Re: Re: Dale, exhaustion, fatigue, LDN

March 13, 2004

C,

I too , as you, have what the doctors call " drop-foot " in my left

leg, due to the weakness caused by PLS. With drop-foot, I was having

difficulty in walking and tripping. Of course I still have problems with

balance (due to side affect from medication), but my Physical Therapist

was the one that called my neurologist for a subscription for the AFO

and also set up the appointment to have the AFO casting. For me, the

AFO has allowed me to put the walker aside for now and use the cane

only. If you have not done so, this may be something worth looking

into.

Have a great week end.

Norton

Re: Re: Dale, exhaustion, fatigue, LDN

Dale,

I am very sorry to hear how fast you are deteriorating. I know that how

someone comes across really shouldn't make any difference to how we feel

about their battle with PLS or any other illness, but you seem such a

really good hearted, intelligent person that I can't help but feel it

somehow makes it seem worse. Compared to others I first came across

with PLS on the internet about 7 or so years ago I thought my

progression was relatively fast initially, but it doesn't compare to

yours.

I have been afraid to write about my experience with LDN so far for fear

of bursting the (small) bubble but I felt I just had to in this case

because from all I've read and now experienced myself I think there is a

reasonable chance it could help you. As says that it sounds

like you need to boost your immune system and that is what LDN does.

LDN has not had a startling effect on me in terms of reversing any

specific symptom, but as I wrote a week or so ago I used to occasionally

have a 'good' day where everything becomes easier to do. For example, I

walk with a walker but usually find that at least every second or third

step and often every step, my right foot tends to drag and my toe

catches as I step through (I have almost worn the front part of the

rubber sole of a pair of shoes only 3 weeks old down to the toe already

whereas it started off extending about 1/4 " beyond the leather).

On my good days I find that I rarely drag my foot at all and almost walk

as 'normally' as you can when you still need a walker. On LDN now I

have had about 10 good days in a row and short periods of feeling almost

'normal' in some little things I have done. Given that it seems it is

the combination of chronic fatigue and PLS which is contributing to your

decline I feel it is well worth trying LDN. Unless you are a druggie,

and I'm sure you're not, it shouldn't make you feel worse and has the

potential to at least stop you getting worse and could even regain you a

little bit of lost ground. Please at least consider it? :-)

Thomson wrote:

> Dale,

> That probably explains why you are going downhill so fast. If you

> could boost your immune system somehow, maybe the PLS would level

> off some.

>

--

.

,-._|\ Covington

/ Oz \

\_,--.x/

v

March 13, 2004

Ditto . You took the words right out of my mouth. Dale, please.

God Bless

Yolanda

Re: Re: Dale, exhaustion, fatigue, LDN

Dale,

I am very sorry to hear how fast you are deteriorating. I know that how

someone comes across really shouldn't make any difference to how we feel

about their battle with PLS or any other illness, but you seem such a

really good hearted, intelligent person that I can't help but feel it

somehow makes it seem worse. Compared to others I first came across

with PLS on the internet about 7 or so years ago I thought my

progression was relatively fast initially, but it doesn't compare to yours.