Re: OT- questions for surgery

[Guest guest]

> So it is pretty unanimous that various docs agree I need surgery..

> Being me, I still have not made up my mind. It feels like the right

> thing to do but perhaps I won't know or have that " complete " feeling

> until just before, the wee end or when all of this is behind me..

> It was explained to me that Crohn's strictures really don't get any

> worse and they don't know how I am walking around functioning! I am

> like screaming in my head " DIET PEOPLE WHAT IS SO FRIGGEN HARD TO

> UNDERSTAND?!?!!? "

>

Jodi, So sorry to hear you are going through all this. I've been

wondering why you've

been quiet and hoping you were all right.

>

> I hope the diseased part of my small bowel can heal on this diet.

> From what they saw on the pictures the disease isn't a concern at

> this point. The strictures are an immediate threat.

>

> On a good note the surgeon thinks the mass might be tissue build up

> due to stricturing but he cannot know for sure due to no picture or

> biopsy. He also said that at the state I am in I am a breeding

> ground for Pre-Cancer regardless of this mass. I wonder if " they "

> are using fear tactics to get me on the operating table?

That doesn't sound like a fear tactic to me - just a consideration it

is worth weighing

rationally while you are making this tough decision.

I remember the first time my Gastro told me that people with UC had a

higher risk

for developing colon cancer - and he wanted me to have a colonoscopy -

it

kind of freaked me out and made me *NOT* want to have a colonoscopy -

and

I didn't have one for years, not until I changed doctors to my current

one,

but I had this niggling doubt all along that maybe I was developing

cancer -

anyway, so that anxiety didn't get relieved until I finally had one,

all those years

later.

> He answered all of my questions- he just went all vague about my

> small intestine.

>

> Sorry about all of this crazy saga- I rather not take up too much

> time about my sob story. The good news is that even in my state the

> diet has been pretty miraculous to keep me going pain free and

> functioning- none of them understand how this is possible and

> dismiss it as yet " another one of those Crohn's mysteries "

> WHATEVER!!!!!!!!!!! Amazing considering the mess my colon is in.

>

> I really did not think it was this bad or that I would be here..

> contemplating this.. having all kinds of existential questions and

> also going to a lawyer so if I don't wake up my wishes will be met.

>

> Sigh.. Who knows if I am strong enough..

Jodi, you are very strong. Don't doubt your strength.

Everyone on this list has seen it.

Mara

[Guest guest]

Dear Jodi...

I admire your strength and courage.

You have all you need inside of you.

Our thoughts are with you!

Don't give up!

GERDS and chronic C

SCD 1 yr

>

> Sigh.. Who knows if I am strong enough..

> Jodi

>