Re: ALI MARINES

[Guest guest]

HOLA BETY,

yes i am Mexicana. we are in the process of finishing

up the dna test to verify that it is rss. We are the

the border town of Eagle Pass, Texas (border to

Piedras Negras, Coahuila, Mexico) were are you

located. I have been given Incremin by three mexican

doc's. and it has helped me a bit. I know that it

stimulates his appetite but at the same time it

loosens his stools. so i have to be careful that I

only give him the recommended dosage! i hope to hear

from you again! ali

--- " Real ez, Elvira Beatriz (Elvira Beatriz) "

wrote:

> Hi Ali:

>

> My names is Betty and I'm Mexican, like my son

> (21months), he has

> a prediagnostic of RSS given be his genetics.

>

> I'm very curious to know of you are Mexican and

> where do you live,

> because maybe you could recommend me your endocrino

> and could give me

> some tips because RSS is not so Know in Mexico.

>

> In my trip to different doctors, I used once

> INCREMIN, it didn't help to

> much to my son. Well I hope you could answer my

> email.

>

> Betty

>

> Re: Re: I'm a new member

>

> Hi Ken,

>

> Thanks so much for writing back. Before I found

> this

> web-site, I felt alone and helpless!

>

> I have contacted the magic foundation and have the

> application to joing the group, but because we've

> been

> running in and out of hospitals with hector i kinda

> lost track of the documents.

>

> My son started walking at 10 months, he's talking

> alot, he's very active, and he's eating pretty well

> now. I have a tendency to feed him high calorie,

> high

> fat foods (it's all mexican food, hahaha). I am

> giving

> him a stimulant to increase his appetite(recommended

> by his pediatrician in mexico), at the request of

> our

> U.S. Pediatrician we have seen a geneticist in San

> and that same geneticist consulted with a

> friend (an endecronologist) but only said that

> because

> had grown sufficient enough in his first year

> he would not see him til he was three years old.

>

> I think I finally figured out why he wouldn't sleep

> as

> much, I believed it was because he was hungry. What

> I

> ended up doing was fill his bottle with cereal, his

> formula, and gerber. Not only did he sleep but he

> started gaining weight. The tough times come when

> he

> gets a stomach flu and diarrea and he looses the

> little weight he gains.

>

> I would greatly appreciate it if you could provide

> me

> the address of the Dr. in New York, maybe my

> pediatrician can contact him/her.

>

> One last question, do you have any other rss

> children?

> We have a 3 year old daughter who is not rss. but we

> are holding off on other children, because of the

> possiblity of another rss child.

>

> thanks, ali m.

>

>

>

> __________________________________________________

>