to your house & make you stop. I personally could care less about a debate on soy. If you put the word "soy" in the search box you could find all the posts about it & if you then had a further point you wanted to make, then I am sure some one would be willing to discuss it with you, I go back to my earlier statement "eat it if you want". I have a teaspoon of RAW local organic honey with a 1/2 teaspoon of cinnamon twice a day for arthritis & it is actully working great for me, been doing it for 2 weeks now. I give it as a "suggestion" not as "medical advice". What amazes me is that more people don't take the time to do research on thier own. I will say that Topper is very knowledgeable & probably SHOULD be a doctor. She has done the research, & has friends with that same problem. How about this idea.....If you are so sure your right.....why don't you start your own group?? From the few groups I have been in EVERY one of them gives advice. Tell me when you go to the doc do you ask him for "Data" to assure yourself he or she knows what he's talking about? When people put stuff on here & I think it sounds fishy I enter the key words & do a little research. I am sure I am not the only one who does so. I could go on but I won't. Dear List, I am unsubscribing from this list for the following reasons: There seems to be amind set on this list in which people who are not qualified medical professionals are giving medical advice. For example, members are posting their thyroid numbers, and asking others to analyze the results. Not only are others accepting the advice of unqualified professionals, they may also be following that advice. Although I understand that we need to be proactive in our healthcare, and do become familiar with the various aspects of our individual conditions, such as thyroid level readings, it is irresponsible and dangerous to do this. This also seems to be the case with respect to dietary claims in which one person will make an unsupported claim, but not provide any type of data. For example, someone mentioned that soy was a carsinogen, but didn't back it up with supporting evidence, so it's just an empty claim. When I supplied supporting documentation, hoping to start a dialog, this was met with a statement implying that the matter was closed, and there has been no further dialog on the subject. One of the codes of ethics for us language interpreters is that we never give medical or legal advice. We politely direct the patient or client to discuss their situation with their healthcare provider/attorney, and I strongly believe the same applies here . I had hopes for this list to be a support and resource for me to understand my thyroid disease. Sadly, I'm finding it's a soap box for pet theories and unsupported claims. Too bad 'cause it could have been so much better. Liz Quote Link to comment Share on other sites More sharing options...
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