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Hi n,

A Tg of 3.8 is pretty darned tiny. That is the most likely

explanation for why your WBS was clean (ie, no uptake shown on

scan), and not that your cells no longer absorb iodine. If your Tg

was higher (usually above 5.0), then the doctors start to suspect

that iodine no longer works and other tests are done to find the

thyca. Your Tg should drop to zero after this ablation.

Best wishes,

--Carmen in nyc

> Hi everyone!

> I'm in the process of getting my energy back from being hypo.

> Recently had my followup scan and needed another ablation of

120 mCi.

> I've been back on .175 synthroid for a week and half. Still very

> tired but getting better.

> I'm still confused. (Hopefully I won't be hypo much longer so I

won't

> be able to use that reason!!! LOLOL!!!!!!!) My post-treatment

scan

> (despite a Tg of 3.8) was clean. The Tg level was what caused

my

> doctor to ablate again. Should I be asking for more tests? I

didn't

> ask him specifically about " uptake. " After reading through

some of

> the the questions on the site, I'm wondering if my doctor is

being

> remiss at not suggesting further testing at this point. He felt the

> 3.8 Tg was previously unablated thyroid tissue that is too

minute to

> be shown on the scan.

> Thank you for your patience.

> n

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  • 3 weeks later...
Guest guest

> Hi: In my reading from the group I noticed mentioned that if your nodule

was

> less than 1 cm, mine were 0.02 and 0.06 with miscroscopic papp. cell

> formations why was I given I131 treatment. I am not sorry I had it just

curious

> if you know. Thanks Elaine

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Elaine,

My understanding is that if the thyca is multi-focal, even if it's very

small, many are treated with RAI. I'm curious what your RAI dose

was. Hope this helps.

dee

38 - Austin, TX

TT 7/02

dx pap thyca (multi-focal microscopic)

RAI 29.9 mCi (outpatient) 8/02

last TSH 0.8 ( 2/03) had one last wk, but not sure of the

numbers

off my synthroid for my follow-up scan in June

> Hi: In my reading from the group I noticed mentioned that if

your nodule was

> less than 1 cm, mine were 0.02 and 0.06 with miscroscopic

papp. cell

> formations why was I given I131 treatment. I am not sorry I had

it just curious

> if you know. Thanks Elaine

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  • 1 month later...
Guest guest

,

sorry this reply is so late and I'm sure it has already been answered.

Just thought I'd say yes the formula I have seen most often is your

goal weight time 10 but be sure to add 1-300 cals for activity. Keep in

mind that the less weight you have to lose the slower it will be. You

don't need as many cals as you used to but don't want to cut too low

or your body will go into starvation mode. It's finding the right

balance and being patient that is key. Just keep at it. You'll get

there!

Gena

> I have a question for anyone who knows the answer.  How many calories

> should I eat a day in order to lose weight?  I weigh about 150 ish

> and I am 5'4 " .  I would like to get down to 130.  I think I read

> about x your ideal weight by 10. Is that true??.  If so that would

> mean only 1300 calories a day right?  Anyway any info you can provide

> would be very helpful.  Thanxxxx

>

>

>

>

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  • 1 year later...

----- Original Message -----

My question is as I wrap her christmas

gifts, should I give all these toys that make

noise? Maybe when she gets a hearing aid they will

actually be helpful?

----------------------

When I was first given the official confirmation of my daughters hearing loss,

I spent the next two hours trying to interact with her without words. I didn't

speak because I figured that she could not hear it, so I used very animated

facial expressions and gestures. It was very difficult to communicate that way,

and I decided then and there that I would not do anything less for my daughter

because of her loss. I talked to her and give her exposure to everything

(including toys with sounds) that I would do for a child with normal hearing. I

decided that I would do much more for my daughter because of her loss, but I

would not skip anything, or do anything less because of it. I figured that if

exposure to conversation, music and toys with sound would not hurt, then why not

do it. This is an attitude that has personally served us very well. My daughter

is nearly 3 1/2 with a moderate-severe loss and is doing awesome. Her language

is exploding and she speaks in 7-9 word sentences.

I would suggest that you give her the toys anyway. She may be able to enjoy

other aspects of the toys now, even without any technology such as aids or

implants. And, some kids toys are quite loud -- she may be able to hear if she

holds them close and there is not a lot of background noise. Especially since

you do not yet know the level of loss. I agree with the other person that posted

-- my daughters TOD used toys with sounds in therapy early on.

Enjoy the holidays!

H.

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My question is as I wrap her christmas

gifts, should I give all these toys that make

noise? Maybe when she gets a hearing aid they will

actually be helpful?

----------------------

My daughter was diagnosed two weeks after Christmas with her moderate sloping to

severe hearing loss. Until then we had NO idea that she had any type of loss,

we thought she had some type of speech issue. That Christmas we gave her toys

that made noise and those that didn't....she played with them all. I think her

favorite that year was the Blue that would come to you when you clapped your

hands. The Christmas before that she was given a keyboard that she still loves

to play with. Yes, the volume was usually a little louder than I would have

liked, but she enjoyed it all the same.

Now that we know about her loss, the only thing I make sure of with toys is that

they have a good sound. That means if they talk, it should sound as much like a

real person as possible. So far we've only had to return one gift because of

that. (It was so bad that I could barely understand it).

Give her the toys as you would have. Enjoy them right along side with her. You

may find that some of them are great for language skills.

Debbie, mom to , 5, mod/sev SNHL and , 2, hearing

" I'm through accepting limits, Cuz someone says they're so. Some things I

cannot change, But till I try I'll never know " Defying Gravity from

" Wicked: The Musical "

__________________________________________________

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I totally agree with the clarity. I got Ian a See and Say, but shopped

around for the most realistic sounding one.

Tawnya

Re: Question

>

> My question is as I wrap her christmas

> gifts, should I give all these toys that make

> noise? Maybe when she gets a hearing aid they will

> actually be helpful?

> ----------------------

>

>

>My daughter was diagnosed two weeks after Christmas with her moderate

sloping to severe hearing loss. Until then we had NO idea that she had any

type of loss, we thought she had some type of speech issue. That Christmas

we gave her toys that made noise and those that didn't....she played with

them all. I think her favorite that year was the Blue that would come to

you when you clapped your hands. The Christmas before that she was given a

keyboard that she still loves to play with. Yes, the volume was usually a

little louder than I would have liked, but she enjoyed it all the same.

>

>Now that we know about her loss, the only thing I make sure of with toys is

that they have a good sound. That means if they talk, it should sound as

much like a real person as possible. So far we've only had to return one

gift because of that. (It was so bad that I could barely understand it).

>

>Give her the toys as you would have. Enjoy them right along side with her.

You may find that some of them are great for language skills.

>

>Debbie, mom to , 5, mod/sev SNHL and , 2, hearing

>

>

>

>

> " I'm through accepting limits, Cuz someone says they're so. Some things I

cannot change, But till I try I'll never know " Defying Gravity from

" Wicked: The Musical "

>

>

>

>__________________________________________________

>

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In a message dated 12/19/2004 5:53:34 P.M. Eastern Standard Time,

mothereagle@... writes:

It is becoming apparent that my 2 yr. old who has failed to learn any oral

language has a hearing loss. She has not passed two OAE and has an ABR on the

30th. My question is as I wrap her christmas gifts, should I give all

these toys that make noise? Maybe when she gets a hearing aid they will

actually be helpful?

I am still in shock with this hearing loss..

Blessings

Mothereagle

I would not hold back gifts unless all they do is just make noise. Then it's

just a piece of plastic to a kid who can't hear the sounds. Often the ones

that make noise also vibrate and have sections that light up, move around or

things that pop up. Those would still be fun.

Plus, at least with our son, he can hear the higher sounds better. Without

his aids he misses all conversational sounds. But high pitched ones come

through, and I remember those toys all seemed to have higher, tickling sounds.

Have you played with one of those kids of toys to see if the different tones are

getting through?

Best -- Jill

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In a message dated 12/20/2004 9:51:13 A.M. Eastern Standard Time,

JillcWood@... writes:

I would not hold back gifts unless all they do is just make noise. Then

it's

just a piece of plastic to a kid who can't hear the sounds.

You know, I read this when it arrived as an email and it just sounded so

harsh.It was not meant to be.

When Ian was little, he did not have many toys that made sounds. Those noise

makers made us absolutely crazy. Like nails on a chalkboard. So, we'd let

the batteries die, or my husband would perform a Squeaker-ectomy, removing the

offending noise maker.

The one toy whose sound is still intact is a stuffed bear whose nose is the

squeaker. You squeeze his nose and you get a very high pitched squeal. It

delighted Ian and he loved it, so, we left the nose alone. The squeaking rabbit

puppet was silenced almost immediately because the adults would squeak it

endlessly. (shrug)

His favorite toys never had noise to begin with. As a baby, he liked things

that glittered -- toys that had mylar as the fabric. Or ones that had moving

parts -- those beads on the big fat wires could keep him fascinated to hours

it seemed. One had little cars that ran down a zig-zag ramp -- there were

literally hours spent dropping the cars down the ramp, picking them up and

doing

it again. He's always loved moving parts. Also, the Little People farm, ark

(it went in the tub) and school bus were the favorites.

Sound was never a focus for us when it came to toys. In retrospect the only

one with sound that stands out is that silly bear. Which is one a shelf in

his room. One of only 2 stuffed animal to survive the teenage purge.

Best - Jill

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In a message dated 12/19/2004 2:53:33 P.M. Pacific Standard Time,

mothereagle@... writes:

<<My question is as I wrap her christmas gifts, should I give all these

toys that make noise? Maybe when she gets a hearing aid they will actually be

helpful? >>

They may prove useful once she is hearing. Until then, they probably have

lights with the sound. Most toys seem to. So she'll probably still like them,

just don't be surprised when you find one left blaring in the corner with no

one playing with it! I look back to the days when Neal did that and wonder

how the heck I didn't realize he was deaf for so long.

~Rhonda~

Mom to Audrey, 7, hearing & Neal, 5, CII 6-11-02

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When I was trying to find those stacking ring toys for Ian, I noticed that

EVERYTHING makes a sound. Even the rings on a stick. So I tried a more

independent toy store. They had great stuff that didnt need to make noise.

I do daycare, so 800 toys that make noise makes me nuts too.

Tawnya

Re: Question

>

>In a message dated 12/20/2004 9:51:13 A.M. Eastern Standard Time,

>JillcWood@... writes:

>

>I would not hold back gifts unless all they do is just make noise. Then

>it's

>just a piece of plastic to a kid who can't hear the sounds.

>

>

>

>

>You know, I read this when it arrived as an email and it just sounded so

>harsh.It was not meant to be.

>

>When Ian was little, he did not have many toys that made sounds. Those

noise

>makers made us absolutely crazy. Like nails on a chalkboard. So, we'd let

>the batteries die, or my husband would perform a Squeaker-ectomy, removing

the

>offending noise maker.

>

>The one toy whose sound is still intact is a stuffed bear whose nose is the

>squeaker. You squeeze his nose and you get a very high pitched squeal. It

>delighted Ian and he loved it, so, we left the nose alone. The squeaking

rabbit

>puppet was silenced almost immediately because the adults would squeak it

>endlessly. (shrug)

>

>His favorite toys never had noise to begin with. As a baby, he liked things

>that glittered -- toys that had mylar as the fabric. Or ones that had

moving

>parts -- those beads on the big fat wires could keep him fascinated to

hours

>it seemed. One had little cars that ran down a zig-zag ramp -- there were

>literally hours spent dropping the cars down the ramp, picking them up and

doing

>it again. He's always loved moving parts. Also, the Little People farm,

ark

>(it went in the tub) and school bus were the favorites.

>

>Sound was never a focus for us when it came to toys. In retrospect the

only

>one with sound that stands out is that silly bear. Which is one a shelf in

>his room. One of only 2 stuffed animal to survive the teenage purge.

>

>Best - Jill

>

>

>

>

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  • 4 months later...
Guest guest

I wish!!!! We just do the online courses.

Tawnya

_____

From: Listen-Up [mailto:Listen-Up ] On Behalf

Of Cora

Sent: Friday, May 06, 2005 3:27 PM

To: Listen-Up

Subject: Question

Does anyone on this list currently attend Clinic in person?

If you do, please email me.

Thanks.

Cora

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  • 5 months later...

Kitty, Call Leola Albert in Fritch...or get to check with her, she is the Area Captain in that area and she could let you know. or if not could tell you who to call. TOPS HUGS, Verniekitty wrote:

question guys?

is there a 'kops society' up here in amarillo? hadnt heard anything lately bout one..

thks guys

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

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  • 5 months later...
Guest guest

K.I got all my labs back ..tsh is 3.99 t3 is8.8 t4 is 29 I hope the girl

didn't put the t3 and t4 backwards ...I am on 88mcg of that d-mn Synthroid

and I really don't think Endo will change ...just wondered about my lab

results...I am really feeling weak and foggy ...not much stamina in the OLE

legs and I poop out way earlier than I used to ...I have three daughters due

to give birth in the next four months ...I gotta feel better

any suggestions

Charlane

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Guest guest

>

> K.I got all my labs back ..tsh is 3.99 t3 is8.8 t4 is 29 I hope

the girl

> didn't put the t3 and t4 backwards ...I am on 88mcg of that d-mn

Synthroid

> and I really don't think Endo will change ...just wondered about

my lab

> results...I am really feeling weak and foggy ...not much stamina

in the OLE

> legs and I poop out way earlier than I used to ...I have three

daughters due

> to give birth in the next four months ...I gotta feel better

>

>

> any suggestions

> Charlane

>

The TSH is easy to figure out, but do you have ranges for the t4 and

T3?

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Guest guest

> >

> > K.I got all my labs back ..tsh is 3.99 t3 is8.8 t4 is 29 I

hope

> the girl

> > didn't put the t3 and t4 backwards ...I am on 88mcg of that d-mn

> Synthroid

> > and I really don't think Endo will change ...just wondered about

> my lab

> > results...I am really feeling weak and foggy ...not much stamina

> in the OLE

> > legs and I poop out way earlier than I used to ...I have three

> daughters due

> > to give birth in the next four months ...I gotta feel better

> >

> >

> > any suggestions

> > Charlane

> >

> The TSH is easy to figure out, but do you have ranges for the t4

and

> T3?

>

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